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    I do not want to offend anybody at all and am...

    I do not want to offend anybody at all and am waiting on a referral to a Neurologist in London now -my post today was in relation to if I could walk 6 miles after 2 and a half years of symptoms would...
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    I was a Support worker for men with Autism -loved...

    I was a Support worker for men with Autism -loved my job , lived life to the full that all changed Xmas 2016 -I have never been an anxious person but am now and when I asked Neurologist what Chronic...
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    Ellie -thank you again for your words -I so want...

    Ellie -thank you again for your words -I so want to be convinced but question how can I walk 6 miles two and half years after 1st symptom and still think its MND -my Neurologist said that after this...
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    Thank you Terry -this all started with pain in...

    Thank you Terry -this all started with pain in lower back around Xmas 2016 -the twitching started in April 2017 and my legs feel weaker but as my wife says 2 and half years and still able to walk 6...
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    I have had muscle loss confirmed in left calf by...

    I have had muscle loss confirmed in left calf by 4th Neurologist and like yourself on my 2nd EMG it also showed Chronic neurogenic changes in the area when I have lost muscle but I first noticed was...
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    Ok so I haven't posted in a fair while but...

    Ok so I haven't posted in a fair while but symptoms are continuing namely the all over Fasiculations and I am convinced still losing muscle mass especially on arms and legs as well as hands and feet...
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    Sorry Jon -speak soon

    Sorry Jon -speak soon
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    I am seeing Neurologist two weeks Monday that I...

    I am seeing Neurologist two weeks Monday that I initially saw Privately -got to travel to Shoreham but seeing him under NHS ,got my GP to do a referral to my local hospital and got letter this...
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    Where do you live?

    Where do you live?
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    I was told on timescales by MND association that...

    I was told on timescales by MND association that something should have failed by now based on twitching 22 months , did you have pain as a presenting symptom and what was your first symptom.

    Will...
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    Well I just haven't felt right and into my 3rd...

    Well I just haven't felt right and into my 3rd year of this now , I have got stenosis of Lumbar and also Degenrative disc disease top to bottom and based on my EMG (private) that I had done in August...
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    I am convinced I have it but 4 Neuro's say no...

    I am convinced I have it but 4 Neuro's say no -yes saw Gibb -what a waste of time he told me it was all in my head , I am due to see Neurologist I saw privately last summer at Southlands in Shoreham...
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    Did they diagnose you?

    Did they diagnose you?
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    Really hard not too Ellie with so much going on...

    Really hard not too Ellie with so much going on in my body -thank you again x
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    Yes I can

    Yes I can
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    Hi Ellie, Thank you for your reply ,it is an...

    Hi Ellie,

    Thank you for your reply ,it is an ongoing nightmare and I still do not know what is causing the muscle loss etc.

    On last EMG only finding was 'Chronic neurogenic changes' which is...
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    OK so it is over a year since i initially posted...

    OK so it is over a year since i initially posted on the Forums and i am still none the wiser as to what is going on with me however my symptoms seem to be progressive and picking up speed .

    To...
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    Thank you Ellie , I want to let it go but...

    Thank you Ellie , I want to let it go but symptoms persist like all over Fasiculations,atrophy and i worry that they are missing something ,saying that my last EMG was the most thorough one i have...
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    Thank you Lynne , it has been one long road and...

    Thank you Lynne , it has been one long road and two of the four Neurologists i have seen have said I need to see a Psychiatrist as my main symptom is Anxiety !!! -never knew anxiety made your muscles...
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    I fully understand where you are coming from , I...

    I fully understand where you are coming from , I am 22 months into a similar nightmare with shrinking muscles in legs and hands , breathlessness and muscle twitching all over , had numerous...
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    Richard -can i ask you the relevance of this ,I...

    Richard -can i ask you the relevance of this ,I am 20 months into symptoms and can walk on heels and toes but am still undiagnosed
  22. Thread: Advice please

    by AndyM
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    Thank you for your reply Terry, this all started...

    Thank you for your reply Terry, this all started for me on Xmas day 2016 with lower back pain and pain left side of chest , feel like i have immense pressure in chest area especially when i lay down...
  23. Thread: Advice please

    by AndyM
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    Advice please

    I am sorry to be posting again so soon but i have so many widespread symptoms i cannot get MND out of my head , in past couple of days i have woken up with Chest pain and what feels like palpitations...
  24. Thread: Emg-result

    by AndyM
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    Thank you Ellie , you have been most helpful and...

    Thank you Ellie , you have been most helpful and i wish you well with your battle with this horrid disease -Take Care
  25. Thread: Emg-result

    by AndyM
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    Emg-result

    Sorry to bother you again but just received results of my EMG/NCS which i had done on Monday just gone -The Neurophysiolgist that done the test asked me which was worst area and i told him left calf...
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