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  1. The researchers of this study are still looking...

    The researchers of this study are still looking for a handful of participants, and there are some gaps in the sample that they are hoping to fill. They are interested in hearing from anyone with...
  2. Sticky: Experiences of applying for welfare benefits

    If you are living with MND, or know someone who is, and has experience of applying for welfare benefits, we need to hear from you!

    Please share your story at https://bit.ly/benefitsexperience
    ...
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    Hi Ellie, Thanks for flagging about the 'Top'...

    Hi Ellie,

    Thanks for flagging about the 'Top' button. It's now been fixed so should work as expected.

    There's not a lot we can do about the report button at the moment, as it's tied to the...
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    Just a reminder that this Sunday (21 June), we...

    Just a reminder that this Sunday (21 June), we will be marking Global MND Awareness Day and are asking who will you extend a hand to?

    In these difficult times, we canít hold each otherís hands....
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    Neurological Alliance survey

    What’s it like living with a neurological condition like motor neurone disease (MND) during the Covid19 pandemic?

    Please let us know via this short survey https://www.surveymonkey.co.uk/r/MNRLCDD...
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    Closed: We provide the forum to encourage supportive,...

    We provide the forum to encourage supportive, informative and useful conversations for people living with and affected by MND.

    Occasionally subjects will come up that cause distress and anxiety...
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    Global MND Day - 21 June 2020

    On Sunday 21 June, like MND/ALS communities across the world, we will be marking Global MND Awareness Day.

    Now more than ever, with the world in the grip of a global pandemic, we want to shine...
  8. Thread: Settings?

    by Admin_MND
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    Hi Matthew, When your logged in, at the top of...

    Hi Matthew,

    When your logged in, at the top of the screen you will see a button that says 'Setting'

    1142

    If you press this you will then be given a number of options which allow you to edit...
  9. Support MND carers by signing our open letter

    This morning, we have launched our new campaign #supportMNDcarers and we would really appreciate your support in signing our open letter.

    We are extremely concerned that unpaid MND carers are...
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    Hi all, We have a new update on our...

    Hi all,

    We have a new update on our #GetMNDonTheList campaign. Sadly it's not exactly the answer we wanted, but we want to thank everyone who took part in the selfie action and supported the...
  11. Thread: Covid Sticky

    by Admin_MND
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    Hi jaffabeach, We have been considering this...

    Hi jaffabeach,

    We have been considering this as part of the recent changes/housekeeping we've been doing on the forum, however we felt that there hasn't been enough threads or discussion to...
  12. Do you have a coronavirus experience to tell?

    We are keen to gather coronavirus related stories from people affected by MND to be used across our work streams to raise awareness, highlight issues and identify service gaps.

    Do you have a...
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    Closed: We provide the forum to encourage supportive,...

    We provide the forum to encourage supportive, informative and useful conversations for people living with and affected by MND. Occasionally subjects may lead to robust debate and opposing opinions....
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    Hi all, We have this afternoon launched the...

    Hi all,

    We have this afternoon launched the next part of our campaign to #GetMNDonTheList with our selfie campaign.

    Find out more and get involved here ...
  15. Thread: Housekeeping

    by Admin_MND
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    Housekeeping

    We just wanted to let you know we will be carrying out some minor housekeeping and maintenance on the forum during April 2020.

    Primarily this will involve deleting any information that is several...
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    Hi all, We just wanted to let you know that we...

    Hi all,

    We just wanted to let you know that we have updated our MND and coronavirus webpage https://www.mndassociation.org/mnd-and-coronavirus/

    We have added a video from our expert panel who...
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    Hi Beemer and everyone else, Sorry to hear you...

    Hi Beemer and everyone else,

    Sorry to hear you were having difficulty viewing your profile, but yes there is a limit of 5 posts before you can view profiles and send PMs etc, this is to try and...
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    Hello, Unfortunately our forum is often the...

    Hello,

    Unfortunately our forum is often the target for various spam accounts. We have a manual spam filter and occasionally one slips through.

    If you ever do spot spam on the forum, please...
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    Hi all, Just to update on the below, we wanted...

    Hi all,

    Just to update on the below, we wanted to make you aware that you can also register by calling 0800 028 8327.

    We will continue to share any updates as we receive them.
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    As a follow up to our post above, we have further...

    As a follow up to our post above, we have further information to share.

    People with MND are yet to be included on the Department of Health and Social Care list of those who are extremely...
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    We're concerned to see that people with MND have...

    We're concerned to see that people with MND have not been included in the Government’s list of extremely vulnerable persons in their guidance on shielding and protecting vulnerable persons from...
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    Coronavirus Information

    We are aware that the situation surrounding the spread of coronavirus may be causing people affected by motor neurone disease (MND) concern.

    Please take some time to review our webpage which...
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    Sticky: Hi Terry, Nothing has provoked this - we have...

    Hi Terry,

    Nothing has provoked this - we have just been reviewing our Terms and Conditions and looking at how other similar forums are set up.

    We are constantly looking at ways to improve the...
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    Sticky: Forum Guidelines

    This forum is an online community for people living with or affected by MND to share experiences and support one another. It is also a safe place where people who are experiencing symptoms or...
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    Hi Ellie, Sorry to hear you were having...

    Hi Ellie,

    Sorry to hear you were having difficulties filling out the survey. We've been told by BAPEN that the error on that question has now been fixed, so please do give it another go.
    ...
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