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  1. Thread: Some advice please

    by Deb
    Replies
    11
    Views
    317

    Hi Diamond 123 and welcome to our friendly forum,...

    Hi Diamond 123 and welcome to our friendly forum, it's a great place for advice and support.

    I am so sorry you are worried about your symptoms. Waiting for the results of tests and then to see...
  2. Thread: tandem jump

    by Deb
    Replies
    23
    Views
    841

    Wow ! Just heard this interview Maz, although I ...

    Wow ! Just heard this interview Maz, although I didn't make it to the end of the song !

    You are such a special, inspirational couple.

    You have definitely inspired me to stop feeling sorry for...
  3. Thread: hi

    by Deb
    Replies
    19
    Views
    644

    Hi Maz, Good luck for tomorrow.. I am sure you...

    Hi Maz,

    Good luck for tomorrow.. I am sure you will be a star and a huge well done for doing the jump.

    I think we all try to stay positive and upbeat, amazingly so sometimes but each...
  4. Replies
    11
    Views
    521

    Hi VIX 123 and a very warm welcome to our...

    Hi VIX 123 and a very warm welcome to our friendly forum.

    I am so sorry for your husbands diagnosis, it's such a shock and there is such alot to take in.The early months are so overwhelming and I...
  5. Thread: Falling !

    by Deb
    Replies
    6
    Views
    371

    Thank you Ellie, Yes my GP is fantastic.. The...

    Thank you Ellie,

    Yes my GP is fantastic.. The paramedics couldn't believe how good the surgery is. There was no reason my legs gave way. I know I need something safer than a rollator, I've just...
  6. Replies
    31
    Views
    5,805

    Thanks for your very entertaining blog Lee. It's...

    Thanks for your very entertaining blog Lee. It's always a good read.

    I really agree with the part about boycotting inaccessible restaurants, especially when they say they are but have a couple of...
  7. Thread: Falling !

    by Deb
    Replies
    6
    Views
    371

    Falling !

    Hi Everyone,

    I know people on here will understand because we have probably all done it. Coming out of our wet room last week using my rollator my legs just gave way and I fell with my legs...
  8. Thread: Meltdown

    by Deb
    Replies
    53
    Views
    5,374

    Sorry Jonboy for your experience at the hospice,...

    Sorry Jonboy for your experience at the hospice,

    It's so worrying that we can be treated like this and your wife is unable to have a break or relax. I am sure she is happier with you being home...
  9. Thread: tandem jump

    by Deb
    Replies
    23
    Views
    841

    A huge well done for your bravery Maz, People...

    A huge well done for your bravery Maz,

    People use the word amazing alot in life but this is really and truly an amazing thing to do.

    I am such a wimp that I have to close my eyes driving my...
  10. Replies
    12
    Views
    1,107

    Hi Music Mans wife, How annoying and...

    Hi Music Mans wife,

    How annoying and frustrating for you. I get so cross when people block the pavement or the drop downs . Sometimes we have to drive our chairs in the road and you see parents...
  11. Thread: Adapted vehicles

    by Deb
    Replies
    12
    Views
    1,377

    Thanks John, I got my Salsa M2 last week and...

    Thanks John,

    I got my Salsa M2 last week and it manages drop down kerbs really well. They are coming to our home to adjust the height next week and will change the cushion as and when I need it....
  12. Thread: Meltdown

    by Deb
    Replies
    53
    Views
    5,374

    Hi Dina, So sorry you've had such an awful...

    Hi Dina,

    So sorry you've had such an awful experience with your carer... It must have been difficult to stay calm as someone not telling the truth is so infuriating.

    I know getting upset and...
  13. Thread: Adapted vehicles

    by Deb
    Replies
    12
    Views
    1,377

    Oo I thought I had done well to choose the car,...

    Oo I thought I had done well to choose the car, colour and powerchair!

    I didn't realise I now have to decide on the restraint or racing car seat belt ! I could easily be dangerous on it !
    ...
  14. Replies
    5
    Views
    1,578

    Thank you so much for posting this Kayleigh, ...

    Thank you so much for posting this Kayleigh,

    I am going to be busy planning days out. Hope you're doing OK!

    Love Debbie x
  15. Thread: Adapted vehicles

    by Deb
    Replies
    12
    Views
    1,377

    Thanks Everyone, looking forward to being out...

    Thanks Everyone, looking forward to being out and about again! I will definitely have a look at the National trust, Barry.

    The transfer board to our car from my wheelchair has led to some very...
  16. Thread: Hello Im Douglas

    by Deb
    Replies
    147
    Views
    10,694

    Hi Douglas, Well done for your perseverance...

    Hi Douglas,

    Well done for your perseverance and patience with the mask. You should feel proud of yourself. However, the food doesn't sound like home standards so I really hope you get home soon....
  17. Thread: Adapted vehicles

    by Deb
    Replies
    12
    Views
    1,377

    Adapted vehicles

    Hi Everyone, I hope it's ok to start a new thread on this because I realise there are lots of existing ones and I am sorry if I am repeating things.

    Thank you to everyone who have sent me messages...
  18. Thread: Scrap 6 Months

    by Deb
    Replies
    6
    Views
    1,415

    This seems to really depend on where you live. ...

    This seems to really depend on where you live.

    My MND nurse came to see us at home a few days after I had been diagnosed. She suggested and signed a DS1500 for me but it was sensitivity...
  19. Thread: Hiya

    by Deb
    Replies
    11
    Views
    1,060

    Hiya to you Maz, I am very sorry about your...

    Hiya to you Maz,

    I am very sorry about your diagnosis but I would like to warmly welcome you to the forum. It's the right place for emotional support, practical advice and the occasional rant or...
  20. Replies
    5
    Views
    745

    Hi Rosie, Welcome to the forum! I am so very...

    Hi Rosie,

    Welcome to the forum! I am so very sorry for your husband's diagnosis, it's such a huge and overwhelming shock and it's hard to know which way to turn. The forum is a good place for...
  21. Thread: Music Thread 2

    by Deb
    Replies
    25
    Views
    3,985

    Thanks for posting this Dina. I love this song...

    Thanks for posting this Dina. I love this song and I, like you, needed happy music this morning.

    It also made me smile because I used to put the radio on and sing loudly to hurry up my boys in...
  22. Replies
    16
    Views
    1,446

    Hello Panniertank, I am so sorry you are...

    Hello Panniertank,

    I am so sorry you are having to make such difficult and heartrending decisions, whilst still trying to come to terms with your diagnosis. You must feel very shocked and alone...
  23. Thread: bereavment

    by Deb
    Replies
    30
    Views
    6,269

    Hello Caljake, I am so sorry for the loss of...

    Hello Caljake,

    I am so sorry for the loss of your darling husband. I hope you have love and support around you and that in time your happier memories will be of comfort to you.

    Love Debbie x
  24. Thread: On the border

    by Deb
    Replies
    8
    Views
    1,053

    Looks absolutely gorgeous Barry, Enjoy ! I...

    Looks absolutely gorgeous Barry, Enjoy !

    I am not enough of an expert to talk about the colour of poppies but they look lovely.

    Love Debbie x
  25. Thread: Fed up

    by Deb
    Replies
    74
    Views
    7,898

    I too have been thinking about you Pink and...

    I too have been thinking about you Pink and hoping you are comfortable.

    Love Debbie x
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