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  1. Replies
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    181

    Hi Doug, I have the Salsa Mini 2 powered...

    Hi Doug,

    I have the Salsa Mini 2 powered chair. I find that the tilt function is really useful as I have lost my core strength. When I get tired I find it hard to keep myself upright so I simply...
  2. Replies
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    248

    Hi Rafiksq and welcome to the forum. I'm afraid I...

    Hi Rafiksq and welcome to the forum. I'm afraid I don't know enough about MND to be able to make any useful comment about your wife's condition but I sincerely hope that someone will be able to help....
  3. Replies
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    180

    Hi, Helen and welcome to the forum. Sorry about...

    Hi, Helen and welcome to the forum. Sorry about your Mum's diagnosis - it is obviously very difficult for you all.

    I'm afraid I can't help with your questions about PLS but there are other members...
  4. Thread: Good morning

    by Gillette
    Replies
    21
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    773

    Hi Deb, You're right about the support on...

    Hi Deb,

    You're right about the support on here, it's amazing.

    I'm looking forward to seeing what 'one' you come up with 'for the ladies'! :rolleyes:
  5. Hi K. Welcome to the forum but sorry that your...

    Hi K.

    Welcome to the forum but sorry that your husband has been diagnosed with MND. It's a warm and friendly community on here where you will find help and support freely available.

    I'm afraid...
  6. Thread: Carol

    by Gillette
    Replies
    7
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    263

    Hi Carol and welcome to the forum. You've had a...

    Hi Carol and welcome to the forum. You've had a basinful over the couple years or so and certainly didn't need an MND diagnosis on top of that. Although, actually I don't think there's anyone who...
  7. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Thank you for those inspiring quotes, CC. I am...

    Thank you for those inspiring quotes, CC.

    I am so pleased that I screwed up my courage to visit this forum for the first time just three months ago. The support, encouragement and understanding...
  8. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Thanks, Pal! :D

    Thanks, Pal! :D
  9. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Thanks, Doug, you're a sweetie.

    Thanks, Doug, you're a sweetie.
  10. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Thanks, Ellie, Yes, it's definitely something...

    Thanks, Ellie,

    Yes, it's definitely something to do with the sling. I have lost much of my core strength so can't hold myself up in the belt-type sling and end up getting very sore in my armpits....
  11. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Sorry, Doug and respectful apologies to Eleanor,...

    Sorry, Doug and respectful apologies to Eleanor,

    I am trying to be positive but all I have been able to come up with is that I'm positive I look like a beached whale in this armchair.
  12. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Hi Doug, Lynne, Deb and Sheila, I'm glad my...

    Hi Doug, Lynne, Deb and Sheila,

    I'm glad my post brightened your days a bit. It makes such a difference, knowing that people on here understand how MND affects us, both emotionally and physically....
  13. Thread: Good morning

    by Gillette
    Replies
    21
    Views
    773

    Good morning

    Good morning, everyone.

    It's a beautifully bright and sunny morning, here in north Manchester.

    During the past couple of weeks I have been very shaky, emotionally, and have been in tears,...
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    477

    Thank you for the link, Boiler.

    Thank you for the link, Boiler.
  15. Replies
    10
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    477

    Thanks, Kayleigh. Another great link!

    Thanks, Kayleigh. Another great link!
  16. Replies
    10
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    477

    Hi Kayleigh, Thanks for the Premier Inn link....

    Hi Kayleigh,

    Thanks for the Premier Inn link. I had looked at their website but wondered if there was anywhere else around. I also looked on the Travelodge website but it was a waste of time.
  17. Replies
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    477

    Thank you, Miranda.

    Thank you, Miranda.
  18. Replies
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    477

    Hi Kayleigh, Thanks for the pointers. I had...

    Hi Kayleigh,

    Thanks for the pointers. I had already looked on the Tourist Board site and was distinctly underwhelmed with the information on there. I shall look on the Disabled Holidays site.
  19. Replies
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    My son looked on Ebay. In fact, the one we bought...

    My son looked on Ebay. In fact, the one we bought was advertised on there.
  20. Replies
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    475

    Hi Annb, My son recently found a wheelchair...

    Hi Annb,

    My son recently found a wheelchair accessible vehicle (WAV) for me. Like you, I wanted to be able to travel in it whilst using my powered chair. I would suggest that you ask someone to...
  21. Replies
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    477

    Accessible hotel rooms

    Hi everyone,

    I shall be travelling to Southend-on-Sea some time in the next few weeks, staying for 2 or 3 nights in hotel accommodation. I need a wheelchair accessible room, plus a hoist and other...
  22. Thread: tandem jump

    by Gillette
    Replies
    23
    Views
    1,174

    Well done, Maz. Your interview was great. You...

    Well done, Maz. Your interview was great. You certainly are helping to raise the profile of the MND Association and putting the "fun" into fundraising.
  23. Replies
    13
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    1,089

    Hi Diamond and welcome to the forum. I can't...

    Hi Diamond and welcome to the forum.

    I can't really make any useful comments about your symptoms but I sincerely hope that you don't have MND. I also hope that the doctors soon manage to...
  24. Thread: hi

    by Gillette
    Replies
    19
    Views
    1,062

    Hi Maz, It's so hard when your body keeps...

    Hi Maz,
    It's so hard when your body keeps changing, but not for the better. I wish there was something amazing that I could say or do to help you cope with what's happening.
    MND stinks, doesn't it?
  25. Thread: hi

    by Gillette
    Replies
    19
    Views
    1,062

    Ha ha ha. Oh, what a disappointment! Just when I...

    Ha ha ha. Oh, what a disappointment! Just when I thought my luck was in!
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