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  1. Thread: So so tired

    by Barry52
    Replies
    52
    Views
    7,315

    Hi Terry, I’m sorry to hear that you have not...

    Hi Terry,

    I’m sorry to hear that you have not improved and still appear to be shaking off the virus. This time of year is so difficult for us trying to avoid viruses when we have a weakened immune...
  2. Replies
    7
    Views
    373

    Steve I’m sorry to hear about the loss of your...

    Steve I’m sorry to hear about the loss of your wife and I hope you took some comfort from being with her at the end. Please accept my condolences and I hope you and your family can look back on...
  3. Thread: New

    by Barry52
    Replies
    40
    Views
    5,397

    Hi JoJo, I agree with Lynne and we often leave...

    Hi JoJo,

    I agree with Lynne and we often leave it too late to move onto the next piece of equipment to make us safer. If the OT won’t offer a 4 wheel walker you can buy a good one for around £100...
  4. Thread: Hello from me

    by Barry52
    Replies
    5
    Views
    403

    Hello and welcome Lesley. Sorry to hear that...

    Hello and welcome Lesley.

    Sorry to hear that your mum has been diagnosed with MND and I understand how you are all in shock since many of us have been through it. Eventually we all see a pathway...
  5. Replies
    339
    Views
    23,297

    Hi Dina, It’s satisfying to have a clear out...

    Hi Dina,

    It’s satisfying to have a clear out now and again and it is amazing how many things you find that you had forgotten about. I’m a hoarder and I forget where I put things so I spent...
  6. Replies
    403
    Views
    71,546

    Love Kayleigh x .. but the sugar-babes are...

    Love
    Kayleigh x

    .. but the sugar-babes are still too lost without their Sugar Daddy! - perhaps Sweet Lord Sugar heard whisperings of a sweeter offer behind door number 'legs 11' or even number...
  7. Thread: Doddie Weir

    by Barry52
    Replies
    10
    Views
    1,017

    I know that exercise is impossible for some pwmnd...

    I know that exercise is impossible for some pwmnd but I believe like Terry and Lee (aka onein300) that if you are able to perform any form of exercise, within your limits, it is valuable.
    ...
  8. Thread: Doddie Weir

    by Barry52
    Replies
    10
    Views
    1,017

    Doddie Weir

    Good morning friends.

    I thought I would share this news story and video broadcast by the BBC. The video is an hour long but I found it inspirational how Doddie tackles life with MND in the same...
  9. Replies
    339
    Views
    23,297

    Great news Doug. Be patient and stop regularly...

    Great news Doug.

    Be patient and stop regularly if you get tired. It’s worth the effort and I found my recording satisfying when I used it during a meeting yesterday.

    Best wishes,
    Barry
  10. Replies
    403
    Views
    71,546

    Hi Debbie, Both my daughters are primary...

    Hi Debbie,

    Both my daughters are primary school teachers who changed careers in their late 30’s. They recount many stories of the joys the children bring as well as the challenges.

    Kayleigh,...
  11. Replies
    339
    Views
    23,297

    Hi Kayleigh, My bunny batteries ran out last...

    Hi Kayleigh,

    My bunny batteries ran out last night after a tiring but enjoyable day. https://youtu.be/Bxt4HG__TC4

    Cadbury was one of my clients and many times I would visit the staff shop,...
  12. Replies
    339
    Views
    23,297

    Sorry Debbie there were 36 portions and they all...

    Sorry Debbie there were 36 portions and they all went. I did manage to get one for myself however. It was so good to meet most of the group and I was well looked after because I was the only man on a...
  13. Replies
    339
    Views
    23,297

    All this talk about food reminds me that I have...

    All this talk about food reminds me that I have to make a cake today for the walking group lunch tomorrow. I still socialise with the group which I accompanied in the early days following diagnosis...
  14. Replies
    3
    Views
    513

    Hi Andy, I watched yesterday when they had ask...

    Hi Andy,

    I watched yesterday when they had ask the panel. The presentations were okay but we didn’t learn anything new. No doubt the speakers later this week will inspire hope.

    Best wishes,...
  15. Replies
    339
    Views
    23,297

    I will be arriving soon with the cheese Doug as...

    I will be arriving soon with the cheese Doug as ‘77 was a classic year.

    Best wishes,
    Barry
  16. Thread: Pip

    by Barry52
    Replies
    88
    Views
    69,085

    Hi Terry aka Santa, I’m pleased your move to...

    Hi Terry aka Santa,

    I’m pleased your move to pip retains the higher award and I agree that the process is laborious. Why oh why do people with a diagnosis of MND still have to go through the...
  17. Replies
    339
    Views
    23,297

    Low gear Dina as we don’t want you to get caught...

    Low gear Dina as we don’t want you to get caught for speeding.

    Kayleigh I remember riding the ratatouille ride with my daughter and granddaughter at Disney Paris 3 years ago and my granddaughter...
  18. Replies
    339
    Views
    23,297

    The website has gone crazy and duplicated my...

    The website has gone crazy and duplicated my post.
    I have tried deleting without success. Maybe it’s that bang on the head lol.
    Barry
  19. Replies
    339
    Views
    23,297

    I certainly celebrated 2 of the good things in...

    I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

    The day didnít get...
  20. Replies
    339
    Views
    23,297

    I certainly celebrated 2 of the good things in...

    I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

    The day didn’t get...
  21. Replies
    339
    Views
    23,297

    I certainly celebrated 2 of the good things in...

    I certainly celebrated 2 of the good things in life yesterday, food and music. We went with our daughters to a tapas restaurant and had excellent food before going to a concert.

    The day didn’t get...
  22. Replies
    403
    Views
    71,546

    Hi CC, Sorry to hear that you have injured...

    Hi CC,

    Sorry to hear that you have injured your foot and I hope you recover quickly. Our A & E (ER to you) is a place to avoid. They park you on a trolley for several hours before seeing a doctor....
  23. Replies
    403
    Views
    71,546

    Yes Kayleigh, Rome is fabulous as is Venice and...

    Yes Kayleigh, Rome is fabulous as is Venice and many other Italian places. I didnít visit Venice until 2 years ago and it is very challenging for people with disabilities. Bridges everywhere and...
  24. Replies
    403
    Views
    71,546

    Thanks Kayleigh for the music and video which...

    Thanks Kayleigh for the music and video which reminded me of the times I have been to this fabulous and outrageous city. I would love to go back but I think it would be too challenging.

    Love,...
  25. Thread: TC and Kitty

    by Barry52
    Replies
    8
    Views
    1,065

    Hi Graham, Having read the lyrics I researched...

    Hi Graham,

    Having read the lyrics I researched your music hero and he certainly had a way with words. Whilst he died early aged 60, his lifestyle would appear to be a contributing factor. Thank...
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