Search:

Type: Posts; User: willem3069

Search: Search took 0.06 seconds.

  1. Thread: Hard

    by willem3069
    Replies
    23
    Views
    6,854

    Dear Skipton, can you please let us know how...

    Dear Skipton,

    can you please let us know how your father is doing? And, how are you doing yourself?


    Love, Willem
  2. Replies
    72
    Views
    13,985

    Dear Terry, no, it appears that stem cell...

    Dear Terry,

    no, it appears that stem cell based treatment cannot cure MND yet or even bring it to a standstill.
    What was this other therapy that led to some improvement?


    All the best, Willem
  3. Replies
    72
    Views
    13,985

    Dear all, concerning stem cell treatment:...

    Dear all,

    concerning stem cell treatment: would I do it again? Probably yes. We were very misfortunate in that my partner had a lung embolism on top of his MND. This is one of the many if-only's....
  4. Thread: Hard

    by willem3069
    Replies
    23
    Views
    6,854

    Dearest Kayleigh, your first poem hit home...

    Dearest Kayleigh,

    your first poem hit home hard. But your second poem brought a smile to my face.

    I love it!


    Yours,

    Willem
  5. Thread: Hard

    by willem3069
    Replies
    23
    Views
    6,854

    Dear Skipton, a lot of very sensible advice...

    Dear Skipton,

    a lot of very sensible advice and some touching stories have been posted in reply to your question.

    I am so sorry that your father is suffering from MND.
    I know. It's hell.

    My...
  6. Replies
    72
    Views
    13,985

    Hi Terry and Kayleigh, thanks so much for your...

    Hi Terry and Kayleigh, thanks so much for your heart warming replies.

    Kayleigh, I understand you were diagnosed with MND only recently? I feel so sorry for you. However, if there is one thing that...
  7. Replies
    72
    Views
    13,985

    Hi all, just to let you know how I'm doing. It...

    Hi all,

    just to let you know how I'm doing. It has been 3 1/2 months now since my partner died. To be honest, nothing could have prepared me for the sheer grief, sadness, despair and frustration...
  8. Replies
    72
    Views
    13,985

    Thank you all for your wonderful kind words. They...

    Thank you all for your wonderful kind words. They really help me. As far as the stem cell based treatment is concerned, what a pity indeed that by the time it seemed to have benefits for my partner,...
  9. Replies
    72
    Views
    13,985

    UPDATE 3: I am sorry to tell you that my partner...

    UPDATE 3: I am sorry to tell you that my partner died this morning.
    Even last Friday there was visible improvement, i.e. he could move his legs a little bit more and he had more muscle power in...
  10. Replies
    72
    Views
    13,985

    UPDATE 2: Every evening we perform simple foot,...

    UPDATE 2: Every evening we perform simple foot, leg and arm exercises. (I do most of the work :-) What I suspected these last few days was confirmed this evening: there is definitely more strength in...
  11. Replies
    72
    Views
    13,985

    Thanks so much for your kind words, Marigold.

    Thanks so much for your kind words, Marigold.
  12. Replies
    72
    Views
    13,985

    UPDATE 1: When I visited my partner yesterday in...

    UPDATE 1: When I visited my partner yesterday in the nursing home, he could move his right foot, which he had not been able to do for weeks.

    @Jaxx: Yes, it is terribly worrying for all of us who...
  13. Replies
    72
    Views
    13,985

    Dear Jaxx, my heart goes out to you and all forum...

    Dear Jaxx, my heart goes out to you and all forum members who are diagnosed with an MND or have a loved one who suffers from it. I know, from own experience, how hard it is to live with such a...
  14. Replies
    72
    Views
    13,985

    That is a very good question, Andy. I will...

    That is a very good question, Andy.

    I will give you my understanding of all this. Mind that I am not a medical person.

    1. Stem cells have typically been known for their ability to develop into...
  15. Replies
    72
    Views
    13,985

    Dear Terry, here are some details for our...

    Dear Terry,

    here are some details for our case. This does not necessarily mean that they will be true for everyone but I think you get a much clearer picture.

    The treatment was done in two...
  16. Replies
    72
    Views
    13,985

    Thanks Terry, I will post updates on my...

    Thanks Terry,

    I will post updates on my partner's condition whether good or bad.


    Best wishes, Willem
  17. Replies
    72
    Views
    13,985

    in reply to your query

    Dear Kushy,

    my partner suffers from PMA Progressive Muscular Atrophy which is also in the MND spectrum and very much like ALS.
    He has undergone the stem cell based therapy at the institute you...
Results 1 to 17 of 17