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  1. Replies
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    Hi Lynne Oh what a blow, having to make the...

    Hi Lynne

    Oh what a blow, having to make the decision to use your powered wheelchair in your home. Very well done for actually making that decision, especially with the implications for your...
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    Yes, I think he is, Chrissie! Itís good to know...

    Yes, I think he is, Chrissie! Itís good to know he still has his spirit. ;)
  3. Thread: New

    by Gillette
    Replies
    37
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    4,735

    Hi Jojo, One of the things that make MND so...

    Hi Jojo,

    One of the things that make MND so hard to cope with is that there is no ďusual ď. Everybodyís MND journey is different, which is why itís so hard to anticipate what is likely to happen...
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    Hi Chrissie, I agree with Ellie about...

    Hi Chrissie,

    I agree with Ellie about considering an NG tube for Douglas. Have you thought about trying to get him admitted to the vent unit?

    The two of you are so obviously devoted to each...
  5. Thread: Hello from me

    by Gillette
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    5
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    335

    Hi Lesley, Welcome to the forum. So sorry that...

    Hi Lesley,

    Welcome to the forum. So sorry that your Mum has been diagnosed with this horrible disease. It can feel like a very lonely time but, if you need information or support, we are here.
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    Oh, Chrissie, Iím so sorry this is happening to...

    Oh, Chrissie, Iím so sorry this is happening to you both. Iím not surprised youíre feeling as you do.

    It doesnít sound as though the hospice is where he should be for assessment if they know so...
  7. Replies
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    23,039

    Hi Barry, Hmm, that could prove to be an...

    Hi Barry,

    Hmm, that could prove to be an expensive loss.

    My partner is the one who loses things. Recent losses include:
    Cordless phone
    TV remote
    A parcel containing a book I won
    Drug...
  8. Thread: Doddie Weir

    by Gillette
    Replies
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    816

    Hi Barry Thanks for posting that. It is...

    Hi Barry

    Thanks for posting that. It is wonderful that he is raising money for and, just as importantly, awareness of MND and that the BBC have been following him.
  9. Replies
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    23,039

    Todayís good thing is that I managed to clear and...

    Todayís good thing is that I managed to clear and tidy some space in the kitchen and the living room . Iíve been trying to do it for weeks.
  10. Replies
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    23,039

    Truce happily agreed to. Iíve never seen the...

    Truce happily agreed to. Iíve never seen the point in fighting over a man, it just makes them big-headed. Ha ha ha.

    Well now, if TC is away, who is taking his place as Santa?
  11. Replies
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    Ha ha ha, Kayleigh. Iím afraid Iím not interested...

    Ha ha ha, Kayleigh. Iím afraid Iím not interested in getting into a cat fight over any man, especially if he needs protection from a sweet little pussy cat - although surely the forumís answer to...
  12. Replies
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    23,039

    Woohoo, I used to knit and Iím a Nana! Perhaps...

    Woohoo, I used to knit and Iím a Nana! Perhaps Iíll stand a chance with our dapper Doug! Stand back, ladies. I have knitting needles and I know how to use them.
  13. Replies
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    23,039

    Thatís great, Doug. Is your Speech and Language...

    Thatís great, Doug. Is your Speech and Language Therapist organising that for you? I seem to remember mine mentioning it when we first talked about voice banking. She wasnít familiar with Acapela but...
  14. Thread: So so tired

    by Gillette
    Replies
    45
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    7,067

    Hi Sheila, Iím so sorry having the PEG fitted was...

    Hi Sheila, Iím so sorry having the PEG fitted was unpleasant for you. Be careful with the site of the tube as, if it gets caught on clothing or when being washed or dried, it can hurt. I hope youíll...
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    Iíve been listening to some tracks on YouTube and...

    Iíve been listening to some tracks on YouTube and came upon this one. It brings back memories of a life changing trip to Australia in 2013.

    https://www.youtube.com/watch?v=IcrbM1l_BoI
  16. Replies
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    You are very welcome, Kayleigh. Yes, there are...

    You are very welcome, Kayleigh. Yes, there are some lovely things on there,

    There are two other marketplace sites selling arts and crafts: Etsy and Not on the High Street:

    https://www.etsy.com...
  17. Replies
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    23,039

    Hi Kayleigh Yes, Iím finding the tablet...

    Hi Kayleigh

    Yes, Iím finding the tablet holder really handy. I have a cushioned tray on my lap and the holder sits on the tray.

    This is the link to the one I bought, which was from Folksy. I...
  18. Replies
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    23,039

    Today’s good things are the kindness of friends,...

    Today’s good things are the kindness of friends, which should never be taken for granted, and squeezy hugs.
  19. Replies
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    70,986

    Hi Kayleigh. Perhaps you could use something...

    Hi Kayleigh.

    Perhaps you could use something like ďsix cheese a-playingĒ instead?
  20. Replies
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    70,986

    Thank you for your lovely musical Advent...

    Thank you for your lovely musical Advent calendar, Kayleigh. I am really enjoying it.
  21. Replies
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    Todayís good thing is my new tablet cushion. I...

    Todayís good thing is my new tablet cushion. I struggle to hold my tablet but my new cushion stand for it arrived today and itís already making a huge difference.
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    This vehicle is now for sale again. There is...

    This vehicle is now for sale again.

    There is nothing wrong with it - my carer has changed his mind about driving it.

    I paid £2850 but would seriously consider a reasonable offer

    I was...
  23. Replies
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    21,257

    We do understand, Panniertank. I used to...

    We do understand, Panniertank.

    I used to really enjoy driving and the independence it gave me. I had to let my beloved Alfa Romeo go when I needed hand controls, which really upset me. I bought a...
  24. Replies
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    Well, chocolate and caramel tray bake sounds...

    Well, chocolate and caramel tray bake sounds delicious and perfect for a celebration!
  25. Replies
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    Ha ha ha! Being naughty means I go for the men...

    Ha ha ha! Being naughty means I go for the men every time. Iíd be spoilt for choice, wouldnít I? Who to choose, though? Ladiesí man, Doug - hmm, I wonder if heís married? Barry with his hidden depths...
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