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  1. Replies
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    Welcome Vix, my Husband was diagnosed 11months...

    Welcome Vix, my Husband was diagnosed 11months ago, they said ALS
  2. Thread: Falling !

    by shrew
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    383

    Hi hope you’re soon feeling better x

    Hi hope you’re soon feeling better x
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    so sorry for how you are feeling. Sad that her...

    so sorry for how you are feeling. Sad that her family havent kept in touch given what you did x
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    I do hope that your levels drop again and you...

    I do hope that your levels drop again and you have a good day
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    i didnt know weight was a factor in the settings....

    i didnt know weight was a factor in the settings. Mick was over 16st , now 15 10 when he weighed in 2 wks ago at 5ft 6 /7 his nurse said not too worried about slight loss when she called tue
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    10,861

    Mick had the rig procedure in january, used his...

    Mick had the rig procedure in january, used his nippy throughout. not had to use the tube yet. I just put 50 ml water through daily, but its done now
    Hope they sort you out and you are home soon x
  7. Thread: Meltdown

    by shrew
    Replies
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    5,403

    sorry you had a bad time with carer

    sorry you had a bad time with carer
  8. Replies
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    hope they get you sorted soon X

    hope they get you sorted soon X
  9. Thread: Hiya

    by shrew
    Replies
    11
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    1,073

    welcome Maz

    welcome Maz
  10. Replies
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    welcome Rosie, sorry to hear of your Husbands...

    welcome Rosie, sorry to hear of your Husbands diagnosis x
  11. Thread: bereavment

    by shrew
    Replies
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    6,282

    Hi Delta, so sorry for to learn of the loss of...

    Hi Delta, so sorry for to learn of the loss of your lovely Husband x
  12. Thread: Mum with MND

    by shrew
    Replies
    12
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    1,476

    Welcome Roo, so sorry you are having a hard time...

    Welcome Roo, so sorry you are having a hard time x
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    1,439

    Good Luck. I too struggle with apts and coming to...

    Good Luck. I too struggle with apts and coming to terms with it all
  14. Thread: bereavment

    by shrew
    Replies
    30
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    6,282

    So sorry to hear of the sad loss of your lovely...

    So sorry to hear of the sad loss of your lovely Husband xx
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    welcome Katski x

    welcome Katski x
  16. welcome Katherine x

    welcome Katherine x
  17. Replies
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    1,282

    Thanks Ellie x

    Thanks Ellie x
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    Thanks, we have assistance both here and Girona...

    Thanks, we have assistance both here and Girona and his fit to fly. When we asked nurse she said day flights . It is Mick's European bike meet. Of course he always went on the bike, now its the...
  19. Thread: Fed up

    by shrew
    Replies
    74
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    7,912

    I have been thinking of you too xx

    I have been thinking of you too xx
  20. Replies
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    We get a fit to fly letter and the consultant put...

    We get a fit to fly letter and the consultant put in the letter that it needs to be carried onboard. we are flying 2.5 hrs next wk and already im nervous
  21. Thread: A bad day

    by shrew
    Replies
    15
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    1,704

    Sorry that you had such a bad day. I worry about...

    Sorry that you had such a bad day. I worry about Mick falling, especially when I am not here. He too has had about 3. If we go any distance we take his wheelchair or the mobility scooter we bought....
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    What a quick delivery! Lynne, Mick sleeps on his...

    What a quick delivery!
    Lynne, Mick sleeps on his side and his shoulders were getting painful, I guess because they are quite bony. He rang OT , she couldnt suggest anything. He emailed his MND nurse...
  23. Thread: new member

    by shrew
    Replies
    7
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    1,016

    Welcome Jackie x

    Welcome Jackie x
  24. Mick was diagnosed last July in Preston. He only...

    Mick was diagnosed last July in Preston. He only sees the Respiratory department. When he had his Rig done in january a lady came and asked him to be part of a study, he agreed. She asked when he was...
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    hi welcome Panniertank, you have come to the...

    hi welcome Panniertank, you have come to the right place for help and support
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