Hi Lynne,
I was chatting to Judith, the manager of the Neuro research team at Salford, when she called round today. They are starting as satellites for two studies. One has just started recruiting...
Type: Posts; User: Gillette
Hi Lynne,
I was chatting to Judith, the manager of the Neuro research team at Salford, when she called round today. They are starting as satellites for two studies. One has just started recruiting...
Hi Lynne
Oh what a blow, having to make the decision to use your powered wheelchair in your home. Very well done for actually making that decision, especially with the implications for your...
Yes, I think he is, Chrissie! It’s good to know he still has his spirit. ;)
Hi Jojo,
One of the things that make MND so hard to cope with is that there is no “usual “. Everybody’s MND journey is different, which is why it’s so hard to anticipate what is likely to happen...
Hi Chrissie,
I agree with Ellie about considering an NG tube for Douglas. Have you thought about trying to get him admitted to the vent unit?
The two of you are so obviously devoted to each...
Hi Lesley,
Welcome to the forum. So sorry that your Mum has been diagnosed with this horrible disease. It can feel like a very lonely time but, if you need information or support, we are here.
Oh, Chrissie, I’m so sorry this is happening to you both. I’m not surprised you’re feeling as you do.
It doesn’t sound as though the hospice is where he should be for assessment if they know so...
Hi Barry,
Hmm, that could prove to be an expensive loss.
My partner is the one who loses things. Recent losses include:
Cordless phone
TV remote
A parcel containing a book I won
Drug...
Hi Barry
Thanks for posting that. It is wonderful that he is raising money for and, just as importantly, awareness of MND and that the BBC have been following him.
Today’s good thing is that I managed to clear and tidy some space in the kitchen and the living room . I’ve been trying to do it for weeks.
Truce happily agreed to. I’ve never seen the point in fighting over a man, it just makes them big-headed. Ha ha ha.
Well now, if TC is away, who is taking his place as Santa?
Ha ha ha, Kayleigh. I’m afraid I’m not interested in getting into a cat fight over any man, especially if he needs protection from a sweet little pussy cat - although surely the forum’s answer to...
Woohoo, I used to knit and I’m a Nana! Perhaps I’ll stand a chance with our dapper Doug! Stand back, ladies. I have knitting needles and I know how to use them.
That’s great, Doug. Is your Speech and Language Therapist organising that for you? I seem to remember mine mentioning it when we first talked about voice banking. She wasn’t familiar with Acapela but...
Hi Sheila, I’m so sorry having the PEG fitted was unpleasant for you. Be careful with the site of the tube as, if it gets caught on clothing or when being washed or dried, it can hurt. I hope you’ll...
I’ve been listening to some tracks on YouTube and came upon this one. It brings back memories of a life changing trip to Australia in 2013.
https://www.youtube.com/watch?v=IcrbM1l_BoI
You are very welcome, Kayleigh. Yes, there are some lovely things on there,
There are two other marketplace sites selling arts and crafts: Etsy and Not on the High Street:
https://www.etsy.com...
Hi Kayleigh
Yes, I’m finding the tablet holder really handy. I have a cushioned tray on my lap and the holder sits on the tray.
This is the link to the one I bought, which was from Folksy. I...
Today’s good things are the kindness of friends, which should never be taken for granted, and squeezy hugs.
Hi Kayleigh.
Perhaps you could use something like “six cheese a-playing” instead?
Thank you for your lovely musical Advent calendar, Kayleigh. I am really enjoying it.
Today’s good thing is my new tablet cushion. I struggle to hold my tablet but my new cushion stand for it arrived today and it’s already making a huge difference.
This vehicle is now for sale again.
There is nothing wrong with it - my carer has changed his mind about driving it.
I paid £2850 but would seriously consider a reasonable offer
I was...
We do understand, Panniertank.
I used to really enjoy driving and the independence it gave me. I had to let my beloved Alfa Romeo go when I needed hand controls, which really upset me. I bought a...
Well, chocolate and caramel tray bake sounds delicious and perfect for a celebration!