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  1. Thread: Baclofen

    by TIANDB
    Replies
    24
    Views
    11,967

    Hi Boiler68. Baclofen is used for muscle...

    Hi Boiler68.
    Baclofen is used for muscle troubles with ALS, more in the USA than Europe it seems from looking at evaluations on PLM.
    I have got my Doctor to prescribe here in the UK. I take 10mg...
  2. Replies
    363
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    138,162

    Hi cc. I was interested in US politics after Mr T...

    Hi cc. I was interested in US politics after Mr T was elected against all odds. Due to my ALS I have had time to analyze well and the negativity and bitterness expressed by Democrats with loosing...
  3. Replies
    72
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    14,301

    K and CC I do hope you realise that Obammacare...

    K and CC I do hope you realise that Obammacare tripled or even quad-rippled costs for American healthcare. Mr T is trying to reduce those costs not stop peoples getting medical treatment. CC you...
  4. Thread: Drugs etc

    by TIANDB
    Replies
    24
    Views
    4,697

    Hope you are not trying to say Riluzole is some...

    Hope you are not trying to say Riluzole is some kind of miracle drug. It is not and benefits are slight it is known and stated to possibly extend time to tracheostomy by 90 days maybe it seems to...
  5. Thread: Rch4

    by TIANDB
    Replies
    266
    Views
    72,441

    I will post here my latest evaluation on PLM, I...

    I will post here my latest evaluation on PLM, I post not to boast or to crow. I wish everyone could get a chance to try this helping hand.

    Hi All. Still feeling positive. Now today 44 +100. My...
  6. Replies
    16
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    3,420

    Hi Hilary and thank you for reporting so well. 5...

    Hi Hilary and thank you for reporting so well. 5 1/2 M is indeed super rapid progression and at least Chris went peacefully.
    What a trauma this disease is and you highlight a fact with your...
  7. Replies
    9
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    6,592

    Hi martin. I will point you to a cheap and...

    Hi martin.
    I will point you to a cheap and effective possible remedy ? GALPHARM BLOCKED NOSE RELIEF 12.2mg CAPSULES COLDS FLU HAYFEVER PHENYLEPHRINE . You can get them on ebay. Maybe take one...
  8. Replies
    35
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    9,564

    Most welcome. I have an e-mail contact with my...

    Most welcome. I have an e-mail contact with my Doctors due to my voice issues and confined in my first floor apartment. I seem to get quicker service that way although the only medication I am on...
  9. Replies
    35
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    9,564

    Hi Fru. If it was your MND consultant that...

    Hi Fru.
    If it was your MND consultant that refused try your Doctor or vice versa. I had to talk my Doctor into it well slurr him into it ha.
    It is not an expensive drug and you start on a really...
  10. Thread: How long

    by TIANDB
    Replies
    26
    Views
    5,437

    Hi David so sorry about your poor wife and her...

    Hi David so sorry about your poor wife and her fast progression. I had symptoms from November 2017 and knew by January in my mind what it was as my father had passed at a similar age from MND 26...
  11. Replies
    4
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    1,493

    Hi juliette. I find Coke the full sugar version...

    Hi juliette.
    I find Coke the full sugar version helps also green tea I add honey. Maybe ?
  12. Replies
    35
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    9,564

    Hi DS. My Doctor looked the drug up when I...

    Hi DS.
    My Doctor looked the drug up when I suggested a trial. I have fast onset legs, arms and bulbar. After seeing it on this and other forums and after some research I thought it might help and as...
  13. Replies
    35
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    9,564

    I have had Ropinirole recently prescribed by my...

    I have had Ropinirole recently prescribed by my Doctor. Small 0.25mg to start, I intend to maybe go up to 2mg in a few weeks if well tolerated ? My legs are very weak and interfere with my beauty...
  14. Replies
    15
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    3,425

    Hi N F. I think it may be Magnesium Chloride is...

    Hi N F.
    I think it may be Magnesium Chloride is good for muscle cramps ? Something similar to this link is allegedly good....
  15. Replies
    30
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    5,672

    Hi lv73 when I dream sometimes I try to do magic...

    Hi lv73 when I dream sometimes I try to do magic or to make miracles I will try my damnedest for you tonight. I am watching the box set series of stargate 1 and O I so wish I could find a magical...
  16. Replies
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    5,672

    Hi lv73 I hear you loud and clear. I wish you...

    Hi lv73 I hear you loud and clear. I wish you peace like I wish myself that peace when the time comes. We who are fast progressives, I presume you are to ? looking at your join date are hard to...
  17. Replies
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    975

    Hi Namay. I only wear comfy shorts and trunk type...

    Hi Namay. I only wear comfy shorts and trunk type pants is easier to get on and no Zips or buttons . We are all different.
  18. Thread: Flu Jab 2016

    by TIANDB
    Replies
    43
    Views
    25,987

    I have a nurse coming to do mine today I will...

    I have a nurse coming to do mine today I will report if any adverse reactions, Flu and Pneumonia I hope, A 9 -5 Window which could have been smaller although I haven't any plans for outings Ha ....
  19. Replies
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    1,517

    Hi LauraS. I think it is roughly 50/50 whether...

    Hi LauraS. I think it is roughly 50/50 whether you will have the gene Defect if your father was Familial ? Was he gene tested ?
    If he did not have a Familial gene defect and so sporadic MND you...
  20. Thread: Edaravone

    by TIANDB
    Replies
    13
    Views
    2,360

    It is a shame it it so expensive. The data for...

    It is a shame it it so expensive. The data for use with all ALS patients is still in question as the trials were very selective and it has been shown that only 7% of PALS may have some benefit ? ...
  21. Replies
    18
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    2,673

    Hi Martin . Some final tests are for rare ALS...

    Hi Martin . Some final tests are for rare ALS mimicking diseases also blood for gene testing. Lots of good information on the past and current threads on here to look through. Take care friend try...
  22. Thread: Hello

    by TIANDB
    Replies
    23
    Views
    6,780

    Hi again B_N Get yourself examined and if...

    Hi again B_N
    Get yourself examined and if possible for a Neurologist input. While you are active still after five years of symptoms it may not even be MND ?
    Your gran sounds as Terry said very...
  23. Thread: Hello all.

    by TIANDB
    Replies
    22
    Views
    2,872

    Hi Jim so sorry you have to join our sad club....

    Hi Jim so sorry you have to join our sad club. Lots of information in threads on here for instance you can look back on introduction threads and see you are not alone . Also if not in work you must...
  24. Thread: Hello

    by TIANDB
    Replies
    23
    Views
    6,780

    Hi b_n. 4 Years is a long time with no diagnosis...

    Hi b_n.
    4 Years is a long time with no diagnosis and now general twitchings. Are you in the system with hospital checks and such. Be sure to highlight your grandmothers case and maybe your Mothers...
  25. Replies
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    2,008

    Playing with figures. 2 per 100,000 a year =...

    Playing with figures. 2 per 100,000 a year = 1/50,000 risk a year . Ages 25 - 85 as an example = 60 risk years = 1/833 lifetime risk .
    I do not believe everything I read . I am FALS so had a 1/2...
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