Search:

Type: Posts; User: chrissie57

Page 1 of 2 1 2

Search: Search took 0.06 seconds.

  1. Replies
    8
    Views
    1,007

    So sorry for your loss

    So sorry for your loss
  2. Thread: She's Gone

    by chrissie57
    Replies
    14
    Views
    1,483

    I have followed your threads about your care for...

    I have followed your threads about your care for your grandmother. Please accept my condolences on your loss, no one could have done more for their loved one.
  3. Replies
    4
    Views
    502

    Thanks, Ellie. I did wonder if constipation could...

    Thanks, Ellie. I did wonder if constipation could be the cause
  4. Replies
    4
    Views
    502

    Stomach problem?

    Hi, everyone
    Hope this is the right place to post, I feel as if I only post when we have a problem.

    Over the last couple of days, Douglas has been experiencing stomach ache and intermittent...
  5. Replies
    43
    Views
    4,119

    Douglas has registered but we have to wait until...

    Douglas has registered but we have to wait until they can extend the research to sites in England
  6. Thread: Dina RIP

    by chrissie57
    Replies
    17
    Views
    2,743

    Haven't been on the forum for a few days so have...

    Haven't been on the forum for a few days so have only just seen this devastating news.
    Douglas and I were privileged to meet Dina when they were both in Wythenshawe; she always got a smile from...
  7. Thread: Terry

    by chrissie57
    Replies
    101
    Views
    11,443

    Thinking of you, Terry, and wishing you a speedy...

    Thinking of you, Terry, and wishing you a speedy recovery.
  8. Replies
    15
    Views
    3,647

    So sorry for your e

    So sorry for your e
  9. Replies
    18
    Views
    3,852

    Hello, Ellie & Dina Sorry, Ellie, I did have...

    Hello, Ellie & Dina

    Sorry, Ellie, I did have watched the video a couple of times. The mask is not unlike the full face mask he has been trying to use but the one in the video seems to have wider,...
  10. Replies
    18
    Views
    3,852

    Well Douglas should be home on Wednesday 😊. ...

    Well Douglas should be home on Wednesday 😊.
    Ubfortunately I seem to have picked up one of the stomach bugs floating around and haven't seen him since Tuesday - didn't want to risk the health of...
  11. Replies
    18
    Views
    3,852

    Thank you everyone. Ellie, the full face mask he...

    Thank you everyone. Ellie, the full face mask he has is slightly different to the one you have. I am going to ask our vent nurse if she thinks it is worth me buying one like yours. It sounds just...
  12. Replies
    18
    Views
    3,852

    Good morning everyone, sorry I went quiet but I...

    Good morning everyone, sorry I went quiet but I fell asleep in my chair.

    Ellie, I feel it may be Douglas' face which is the problem, if that makes sense. He has tried every single mask going, I...
  13. Replies
    18
    Views
    3,852

    Hello, Dina & Ellie Doug is taking a kinder view...

    Hello, Dina & Ellie
    Doug is taking a kinder view of Wythenshawe now. His vent nurse is Nicky, who is absolutely lovely and has done a lot to try and keep him steady. The problem isn't really the...
  14. Replies
    18
    Views
    3,852

    Douglas in hospice

    Hello, everyone
    Looking for reassurance really. Doug was still having problems with his ventilation so there was a small meeting at our home consisting of the hospice doctor, his vent nurse and his...
  15. Replies
    18
    Views
    2,985

    Thank you, Ellie and Dina Ellie - I took her...

    Thank you, Ellie and Dina

    Ellie - I took her to mean that Douglas would not be able to operate the chair. He can still move his arms but has no real strength in them now and his hands are curled...
  16. Replies
    18
    Views
    2,985

    Hi, Dina I did think about ringing the MNDA -...

    Hi, Dina
    I did think about ringing the MNDA - especially when I found there is a version of the Salsa Mini which they helped design for sufferers of the disease.
    Is your chair powered? What will...
  17. Replies
    18
    Views
    2,985

    Not able to have powered wheelchair?

    Good morning, everyone.

    After MANY months of waiting, Doug's wheelchair arrived this morning. Unfortunately it is a manual and we were expecting a powered chair.

    I rang the OT immediately and...
  18. Replies
    5
    Views
    1,220

    Thank you, everyone. It had occurred to me that...

    Thank you, everyone. It had occurred to me that we are new bods and shouldn't really expect to be accommodated over more long standing clients. Also the irony that I used to think the previous team...
  19. Replies
    5
    Views
    1,220

    Carers arrival time

    Good morning, everyone
    Don't know if this is the right place for this but I am trying to find out what is a reasonable time in the morning for the first visit by a team of carers.

    Our original...
  20. Replies
    11
    Views
    2,525

    Thank you, Barry

    Thank you, Barry
  21. Replies
    11
    Views
    2,525

    Thank you, Ellie, that is the sort of thing I was...

    Thank you, Ellie, that is the sort of thing I was hoping to find.
  22. Replies
    11
    Views
    2,525

    Thank you, Terry and Dina😃 I had considered a...

    Thank you, Terry and Dina😃

    I had considered a door bell (we use one in work to summon people from the far end of the library and it works very well) but I don't know if Douglas would be able to...
  23. Replies
    11
    Views
    2,525

    Easy push bell/buzzer?

    Good evening, everyone. Douglas lost his ability to speak in the early stages of this horrible illness. During the day he communicates using his iPad or an alphabet sheet. When he has needed me at...
  24. Replies
    39
    Views
    5,221

    Apollo is lovely, a real character. 😃

    Apollo is lovely, a real character. 😃
  25. Replies
    376
    Views
    34,130

    Fantastic news, Dina

    Fantastic news, Dina
Results 1 to 25 of 36
Page 1 of 2 1 2