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    Sorry for the delay, I get the strongest...

    Sorry for the delay, I get the strongest available and keep it under my tongue for one minute then wash down with strong flavoured drink. Oh but if I have sores in my mouth I apply it directly.
  2. Pretty soon they won't need us humans; makes me...

    Pretty soon they won't need us humans; makes me happier about checking out earlier than I thought. x
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    And if you haven't seen Spooks I am so jealous,...

    And if you haven't seen Spooks I am so jealous, or in the local venaculer so Salty! :o)
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    Two more American Horror Story and Gotham. Both...

    Two more American Horror Story and Gotham. Both have great actors, great script and amazing visual impact. x
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    Hello Paul, First thing is to have a drink ready...

    Hello Paul, First thing is to have a drink ready to swallow right after swallowing the oil. It tastes horrible! I put two drops under my tounge about an hour before bedtime. Simple as that. Stay...
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    Hey guys, try The Americans, Quantico and Humans....

    Hey guys, try The Americans, Quantico and Humans. Binge heaven.vx
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    A cautionary tale II

    Last week I thought I was being clever and got a lot of pureed meals. Well after eating a few I have thrown the rest out. Reason being I am not yet at the point when I will need pureed meals and...
  8. Thread: Hot hot hot

    by matthew55
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    533

    I have come to measure the days heat with my...

    I have come to measure the days heat with my feet. Throughout the winter they were painful icicles but with the reasent warm weather I have not used my micro wave slippers for days! I guess next...
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    Hello, I have Bulbar onset and I get my CBD oil...

    Hello, I have Bulbar onset and I get my CBD oil from Amazon (paying tax I know but way too convenient ) it helps with pain and is great for sleeping. Life IS ****. :o)
  10. Thread: I'm lazy

    by matthew55
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    I'm lazy

    Hey peoples, anybody know of a wet room specialist in the North West? x
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    Anything that will release me before the natural...

    Anything that will release me before the natural end is welcome in my book. :O)
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    Hi Ellie, what do think about this one: BrookPad...

    Hi Ellie, what do think about this one: BrookPad SplashLet 2100RB Intelligent Round Bidet Toilet? It's on Amazon. Thanks. x
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    Rolling back the years

    Today I ordered an adult drinking cup because I can no longer drink from a grown up cup without dribbling?
    Unable to speak words, having someone else to wipe my bottom.
    Sounds like a baby to me! 😀x
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    Oh I'm still fighting but I do enjoy the feeling...

    Oh I'm still fighting but I do enjoy the feeling of freedom from the fear of anything! ��
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    I'm on it twice a day for several weeks now and...

    I'm on it twice a day for several weeks now and no side effects. Actually think my regression has slowed down so all good, apart from my unheard plead for the liquid form. ��
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    Hi everyone, I have signed the forms and am due...

    Hi everyone, I have signed the forms and am due my PEG very soon, I'm getting a breather too and at the moment I can breathe and swallow. I'm not worried because I have already had a camera down my...
  17. Thread: Do I?

    by matthew55
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    710

    Hi Lynne, still no sign of my order, yes and eye...

    Hi Lynne, still no sign of my order, yes and eye is in the planning stage and I am very lucky to have a full height gate and a locked rear drive way at the bottom of my garden, which is completely...
  18. Thread: Do I?

    by matthew55
    Replies
    8
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    710

    Do I?

    I'm thinking of getting a road scooter, I'm currently almost mute, and tomorrow I have my first meeting for my PEG ,but the rest of me still works. What are your thoughts? Love you all x
  19. Thread: New reality

    by matthew55
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    454

    Thanks Lynne, thanks for that. xx

    Thanks Lynne, thanks for that. xx
  20. Thread: New reality

    by matthew55
    Replies
    3
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    454

    New reality

    I have a problem with a delivery from Currys and you can only phone it seems. My voice is so bad that the person I finally got to talk to must have thought I was a prank call and put the phone down....
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    A cautionary tale.

    I got really,really fed up with dribbling, so genius here decided to put a scopoderm 1.5 mg patch behind EACH ear at around tea time. Everything was fine until 3am when I awoke with extreme pain in...
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    Full disclosure, I haven't decided if I want to...

    Full disclosure, I haven't decided if I want to travel the whole road but I'm sticking around for now? Talk doesn't fix things but don't discount your soul. Be strong
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    Hi Wayne, if you have been paying into a job...

    Hi Wayne, if you have been paying into a job pension you can get your money back. I did it and it's helped keep me here if nothing else. Be Strong one day at a time. ��x
  24. Dear Eileen I have Bulbar onset and my voice is...

    Dear Eileen I have Bulbar onset and my voice is nearly gone but I don't let that upset me. The future is an undiscovered country where anything can happen? I just take it one day at a time, somedays...
  25. Thread: Will

    by matthew55
    Replies
    2
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    836

    Will

    Like everyone else I aways thought I'd live forever, how wrong can you be? Now that I'm staring down both barrels my thoughts turn to after I have gone. How do I get a will written? I don't have...
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