Search:

Type: Posts; User: Twinkle

Search: Search took 0.12 seconds.

  1. Replies
    21
    Views
    13,791

    This post seems like ages ago, I never did get...

    This post seems like ages ago, I never did get time to sort out a life insurance or an over 50's plan for Pete.
  2. Thread: Happy new year

    by Twinkle
    Replies
    25
    Views
    6,951

    Lovely poem Kayleigh xx Happy New Year To You...

    Lovely poem Kayleigh xx

    Happy New Year To You All
    X X X X X X X X X X X X X X X X
  3. Thread: Sad news

    by Twinkle
    Replies
    19
    Views
    4,450

    Hi, So sorry for you loss of your husband. I...

    Hi,

    So sorry for you loss of your husband. I only know too well what you're going through.
    If you want a chat you can pm me anytime.
    Sending hugs to you.
    XxxxxxxxxxX
  4. Replies
    18
    Views
    6,489

    My husband's hands had lost the muscle between...

    My husband's hands had lost the muscle between the thumb and 1st finger on both hands, also on the side of both hands. This happened a couple of months before diagnosis and I knew he'd be diagnosed...
  5. Thread: cancelled apt

    by Twinkle
    Replies
    2
    Views
    1,841

    This is most frustrating for you both....

    This is most frustrating for you both.
    Cancellations can't be helped but it does feel like a gut wrench when important appointments are cancelled.
  6. Thread: Coughing fit

    by Twinkle
    Replies
    5
    Views
    2,118

    Hi MeJ, I also didn't now what to do when hubby...

    Hi MeJ, I also didn't now what to do when hubby was choking at teatime. We was at the table and I sat next to him when he started gasping for breath, I patted him hard on the back but to no avail. He...
  7. Replies
    214
    Views
    32,770

    Hi Douglas. My husband is 58 like yourself, we're...

    Hi Douglas. My husband is 58 like yourself, we're also at Salford.
    Your story is very similar to my husband's, he was also an engineer.
    Sorry to hear about your diagnosis.
  8. Thread: PEG and RIG

    by Twinkle
    Replies
    152
    Views
    30,589

    Sorry to hear about your bad time in hospital...

    Sorry to hear about your bad time in hospital Pink. Some nurses are aloof in their role, some are kind and really caring. When hubby has to have this op I won't be leaving him especially seeing as he...
  9. Replies
    21
    Views
    13,791

    Thank you for all your replies X

    Thank you for all your replies X
  10. Thread: How long

    by Twinkle
    Replies
    26
    Views
    7,868

    We had to buy items like Zimmer frames, a stool,...

    We had to buy items like Zimmer frames, a stool, and perching stool as hubby had symptoms from January but really started to need mobility aids June/July and he was only referred to Neurology in July...
  11. Replies
    9
    Views
    4,567

    Thanks James, I'll take a look at the website...

    Thanks James, I'll take a look at the website everyone has been very helpful X.
  12. Replies
    9
    Views
    4,567

    Hi Boiler, We also go to Salford Royal. It'll be...

    Hi Boiler, We also go to Salford Royal. It'll be hubby's 1st proper clinic appointment next week so I'll mention what you've said.
    Thank you x
  13. Replies
    9
    Views
    4,567

    Thanks Terry, the app looks good but not on...

    Thanks Terry, the app looks good but not on Playstore, but it doesn't matter as we'll be buying a iPad soon.

    Thanks for posting the link X
  14. Replies
    9
    Views
    4,567

    I know Lynne, my hubby has a few problems beside...

    I know Lynne, my hubby has a few problems beside MND. I've seen some apps that have symbols, but I assume they're time consuming finding symbols to make a sentence.

    What's worked best is myself...
  15. Replies
    9
    Views
    4,567

    Gadgets or Apps for Dyslexic People

    My husband is dyslexic, has been for years.
    I'm the one who's wrote all the cheques, birthday cards, filling in forms etc etc.
    He's finding it really difficult in trying to spell words on his white...
  16. Thread: PEG and RIG

    by Twinkle
    Replies
    152
    Views
    30,589

    Good luck Pink, we'll be thinking of you. XX

    Good luck Pink, we'll be thinking of you. XX
  17. Replies
    21
    Views
    13,791

    That's a good affordable amount Barry, thanks for...

    That's a good affordable amount Barry, thanks for leaving a post, I was thinking of have to pay £100 + monthly. I'll look into it tomorrow.
    Thanks all for your replies. X
  18. Replies
    21
    Views
    13,791

    Life Insurance With MND

    Is it possible to buy life insurance straight after a diagnosis?
    Does anyone know any good companies?
  19. Replies
    50
    Views
    15,259

    Hi Tecwyn, No, I wouldn't worry, I'd be concerned...

    Hi Tecwyn, No, I wouldn't worry, I'd be concerned and tell them to book a Dr's appointment. I'm not a big worrier. I don't dwell on problems either. What is the point in that? It's wasted time and...
  20. Replies
    50
    Views
    15,259

    How old are you Tecwyn? Yes, be strong as...

    How old are you Tecwyn?

    Yes, be strong as your parents will need you to be. My youngest daughter who lives at home is a massive help for me physically and emotionally
    Her dad loves seeing her so...
  21. Replies
    50
    Views
    15,259

    Our kids are aged 28, 27, and 22. They have all...

    Our kids are aged 28, 27, and 22. They have all thought the same as you since their dad's diagnosis and looked up some information online and asked me some questions and that's where it ended.
    ...
  22. Thread: PEG and RIG

    by Twinkle
    Replies
    152
    Views
    30,589

    My husband will be asked if he wants the PEG at...

    My husband will be asked if he wants the PEG at his 1st clinic appointment. He is coming round to the idea of having it done which is brill.
  23. Replies
    19
    Views
    9,134

    That's sweet of your offer Chris. I wish my...

    That's sweet of your offer Chris.
    I wish my hubby wanted to venture outside, I really miss going out with him.

    We've not been offered a electric wheelchair, we've got a manual one. It still...
  24. Replies
    21
    Views
    20,169

    9/11 was such a shocking almost unbelievable day....

    9/11 was such a shocking almost unbelievable day. I remember people in our avenue shouting at us to turn on the tv which we did and we was just so upset at what we was witnessing. I often watch the...
Results 1 to 24 of 25