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  1. Replies
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    Hi Nigel I am sorry that this is concerning...

    Hi Nigel

    I am sorry that this is concerning you. The symptoms that you describe do not sound typical of motor neurone disease (MND). They could be caused by many other things. I think whenever...
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    Hi Chad5 I am sorry to hear that you have...

    Hi Chad5

    I am sorry to hear that you have symptoms which are concerning you. How did you get on at your neurology appointment?

    The symptoms that you describe are not typical symptoms of motor...
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    635

    Dear Ali, I can understand your concern, some...

    Dear Ali,

    I can understand your concern, some of the symptoms you describe do mimic those of Motor Neurone Disease (MND), however these symptoms are usually accompanied by weakness or atrophy,...
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    Hi Timm, Please see the below response from...

    Hi Timm,

    Please see the below response from our Research team:

    Glutamate is the major excitatory neurotransmitter in humans. There have been studies to suggest that nicotine increases...
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    I am very sorry, unfortunately we haven’t had a...

    I am very sorry, unfortunately we haven’t had a response from our Research team. I am chasing this up with them.

    The Research team is a very small team and due to the high number of enquiries they...
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    Hi Shaun The support available does tend to...

    Hi Shaun

    The support available does tend to differ depending on where someone lives. Not all areas have specialist nurses.

    We have MND Care Centres which are centres of excellence specialising...
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    Hi Nigel I am very sorry to hear that your mum...

    Hi Nigel

    I am very sorry to hear that your mum had ALS. It is very common for someone to worry that they may have symptoms of motor neurone disease (MND) when they have had a loved one with MND....
  8. Replies
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    Dear Aimee, Thank you for the update on your...

    Dear Aimee,

    Thank you for the update on your mum.

    Her symptoms are definitely confusing, after 9 months of slurred speech if her condition was due to MND you would expect significant...
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    Hi Timm, Thank you for your forum post. We...

    Hi Timm,

    Thank you for your forum post. We have passed on your query to our Research team, once we get a response from them we will let you know as soon as possible.

    I do hope this is okay....
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    Hi Timm, Thank you for your forum post. Hair...

    Hi Timm,
    Thank you for your forum post.
    Hair loss is not something that we would normally associate with MND. But it could possibly be as a result of friction from clothing, or even bedding. ...
  11. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
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    10,537

    Hi Hayls I am sorry to hear that you were...

    Hi Hayls

    I am sorry to hear that you were admitted to the Macmillan Unit. It's good to hear that things have improved. Fingers crossed for both you and Terry getting home soon.

    Best Wishes
    ...
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    Hi Juliette Thank you for letting us know. I...

    Hi Juliette

    Thank you for letting us know. I am pleased to hear that the Consultant has decided to prescribe another antibiotic.

    If you have any further concerns then please don't hesitate to...
  13. Replies
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    Hi Juliette Is it possible that you could give...

    Hi Juliette

    Is it possible that you could give us a call to discuss this? Withdrawal of treatment is a complex situation and it would be easier to discuss it over the phone if possible. The...
  14. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
    Views
    10,537

    Hi Hayls I'm sorry for the delay in responding...

    Hi Hayls

    I'm sorry for the delay in responding to your post. It looks as though Ellie covered everything (thanks Ellie ;)).

    There is anecdotal evidence to show that stress might impact on the...
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    Dear Helen82, It is very easy and perfectly...

    Dear Helen82,
    It is very easy and perfectly understandable for you to think any pain or twitching you feel could be related to MND especially when you are with your mum on a regular basis and are...
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    Sorry, I'm bombarding you with questions. I'm...

    Sorry, I'm bombarding you with questions. I'm happy to give you a call to discuss this if you'd like to. Please just private message me your telephone number. Or please feel free to give us a call...
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    Hi Lesley Is the dietary drink shot a...

    Hi Lesley

    Is the dietary drink shot a supplementary drink that she drinks slowly or is it a quick shot of something? It sounds as though this may have been the trigger. Has she had a recent...
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    Hi Lesley This must be very frightening for...

    Hi Lesley

    This must be very frightening for both you and your mam. Does anything in particular seem to trigger the attacks?

    Does she become breathless because of the attacks or is she...
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    Hi TAPG1 EMGs would probably be considered...

    Hi TAPG1

    EMGs would probably be considered more uncomfortable than painful. There are two parts to an EMG. One part uses very fine needles, a bit like acupuncture needles so they may be a little...
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    Dear Tapg1, I was so sorry to hear that you are...

    Dear Tapg1,
    I was so sorry to hear that you are in hospital. I am really hoping you get the care and support you need.
    Best wishes
    Ruth
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    Hi I am really pleased to hear that you are in...

    Hi

    I am really pleased to hear that you are in a much better place. It sounds as though you had a really nasty injury to your shoulder. When we break a bone, it never heals in exactly the way...
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    12,771

    Hi TAPG1 We did discuss weight loss and MND at...

    Hi TAPG1

    We did discuss weight loss and MND at length recently over the phone. Weight loss in MND can be caused by someone not getting enough nutrition due to swallowing problems or through the...
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    Dear TAPG1, Thank you for updating us...

    Dear TAPG1,

    Thank you for updating us regarding your appointment with your psychiatrist.

    Hopefully, once your medication starts to work you will be able to look at your symptoms with more...
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    Dear Mikael, I am sorry to read that you have...

    Dear Mikael,

    I am sorry to read that you have been experiencing symptoms for over two years now with no obvious reason why.

    By posting on this forum I am assuming you are concerned that your...
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    Hello Bretange, I was so sorry to hear of your...

    Hello Bretange,
    I was so sorry to hear of your recent health problems. Many healthy people experience muscle twitching, and these are not usually a cause for concern. Often this symptom can be...
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