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Type: Posts; User: Lynne K

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  1. Thread: Struggling

    by Lynne K
    Replies
    8
    Views
    190

    Hi MamaRics, what Kayleigh, Debbie and Terry have...

    Hi MamaRics, what Kayleigh, Debbie and Terry have posted are well worth considering. I'm sorry that you are not getting much or any 'me time' time for a peaceful cupa, or relaxation. Something has to...
  2. Thread: Silverstone

    by Lynne K
    Replies
    34
    Views
    1,188

    Hi Barry. I only just saw your message about your...

    Hi Barry. I only just saw your message about your fall. Breaking 2 vertebrae must be extremely painful. I hope that you heal quickly. Lynne
  3. Replies
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    1,694

    Thanks Anne. I hope that you have a great time at...

    Thanks Anne. I hope that you have a great time at the weekend looking around the shops in Kingston. Please let us know how it goes with your first independent driving your wheelchair around shops....
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    Thanks MMs Wife. I'm not getting the Peugeot...

    Thanks MMs Wife. I'm not getting the Peugeot after all, as I said in a post a few minutes ago. I'm still looking. Lynne
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    1,694

    Hi Anne. I'm glad that you've found a WAV. Where...

    Hi Anne. I'm glad that you've found a WAV. Where do you site the wheelchair in a Berlingo and is the regular front passenger seat comfy. Also what's the step into the front like, high like Peugeot or...
  6. Great to hear of your 5 year all clear news Doug....

    Great to hear of your 5 year all clear news Doug.

    I think that dreaming is somewhere we can be who we really are without this horrid limiting disease, and/or be who we want to be.

    I've...
  7. Hi Wallywoo. I'm sorry about the relentless...

    Hi Wallywoo. I'm sorry about the relentless strain that your husbands denial is having on you. I think that you've already had great advice which I cannot add anything to. But I want to second those...
  8. Thread: Sandpiper

    by Lynne K
    Replies
    11
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    905

    Hi Sandpiper, welcomme to our forums. I'm sorry...

    Hi Sandpiper, welcomme to our forums. I'm sorry that you find yourself with us on our horrid journey. But we all try to stay positive and not dwell on what we can no longer do. It sounds like you...
  9. Hi Michael. You have had a horrid few months....

    Hi Michael. You have had a horrid few months. What you've described doesn't match with anything that I've experienced or read about MND, but it's a complicated disease so I, not a specialist couldn't...
  10. Replies
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    865

    Hi Ben. You wrote a smashing first post. I had...

    Hi Ben. You wrote a smashing first post. I had about 4 years before diagnosis also, the first 3 like you brushed off my symptoms as being caused by something else. I like your sense of humour. As...
  11. Thread: Heartbroken

    by Lynne K
    Replies
    22
    Views
    1,801

    Hi Shrew. I'm so sorry about you finding Mick the...

    Hi Shrew. I'm so sorry about you finding Mick the way that you explained and that he had passed. What a shock indeed. But at least he won't have to face being 'locked in,' something that we all...
  12. Thread: Why Me

    by Lynne K
    Replies
    6
    Views
    686

    Hi Why me. I, like you read everything that I can...

    Hi Why me. I, like you read everything that I can get my hands on. I have the C9ORF72 gene fault. Lynne
  13. Thread: update...

    by Lynne K
    Replies
    20
    Views
    1,839

    Good luck with your house hunting Andy. Very good...

    Good luck with your house hunting Andy. Very good planning strategy. Lynne
  14. Thread: New member

    by Lynne K
    Replies
    16
    Views
    1,419

    Hi Madhur, Lynne

    Hi Madhur, Lynne
  15. Replies
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    5,879

    Sorry about your fall Panniertank. I know the...

    Sorry about your fall Panniertank. I know the feeling. It does effect confidence but I fought it for a few years. My right leg used to do that on my hillwalks. Have you got any walking aids yet, such...
  16. Replies
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    1,694

    Hi Ann, where can you put your wheelchair in the...

    Hi Ann, where can you put your wheelchair in the Berlingo? Lynne
  17. Replies
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    2,134

    Yea, true Dina xx

    Yea, true Dina xx
  18. Replies
    20
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    1,694

    Hi all. We went to the Motability Show at the...

    Hi all. We went to the Motability Show at the NEC, Birmingham today to look at WAVs. We cannot afford a 'Sit Up Front WAV.' They have a ridiculous up-front price. But we found a lovely new Peugeot...
  19. Replies
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    5,879

    Hi Panniertank, you sound similar to how I...

    Hi Panniertank, you sound similar to how I started off but got discharged by first neurologist and apparently 10 months later another neurologist diagnosed me. I'm still walking indoors with a...
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    2,134

    I don't know why. I didn't know that it was a...

    I don't know why. I didn't know that it was a test indoors. He just asked me to drive from our front room to our kitchen. That was in our other house that wasn't adapted. It was really hard to get...
  21. Thread: Taste

    by Lynne K
    Replies
    7
    Views
    520

    Hi Christoff and all other contributors. I went...

    Hi Christoff and all other contributors. I went off sweet things including chocolate shortly after starting Riluzone. Like Dina I prefer savoury things. I get the occasional desire for a bit of cake...
  22. Replies
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    2,134

    Hi Kayleigh. You might be right about different...

    Hi Kayleigh. You might be right about different rules in different areas. Our wheelchair service is more particular about vision than when people go for a driving test. They only have to read a...
  23. Replies
    38
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    2,134

    The Salsa Mini looks fab in it's turning circle....

    The Salsa Mini looks fab in it's turning circle. I have got a Spectra XTR2. It's not easy manoeuvring indoors. I've scraped several things and took a little piece out of the bottom drawer of my chest...
  24. Replies
    6
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    826

    Hi Rafiksq, I'm sorry about your wifes difficult...

    Hi Rafiksq, I'm sorry about your wifes difficult years and that ALS has been hanging over her head since her mum passed with it. She could have asked for genetic testing to at least rule out or...
  25. Replies
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    717

    Hi Helen, welcome to our forums. You have...

    Hi Helen, welcome to our forums. You have certainly come to the right place for help, advice and support. I'm sorry about your mums more rapid decline than expected since last March. I've read about...
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