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  1. Thread: Voice Banking?

    by LesleyJ
    Replies
    6
    Views
    580

    Thanks everyone, this forum is so fab.

    Thanks everyone, this forum is so fab.
  2. Thread: Voice Banking?

    by LesleyJ
    Replies
    6
    Views
    580

    Thanks Terry, will do that x

    Thanks Terry, will do that x
  3. Thread: Voice Banking?

    by LesleyJ
    Replies
    6
    Views
    580

    Voice Banking?

    Hi everyone
    My Mam has bulbar and her voice is now deteriorating. I have heard of something called Voice Banking but not sure what it is, what it does or how you do it. Is it an app? Any advice...
  4. Thread: Hello from me

    by LesleyJ
    Replies
    14
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    3,529

    Hi Streetwise, yes Mam can still talk although...

    Hi Streetwise, yes Mam can still talk although her voice is getting worse. Iím ok and now sleeping thank goodness. x
  5. Thread: Hello from me

    by LesleyJ
    Replies
    14
    Views
    3,529

    Hi Ellie, thanks for your advice and tips. Iím...

    Hi Ellie, thanks for your advice and tips. Iím sure it will be a temporary thing, although had less than an hour last night so feeling and looking delightful:-)
  6. Thread: Hello from me

    by LesleyJ
    Replies
    14
    Views
    3,529

    Hi Ruby, yes itís horrendous isnít it. Iíve now...

    Hi Ruby, yes itís horrendous isnít it. Iíve now developed lovely insomnia as I have so much going on in my head.
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    1,093

    Sending love to you, how absolutely horrendous....

    Sending love to you, how absolutely horrendous. keep strong for your Mum x
  8. Replies
    17
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    2,548

    Thanks MMW, great tips, will have a go x

    Thanks MMW, great tips, will have a go x
  9. Replies
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    2,548

    Thanks for those tips Ellie, I will ask him on...

    Thanks for those tips Ellie, I will ask him on Monday when he comes. X
  10. Thread: Lorazepam

    by LesleyJ
    Replies
    2
    Views
    659

    Thanks Ellie. The paramedic was wonderful, I...

    Thanks Ellie. The paramedic was wonderful, I wanted to keep him. Thanks for your advice as ever x
  11. Replies
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    2,548

    Hi Ellie, how kind of you to ask. She is doing...

    Hi Ellie, how kind of you to ask. She is doing ok, she has a sore nose and it hurts the back of her head but I have added a think strip of cotton wool stuck on with Vaseline. her breathing is...
  12. Thread: Lorazepam

    by LesleyJ
    Replies
    2
    Views
    659

    Lorazepam

    Hi, my mam has bulbar MND and her breathing is getting worse. She has had 5 panic attacks, the last one being last night and I had to call 999 as her breathing was so bad. We have been given a...
  13. Replies
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    2,548

    Thanks Hayls

    Thanks Hayls
  14. Replies
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    2,548

    Thank you Ellie, I was hoping you would respond....

    Thank you Ellie, I was hoping you would respond. Think I am going to rely on toys bit. She has calmed now so will try your nose tips.
  15. Replies
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    2,548

    Mam has just had a slight panic attack because...

    Mam has just had a slight panic attack because she couldnít get her breath. Our normal breathing exercises together didnít work at first. She appears to have a blocked nose so was struggling to...
  16. Replies
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    2,548

    Ellie thank you so much. I have seen references...

    Ellie thank you so much. I have seen references to this but didnít know what they meant. We need next Friday to come quickly, she is so tired and breathless with headaches in the morning. x
  17. Replies
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    2,548

    Thanks Lynne, itís still all very new to us so...

    Thanks Lynne, itís still all very new to us so might give them a call x (non invasive? Apologies for my daft error lol)
  18. Replies
    17
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    2,548

    That should say Ďmy Mam wasí - lol

    That should say Ďmy Mam wasí - lol
  19. Replies
    17
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    2,548

    Non evasive ventilation

    My Mambwas diagnosed with bulbar at the end of November. She seems to be getting worse very quickly. We had an appointment yesterday and the consultant has arranged for Non Evasive Ventilation which...
  20. Thread: Panic attacks

    by LesleyJ
    Replies
    21
    Views
    3,548

    Thanks so much everyone, this forum is so...

    Thanks so much everyone, this forum is so supportive
  21. Replies
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    3,647

    Sending love Steve

    Sending love Steve
  22. Thread: Panic attacks

    by LesleyJ
    Replies
    21
    Views
    3,548

    Thanks everyone, I think we need to chat with...

    Thanks everyone, I think we need to chat with dietician. The drinks she has are nutricia calogen extra shots strawberry and they are making her gag (they look lovely as well!)
  23. Thread: Panic attacks

    by LesleyJ
    Replies
    21
    Views
    3,548

    Thank you all so much for your responses. They...

    Thank you all so much for your responses.

    They are the little plastic strawberry drinks provided by the dietician. She absolutely hates them. I suggested that she might want to think about the Peg...
  24. Thread: Panic attacks

    by LesleyJ
    Replies
    21
    Views
    3,548

    Hi Rachael Thanks for responding. her...

    Hi Rachael

    Thanks for responding. her breathing is getting worse. Todayís happened just as she had taken her dietary drink shot which she absolutely hates. She was gagging and was almost sick. She...
  25. Thread: Panic attacks

    by LesleyJ
    Replies
    21
    Views
    3,548

    Panic attacks

    my Mam has progressive bulbar MND and was diagnosed 3 weeks ago. Her breathlessness is getting worse. She couldnít breathe on Saturday and we rang an ambulance who said it was a panic attack as she...
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