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  1. Thread: Settings?

    by Admin_MND
    Replies
    5
    Views
    504

    Hi Matthew, When your logged in, at the top of...

    Hi Matthew,

    When your logged in, at the top of the screen you will see a button that says 'Setting'

    1142

    If you press this you will then be given a number of options which allow you to edit...
  2. Support MND carers by signing our open letter

    This morning, we have launched our new campaign #supportMNDcarers and we would really appreciate your support in signing our open letter.

    We are extremely concerned that unpaid MND carers are...
  3. Replies
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    18,069

    Hi all, We have a new update on our...

    Hi all,

    We have a new update on our #GetMNDonTheList campaign. Sadly it's not exactly the answer we wanted, but we want to thank everyone who took part in the selfie action and supported the...
  4. Thread: Covid Sticky

    by Admin_MND
    Replies
    1
    Views
    498

    Hi jaffabeach, We have been considering this...

    Hi jaffabeach,

    We have been considering this as part of the recent changes/housekeeping we've been doing on the forum, however we felt that there hasn't been enough threads or discussion to...
  5. Do you have a coronavirus experience to tell?

    We are keen to gather coronavirus related stories from people affected by MND to be used across our work streams to raise awareness, highlight issues and identify service gaps.

    Do you have a...
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    5,222

    Closed: We provide the forum to encourage supportive,...

    We provide the forum to encourage supportive, informative and useful conversations for people living with and affected by MND. Occasionally subjects may lead to robust debate and opposing opinions....
  7. Replies
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    18,069

    Hi all, We have this afternoon launched the...

    Hi all,

    We have this afternoon launched the next part of our campaign to #GetMNDonTheList with our selfie campaign.

    Find out more and get involved here ...
  8. Thread: Housekeeping

    by Admin_MND
    Replies
    1
    Views
    867

    Housekeeping

    We just wanted to let you know we will be carrying out some minor housekeeping and maintenance on the forum during April 2020.

    Primarily this will involve deleting any information that is several...
  9. Replies
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    18,069

    Hi all, We just wanted to let you know that we...

    Hi all,

    We just wanted to let you know that we have updated our MND and coronavirus webpage https://www.mndassociation.org/mnd-and-coronavirus/

    We have added a video from our expert panel who...
  10. Replies
    7
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    1,543

    Hi Beemer and everyone else, Sorry to hear you...

    Hi Beemer and everyone else,

    Sorry to hear you were having difficulty viewing your profile, but yes there is a limit of 5 posts before you can view profiles and send PMs etc, this is to try and...
  11. Replies
    1
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    1,308

    Hello, Unfortunately our forum is often the...

    Hello,

    Unfortunately our forum is often the target for various spam accounts. We have a manual spam filter and occasionally one slips through.

    If you ever do spot spam on the forum, please...
  12. Replies
    99
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    18,069

    Hi all, Just to update on the below, we wanted...

    Hi all,

    Just to update on the below, we wanted to make you aware that you can also register by calling 0800 028 8327.

    We will continue to share any updates as we receive them.
  13. Replies
    99
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    18,069

    As a follow up to our post above, we have further...

    As a follow up to our post above, we have further information to share.

    People with MND are yet to be included on the Department of Health and Social Care list of those who are extremely...
  14. Replies
    99
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    18,069

    We're concerned to see that people with MND have...

    We're concerned to see that people with MND have not been included in the Government’s list of extremely vulnerable persons in their guidance on shielding and protecting vulnerable persons from...
  15. Replies
    99
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    18,069

    Coronavirus Information

    We are aware that the situation surrounding the spread of coronavirus may be causing people affected by motor neurone disease (MND) concern.

    Please take some time to review our webpage which...
  16. Replies
    2
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    1,517

    Sticky: Hi Terry, Nothing has provoked this - we have...

    Hi Terry,

    Nothing has provoked this - we have just been reviewing our Terms and Conditions and looking at how other similar forums are set up.

    We are constantly looking at ways to improve the...
  17. Replies
    2
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    1,517

    Sticky: Forum Guidelines

    This forum is an online community for people living with or affected by MND to share experiences and support one another. It is also a safe place where people who are experiencing symptoms or...
  18. Replies
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    1,607

    Hi Ellie, Sorry to hear you were having...

    Hi Ellie,

    Sorry to hear you were having difficulties filling out the survey. We've been told by BAPEN that the error on that question has now been fixed, so please do give it another go.
    ...
  19. Replies
    3
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    1,607

    Experiences of tube feeding survey

    The British Association for Parenteral and Enteral Nutrition (BAPEN) is committed to improving care for people receiving artificial nutrition support, which of course includes people living with MND....
  20. Awareness raising on BBC Breakfast this week

    Hi all,

    I'm sure some of you probably saw the piece on BBC Breakfast earlier this week featuring sporting legends Doddie Weir, Rob Burrow and Stephen Darby sharing their experiences of living with...
  21. Experiences with inherited MND - Healthtalk

    Researchers at the University of Aberdeen are conducting an interview study about the experiences of families who have been affected by inherited forms of MND, to develop a new web resource on the...
  22. Experiences of applying for Universal Credit

    You may have recently seen a lot of activity from the Campaigns team who are trying to change the way people with terminal illnesses access benefits. There is a Special Rules fast-track in the...
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    Dental services survey

    Deborah Manger is Deputy Medical Director (DMD) and Specialist in Special Care Dentistry at Northamptonshire Healthcare NHS Foundation Trust. To help improve dental services for people with Motor...
  24. Thread: Rch4

    by Admin_MND
    Replies
    400
    Views
    122,717

    Closed: We provide the forum to encourage supportive,...

    We provide the forum to encourage supportive, informative and useful conversations for people living with and affected by MND. Occasionally subjects may lead to robust debate and opposing opinions....
  25. New study - Acceptance and Commitment Therapy

    The study
    The purpose of this study is to develop a new form of psychological therapy called Acceptance and Commitment Therapy for improving quality of life in people with MND. We would like to see...
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