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  1. Replies
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    Good morning Hope everyone is having a good...

    Good morning

    Hope everyone is having a good bank holiday Monday?

    I too am stuck with Glentek and as mentioned above, they do dissolve quite quickly in the mouth if you are not careful careful...
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    Good afternoon Sue I too am sorry to hear that...

    Good afternoon Sue

    I too am sorry to hear that your partner is in hospital. I can only wish him the best.

    Also, it is an only too common assumption that people with high blood sugar have...
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    Good afternoon Adam And welcome for me too ...

    Good afternoon Adam

    And welcome for me too

    I note what you say about carers - joys to come for us here I guess!

    I note you decided that the breathing assist was not something for you - do...
  4. Checklist for losing the use of your arms

    Good afternoon all

    As you will know I have arm onset MND, which means I am slowly losing use of my hands and arms - perhaps 50% left on my left, and 90% left in my right just now - still have a...
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    Good evening, A bit of an update as I have...

    Good evening,

    A bit of an update as I have been cheered up by having sorted our the spectre of heart trouble hanging over my head since I was stopped starting a drug trial in May 2019. At that...
  6. Thread: collection

    by nunhead_man
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    598

    Excellent news ! I hope there will be a...

    Excellent news !

    I hope there will be a fitting memorial for Mick somewhere or other?

    Warmly
  7. Thread: Pain/Agony

    by nunhead_man
    Replies
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    2,785

    Hi there Oooh err - I know there was a...

    Hi there



    Oooh err - I know there was a smiley there, but I am amazed what you have been doing and feel for you in that you are having some difficulty getting your relatives to pitch in.

    I...
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    Good morning Puddy I know I am off thread,...

    Good morning Puddy



    I know I am off thread, but what is this apitherapy?

    It does not get a very good write up here; https://en.wikipedia.org/wiki/Apitherapy

    Warmly
  9. Replies
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    Hi Ellie Thank you - assume IDK should be...

    Hi Ellie



    Thank you - assume IDK should be IDNK , meaning I do not know?

    I do try to swallow the bloody things but occasionally when I am, dozy at 6 AM I try to swallow with too little water...
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    Good afternoon all I had the Sun Pharma...

    Good afternoon all



    I had the Sun Pharma stuff originally and then was told I could only get the Glentek stuff.

    I had a hunt round all the different pharmacy chains locally and none of them...
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    Good evening And thank you both. I will ask...

    Good evening

    And thank you both.

    I will ask my neuro team for a check of my leg muscles the next time again see them in September or perhaps even when I go in later this week to see the physios...
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    riluzole - updated research

    From Lee Millard on the Facebook group MND Warriors....

    The 2 or 3 months is highly misleading as it is based on the 3 original trials which only lasted 18 months. So the conclusions could only be...
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    Housing matters

    Hi all.

    I have probably said all of this somewhere here already, but poking around Right Move and Zoopla trying to work out where we can afford and trying to work out whether the places we can...
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    Good morning Oh dear - I do hope as Lynne...

    Good morning



    Oh dear - I do hope as Lynne says that the clot dissolves fairly soon, or is dealt with in some other way.

    I was going to say that I am beginning to get real oddness in terms...
  15. Thread: update...

    by nunhead_man
    Replies
    35
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    4,745

    Thank you both for your comments. I will...

    Thank you both for your comments.

    I will toddle along to the cardiologist on the 19th as arranged, show him the trace from the drug trial and see whether he wants more done.

    As to my aches and...
  16. Thanks from me too Steve My neurologist has...

    Thanks from me too Steve

    My neurologist has been playing with mice in this regard and was suggesting that he had some positive results.

    I have sent him this link As he is presently riding his...
  17. Thread: Housing

    by nunhead_man
    Replies
    58
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    12,090

    Good afternoon Lynne Sorry to hear your trials...

    Good afternoon Lynne

    Sorry to hear your trials and tribulations - I have been rather busy with trying to find accommodation for us so I can quite feel for your difficulties in this thread.

    I...
  18. Thread: update...

    by nunhead_man
    Replies
    35
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    4,745

    Good afternoon Ellie Sorry to be so slow in...

    Good afternoon Ellie

    Sorry to be so slow in coming back.

    Life has seemed to pass me by whilst I hunt for and try and keep the little work I have left going properly. Although there is more...
  19. Thread: update...

    by nunhead_man
    Replies
    35
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    4,745

    Good morning Ellie Thank you again for...

    Good morning Ellie



    Thank you again for such a detailed reply - I take a note of all this, so may come back to it.

    I say that because the Tech (technician) who came from the NHS service I...
  20. Thank you for that. I see the MNDA research...

    Thank you for that.

    I see the MNDA research director was quoted - interesting to see nicotinamide "tagged"

    Warmly
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    Good afternoon Iain Welcome - I am also sorry...

    Good afternoon Iain

    Welcome - I am also sorry to hear about your diagnosis and it sounds like you are being very sensible about it.

    I have little to add to the above as our daughters are older,...
  22. Thread: update...

    by nunhead_man
    Replies
    35
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    4,745

    Hi Lynne Thank you for the information and...

    Hi Lynne



    Thank you for the information and also you Ellie in relation to Sheffield - it was already on our list.

    We have a hesitation in that my model for moving in later years was that of...
  23. Thread: update...

    by nunhead_man
    Replies
    35
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    4,745

    Hi Ellie, No it is not a touchscreen - I am...

    Hi Ellie,

    No it is not a touchscreen - I am using it on a PC monitor - look for HP ZR24W - which has a flat bezel but has controls for the screen on the right-hand side which means I cannot mount...
  24. Thread: Flail arm

    by nunhead_man
    Replies
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    1,695

    Hello Happy Chappy To both questions the...

    Hello Happy Chappy



    To both questions the answer is neither, because I am not sure either is sensible.

    I am not sure the TENS machine will help much with those muscles that do not have a...
  25. Thread: update...

    by nunhead_man
    Replies
    35
    Views
    4,745

    Good morning Ellie Thank you - I think DIY...

    Good morning Ellie



    Thank you - I think DIY SOS is probably not sensible given our occupational therapist's and architects advice that is simply not possible to fit a big enough footprint on...
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