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Type: Posts; User: miranda

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  1. Replies
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    I would definitely contact MNDA to progress this...

    I would definitely contact MNDA to progress this for Doug (and you!). They used to have a specialist wheelchair person but I'm not sure if they still do. This is a totally unacceptable situation...
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    Nice to see your positive news Dina

    Nice to see your positive news Dina
  3. Thread: What Now?

    by miranda
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    I'm not sure if this has already been suggested -...

    I'm not sure if this has already been suggested - type out a list of often used phrases for Gran to,point to. Also I think MNDA have a fact sheet about this (I suspect Kayleigh will be good at...
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    You must be going through so much turmoil. ...

    You must be going through so much turmoil. Thinking of you all.
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    Brilliant news

    Brilliant news
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    11,398

    I'm blubbing happy tears for you!

    I'm blubbing happy tears for you!
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    That’s intriguing!! My good thing - a visit...

    That’s intriguing!! My good thing - a visit yesterday from a special friend who makes me soups and meals to go in the freezer. Freshly baked cup cakes too this time. I’m lucky to have such great...
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    Sorry, Dina, i too didn't think you were serious....

    Sorry, Dina, i too didn't think you were serious. More hugs .
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    Dear Wailywoo here’s another suggestion. ...

    Dear Wailywoo here’s another suggestion. Yesterday we had a flyer “Give Unwanted Items a New Home”. It’s from Scope the disability charity and they will collect for free all sorts of stuff. ...
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    It’s understandable that you are wondering if...

    It’s understandable that you are wondering if there’s a causal link but evidence so far seems to be inconclusive. For example I’ve never been in the military or played contact sports, neither have I...
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    So sorry to read such sad news. Thinking of you...

    So sorry to read such sad news. Thinking of you and your family. Thank you for letting us know.
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    My only hospital stays have been to have PEG...

    My only hospital stays have been to have PEG inserted and then 8 years later to have it replaced. However, I did have a major fall down the stairs resulting in a four week stay because of a...
  13. Thread: 10k

    by miranda
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    Thank you to your “team” and to everyone who...

    Thank you to your “team” and to everyone who raises money for us.
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    Blue Badge Warning

    Hope everyone knows that we don’t get a reminder when the Blue Badge is due to expire. It can be renewed up to 8 weeks before expiry date.
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    Surely it is obvious that 8.4.3 is breached as...

    Surely it is obvious that 8.4.3 is breached as Ellie has been caused needless anxiety etc
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    Thinking of you. It must be an overwhelming...

    Thinking of you. It must be an overwhelming shock.
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    Wow Ellie!! Thank you for all your advice and...

    Wow Ellie!! Thank you for all your advice and tips. You never cease to amaze me - and many others too.
  18. Thread: Walkers

    by miranda
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    2,649

    I keep the brakes “half on” when I use my walker....

    I keep the brakes “half on” when I use my walker. It’s too uncontrollable otherwise.
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    If you come further south to Northampton, the...

    If you come further south to Northampton, the East Midlands airport is about an hour up the M1. We are under the John Radcliffe MND care centre in Oxford (Prof Talbot and Prof Turner). Also MNDA...
  20. Thread: Pain/Agony

    by miranda
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    48
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    5,644

    Would it help if you wrote or typed a list of...

    Would it help if you wrote or typed a list of phrases your gran could point to? For example I’m cold. I need a drink. Please move my foot etc etc
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    How wonderful that you have such a big milestone...

    How wonderful that you have such a big milestone on the horizon. When my son got married I knew my EL would,probably be OTT but I worried about what to do with all those soggy tissues. My solution...
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    I was diagnosed with PBP in 2007 but as can be...

    I was diagnosed with PBP in 2007 but as can be seen from the responses already, there is absolutely no way anyone can predict how this disease will,progress. It's so sad to read when someone has...
  23. Thread: Good news

    by miranda
    Replies
    111
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    10,018

    There's no easy answers to these trials and...

    There's no easy answers to these trials and tribulations that go with life with MND. It all seems so difficult to go from being a strong, (bloody minded sometimes ) independent person to someone who...
  24. Thread: Micks funeral

    by miranda
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    How lovely to have that recognition and thank you...

    How lovely to have that recognition and thank you for sharing it with us. Hope you and the family are well supported in the weeks and months ahead.
  25. Thread: Hello folks

    by miranda
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    Hi Iain and welcome to Northamptonshire. The...

    Hi Iain and welcome to Northamptonshire. The local branch of MNDA méet for lunch on the first Wednesday of each month. This is held from 11.45-2.00 in the garden centre next to waitrose in Wootton....
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