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  1. Thread: Genervon

    by Pea
    Replies
    264
    Views
    117,091

    Thank-you for the update on GM6! xx

    Thank-you for the update on GM6! xx
  2. Thread: ALS. Brainstorm

    by Pea
    Replies
    9
    Views
    3,997

    Hi Charles, Brainstorm have developed nurown...

    Hi Charles,
    Brainstorm have developed nurown which is a stem cell treatment using stem cells taken from the bone marrow. They seem to be offering an early access programme. If you are interested...
  3. Thread: Hospice care

    by Pea
    Replies
    28
    Views
    9,901

    I am so sorry for your loss Reta. I lost my...

    I am so sorry for your loss Reta. I lost my husband to MND 4 months ago and am thinking of you. Paula x
  4. Replies
    9
    Views
    4,040

    So sorry to hear about your loss Sunderland. I...

    So sorry to hear about your loss Sunderland. I lost my husband to MND 4 months ago and life will never be the same again but our loved ones live on in our hearts forever🙂 Take lots of care xx
  5. Thread: Papworth?

    by Pea
    Replies
    19
    Views
    4,629

    Hi again Wendy, When Laurence (hubby) lost the...

    Hi again Wendy,
    When Laurence (hubby) lost the use of his legs he used a transfer board to move from the wheelchair to the stairlift. We also had a handling belt which went round his waist and had...
  6. Thread: Papworth?

    by Pea
    Replies
    19
    Views
    4,629

    Hi Wendy, Went there every 3 months with...

    Hi Wendy,
    Went there every 3 months with Hubby. The staff are all lovely and very attentive and it was always a very calm unrushed atmosphere. As Terry says Monday seems to be MND day. The...
  7. Thread: New to MND

    by Pea
    Replies
    10
    Views
    7,115

    Your wolf man would give those killer clowns a...

    Your wolf man would give those killer clowns a run for their money Terry!👺
  8. Thread: HilaryBernieTrump

    by Pea
    Replies
    357
    Views
    133,959

    Donald Trump reminded all his supporters at a...

    Donald Trump reminded all his supporters at a rally today to register so they can vote for him on 28th November - the election is actually on 8th November………… who's going to tell him?????😜
  9. Thread: Bad fall

    by Pea
    Replies
    101
    Views
    24,602

    Hi Mags, We used a company called AST Services...

    Hi Mags,
    We used a company called AST Services Ltd tel: 01753 654879 or 07973 669115 They are a small company and very friendly but the stairlift did break down a couple of times which was...
  10. Replies
    56
    Views
    20,382

    That's great news.......really pleased for you!😀 ...

    That's great news.......really pleased for you!😀 Wishing you good luck and happiness as you start your new journey xx
  11. Thread: Bad fall

    by Pea
    Replies
    101
    Views
    24,602

    Hello Mags So sorry to hear about your nasty...

    Hello Mags
    So sorry to hear about your nasty fall, hope you recover from all your injuries really soon. We had a stairlift fitted for my hubby after he had a couple of bad falls and my stairs bend...
  12. Replies
    56
    Views
    20,382

    When you feel ready you could also speak to an...

    When you feel ready you could also speak to an adviser from the National Careers Service, they will be able to help you and give you some independent advice on how to get started in care work....
  13. Replies
    56
    Views
    20,382

    Hi Dave, When you feel ready, and that may take...

    Hi Dave,
    When you feel ready, and that may take a while, NHS Choices gives some advice on returning to work after caring and Carers UK site also has some useful advice around getting back into...
  14. Replies
    2,470
    Views
    650,362

    Trish......Thinking of you loads as you go...

    Trish......Thinking of you loads as you go through another of those really difficult milestones xx
  15. Replies
    19
    Views
    11,456

    I keep asking myself that same question Trish and...

    I keep asking myself that same question Trish and it's a really close call! Thinking of you too and wishing us all the strength and courage we need to keep getting through the days. I don't have much...
  16. Replies
    19
    Views
    11,456

    Hello Becky, I don't have any answers but am...

    Hello Becky, I don't have any answers but am feeling exactly the same about my husband. The missing is just unbearable. I talk to his photo constantly, sometimes it helps and I try to keep really...
  17. Replies
    8
    Views
    3,253

    Hi Becky, Sadly my husband passed away 18th...

    Hi Becky,

    Sadly my husband passed away 18th July so too late for him but I won't rest until they find the cure. I am absolutely sure it is just a matter of time..........there are loads of very...
  18. Replies
    21
    Views
    10,305

    Hello Snodgrass My heart goes out to you, this...

    Hello Snodgrass

    My heart goes out to you, this is such a difficult time, watching someone you love so much struggle. I am sure the hospital will keep him comfortable. Like DC I regret not having...
  19. Replies
    8
    Views
    3,253

    Hi Barry and Becky, I was very interested to...

    Hi Barry and Becky,

    I was very interested to read the article on the gut. When my husband was first diagnosed I read everything I could about MND and this theory about the gut did come up here...
  20. Thread: Ebay

    by Pea
    Replies
    32
    Views
    14,490

    Hello Terry, Do you have an association...

    Hello Terry,

    Do you have an association visitor?

    If you do perhaps they could call on your behalf?

    I do hope you get it sorted..... let us know how you get on Paula x
  21. Replies
    2,470
    Views
    650,362

    Hi Dave, I am also an ex carer having looked...

    Hi Dave,
    I am also an ex carer having looked after my husband full time for 28 months.
    How would you feel about looking for work in the care industry, not necessarily domicilary/nursing care but...
  22. Replies
    8
    Views
    3,253

    Promising research

    https://alsnewstoday.com/2016/07/08/2016070720160707anti-epileptic-drug-perampanel-improves-als-pathology-motor-function-sporadic-als-model-mice
    ...
  23. Thread: Can't Greive

    by Pea
    Replies
    21
    Views
    14,127

    While I know that grief is very personal, the...

    While I know that grief is very personal, the bravery of all you lovely people who have shared your own experiences, wisdom and advice so willingly and with so much care has truly helped and I...
  24. Thread: Can't Greive

    by Pea
    Replies
    21
    Views
    14,127

    Dear Nettie, I am so sorry that you too have had...

    Dear Nettie, I am so sorry that you too have had to go through such a dreadful loss. I feel less alone to hear that others who have had to live this nightmare have reacted as I have. Everyone tells...
  25. Thread: Can't Greive

    by Pea
    Replies
    21
    Views
    14,127

    Hi Dabchick, thinking of you and sending you a...

    Hi Dabchick, thinking of you and sending you a hug for today, a really difficult milestone. I so understand how you are feeling - wanting, needing to let it all out and weep and the tears just don't...
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