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Type: Posts; User: Lynne K

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  1. Thread: Rch4

    by Lynne K
    Replies
    264
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    70,159

    Hi Leo. Thanks for uploading your mums scores....

    Hi Leo. Thanks for uploading your mums scores. The chart looks like ot has slowed down jer decline considerably if the estimate without the drug is accurate. I hope that the study proves it will be...
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    Sounds good about working from home and that you...

    Sounds good about working from home and that you can still drive. Lynne
  3. Replies
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    502

    Yea, Gloslad. I was similarly slowly losing my...

    Yea, Gloslad. I was similarly slowly losing my ballance for 4 years. I too, like lots of other people on this forum, had an active life, walking hills and mountain scrambling (for those with no hill...
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    502

    Hi Gloslad, we all cannot say that you have MND...

    Hi Gloslad, we all cannot say that you have MND or not. But the tests you've had sound to a non expert that you don't have MND. I don't know whether or not signs are in our brains and spinal fluid...
  5. Thread: hi

    by Lynne K
    Replies
    19
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    645

    Great thought for the day Doug. Bring it on....

    Great thought for the day Doug. Bring it on. Lynne :)
  6. Replies
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    521

    Hi Vix, so sorry that you have had to join us...

    Hi Vix, so sorry that you have had to join us with your husbands recent diagnosis. You have already had lots of good advice so I won't overload you with more. But I will say how important it is for...
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    Hi Pen.' I'm also sorry that your friends family...

    Hi Pen.' I'm also sorry that your friends family are not in touch. They obviously don't know how much of yourself went into caring for your friend. It's nice to hear from you after several months. I...
  8. Thread: Cbd

    by Lynne K
    Replies
    7
    Views
    542

    Aha, Johnboy, Tramadol was the best for me You...

    Aha, Johnboy, Tramadol was the best for me
    You reminded me of the name that I couldn't remember earlier. I have a box so will check it's expiry date and if it's in date I'll take some tonight and...
  9. Thread: Cbd

    by Lynne K
    Replies
    7
    Views
    542

    Hi KD1, I have no experience of CBD but I did get...

    Hi KD1, I have no experience of CBD but I did get other drugs in the past before MND to ease my pain and help me to sleep. A low dose of amitriptilyne about 10mg (not sure if I've spelled it...
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    Sorry for slow response Vicky. I've been taking...

    Sorry for slow response Vicky. I've been taking Rilozone since November 2017. Lynne
  11. Replies
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    1,107

    You've already got good advice MMW but just a...

    You've already got good advice MMW but just a little message to say that I agree with leaving a little polite note so it's a learning opportunity for the badly parked driver. Lynne
  12. Replies
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    10,729

    Oh dear. Hope that things ease so that you can...

    Oh dear. Hope that things ease so that you can sleep better. Lynne
  13. Thread: Ibudilast

    by Lynne K
    Replies
    19
    Views
    2,200

    Ibudilast is now being put on a 2b-3 trial...

    Ibudilast is now being put on a 2b-3 trial according to ALS News. They are recruiting now for people that haven't had their MND diagnosis for more than 18 months. Any of you that are in the US please...
  14. Thread: Last message

    by Lynne K
    Replies
    2
    Views
    465

    Hi Sky. Smashing news and thanks. Lynne

    Hi Sky. Smashing news and thanks. Lynne
  15. Thread: house

    by Lynne K
    Replies
    5
    Views
    512

    Hi Ben. Does your landlord know that you have...

    Hi Ben. Does your landlord know that you have MND? Good luck speaking them about a hoist. If they aren't happy with this then contact your local housing office for an urgent adapted bungalow or flat....
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    550

    Hi Jo, welcome to our forums. I'm sorry that I...

    Hi Jo, welcome to our forums. I'm sorry that I don't have any knowledge of your request but I just wanted to wish you good luck for getting your husbands OT to sort out what's needed quickly. Lynne
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    747

    I just saw your post about Riluzone Vicky. If...

    I just saw your post about Riluzone Vicky. If your dad gets headaches in the morning then speak with one of the MND nurses or his Dr Chaouch about it because it might relate to his breathing. Weak...
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    747

    I just deleted a duplicate post. I don't know...

    I just deleted a duplicate post. I don't know why, but editing was the only way that I could get rid of it.
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    Vicky, My neurologist Amina Chaouch was very...

    Vicky, My neurologist Amina Chaouch was very reluctant to state the type of MND I had until I pressed her. Then she said ALS. This was after a brain MRI and 3 lots of muscle and nerve conduction...
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    Sounds like your dad needs carers so the burden...

    Sounds like your dad needs carers so the burden isn't all on you Vicky. I hope that your dad will take something. People on here have anti-depressants and said that they helped. Maybe talking to an...
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    1,086

    Hi Vicky. I'm sorry about you losing your mum to...

    Hi Vicky. I'm sorry about you losing your mum to cancer and now your dad has MND. Perhaps ring MND Connect for some suggestions about going out. I feel for you both. I'm not at your dad's stage yet...
  22. Replies
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    10,729

    Sorry about that Dis. Hope that medication sorts...

    Sorry about that Dis. Hope that medication sorts it out. Lynne
  23. Thread: Symptoms

    by Lynne K
    Replies
    7
    Views
    965

    Oh dear Sky.' Have you told the consultant about...

    Oh dear Sky.' Have you told the consultant about what happens when you have an emg? I hope that they have a solution. Lynne x
  24. Thread: Hiya

    by Lynne K
    Replies
    11
    Views
    1,060

    That's good about your courage to join Maz. It...

    That's good about your courage to join Maz. It does take a few months after the horrid diagnosis for your head to get around it. If you read other people's replies in the introduce yourself forum and...
  25. Thread: Hiya

    by Lynne K
    Replies
    11
    Views
    1,060

    Hi Maz, welcome to our forums. Whether it's you...

    Hi Maz, welcome to our forums. Whether it's you who have had an MND diagnosis, or a loved one you have come to a smashing place for support. I hope that you will soon feel able to share something...
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