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  1. Replies
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    Thanks dude. Hope you're keeping well? Been a...

    Thanks dude. Hope you're keeping well? Been a while since I was last on here x
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    I'm the same hun. Except we can't take my dad...

    I'm the same hun. Except we can't take my dad anywhere. Tried to get him out on his wheelchair over the weekend but it's too uncomfortable for him. The only place he's really comfortable now is in...
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    Help getting equipment

    Hi all,

    Haven't posted for a while but need some help.

    Dads breathing is getting quite bad and he is in desperate need of one of those suction machines to help him clear his throat. He's been...
  4. Thread: Equipment

    by Jade
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    3,863

    Equipment

    Hi,

    My Dad has bulbar palsy mnd and is struggling at the moment to cough and clear his throat. He's been to a lung/breathing clinic who have said they will try and get him a machine to help remove...
  5. Thread: Endotherapia

    by Jade
    Replies
    22
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    13,027

    Did anyone get anymore info back about this drug?...

    Did anyone get anymore info back about this drug? My dads thinking about giving it a shot so just wondering if there's any info worth passing on? x
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    So sorry Pam. My thoughts are with you. RIP...

    So sorry Pam. My thoughts are with you. RIP Charles x
  7. Katrina, sorry I didn't reply sooner. My dad...

    Katrina, sorry I didn't reply sooner. My dad won't join the forum. He doesn't think he needs it although I think he's get so much out of it.
    To be honest he probably wouldn't be up for meeting but...
  8. Thread: My lovely dad

    by Jade
    Replies
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    34,826

    I am. 12:30am and I'm wide awake... Thinking...

    I am. 12:30am and I'm wide awake... Thinking about my dad and finding myself here. Reading posts. Trying to make sense of it all. Looking for new research... Had a little cry and have climbed into...
  9. Hey Kartina, didn't want to read and run... By...

    Hey Kartina, didn't want to read and run... By the sounds of it our dads conditions are pretty similar. He lives in England though so quite far!
    Hope you find someone for him to have a chat to - in...
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    I could have written this Janel... It doesn't...

    I could have written this Janel... It doesn't feel real at all x
  11. Thread: My Dad....

    by Jade
    Replies
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    23,690

    Sorry all! Only just seen all of this. Katrina...

    Sorry all! Only just seen all of this.

    Katrina sounds like our dads are going trough the same. When dad was diagnosed I never thought things would get back to normal... However they have. A...
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    http://www.edp24.co.uk/news/health/chinese_treatme...

    http://www.edp24.co.uk/news/health/chinese_treatment_worth_risking_life_for_says_hellesdon_pensioner_with_motor_neurone_disease_1_4122544
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    I've spoken to him and after reading the recent...

    I've spoken to him and after reading the recent links he's also doubtful it'll work... Such a shame.

    Back to waiting for a cure x
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    I guess it's just the "what ifs" ...what if he...

    I guess it's just the "what ifs" ...what if he doesn't go for it and I could make a difference... What if it doesn't work and it's a huge waste of money... I guess at the end of the day it's down to...
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    Thanks Steve, an interesting read, I'll pass it...

    Thanks Steve, an interesting read, I'll pass it onto my dad x
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    He won't wait Dude. I guess he knows he's...

    He won't wait Dude. I guess he knows he's deteriorating so he wants to go now. I think I would if I was in the same boat. He'll try anything, at any cost.
    I'm pretty sure he probably thinks he...
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    Thanks guys. I don't know too much about it...

    Thanks guys.

    I don't know too much about it myself. Does anyone have any good links I could show my dad? x
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    Stem cell treatment

    Hey everyone,

    Just after a bit of advice. My dad has MND and has been reading about stem cell treatment and is hoping to go to China for treatment...

    Anyone tried it or know of any pros/cons? ...
  19. Thread: My Dad....

    by Jade
    Replies
    58
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    23,690

    Thank you Barry :)

    Thank you Barry :)
  20. Thread: Finding positives

    by Jade
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    2,718

    This is amazing. You're mum is so lucky to have...

    This is amazing. You're mum is so lucky to have you xx
  21. Thread: My Dad....

    by Jade
    Replies
    58
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    23,690

    Just tried to PM you Jennie but your inbox is...

    Just tried to PM you Jennie but your inbox is full! xx
  22. Thread: My Dad....

    by Jade
    Replies
    58
    Views
    23,690

    Haven't been on here for a while... Took your...

    Haven't been on here for a while... Took your advise Dude and me and my partner are getting married! My dad is over the moon and has been getting really involved helping to organise things :) 5th...
  23. Thread: My Dad....

    by Jade
    Replies
    58
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    23,690

    Thank you all for your replies. I've been itching...

    Thank you all for your replies. I've been itching to get back to you all but my account wouldn't allow me. Instead I've been reading posts, smiling, crying and taking in a lot of new information.
    ...
  24. Thread: My Dad....

    by Jade
    Replies
    58
    Views
    23,690

    My Dad....

    Hey everyone,

    Not really sure what I'm doing here... My dad was diagnosed with MND over Easter. He stopped berating at home and almost died. We were told by the doctors he probably wasn't going to...
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