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  1. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hello, sorry its been a bit of time. weve been...

    Hello, sorry its been a bit of time. weve been supporting dad over the last few months with mum. Yesterday he was admitted to hospital with uti and pneumonia. Is this the rime to startto prepare for...
  2. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Thankyou. Mum hurt her back today so hes not...

    Thankyou.
    Mum hurt her back today so hes not been out of bed, so going over tomorrow after work to clean and sort them both. This disease does make you think about life, family and death.good idea...
  3. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hi thanks all. Fall due to his legs just packing...

    Hi thanks all. Fall due to his legs just packing in. Ive showered him today and it was a challenge to get everywhere clean. Interesting, he had his air mask on this afternoon and slept, when he awoke...
  4. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hello Dad been home a day, fell over last night...

    Hello
    Dad been home a day, fell over last night at home. Waited several hours for ambulance- all very good to him. Is his lack of walking in hospital due to his being weak? District nurse has told...
  5. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hey all. You are an amazing bunch of people,...

    Hey all. You are an amazing bunch of people, thankyou. Hes been annoyed today as theyve done a dementia test as he was confused when he awoke, but we think its because of the happy operation juice!...
  6. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Dad went in today and he came out! With peg! Hes...

    Dad went in today and he came out! With peg! Hes recovering well. God, the NHS is amazing. Thanks to all for advice ao far, webe used it and its empowered is. May be in for a few more days but thats...
  7. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Thatnk all. Lovely comments and the support from...

    Thatnk all. Lovely comments and the support from you is very appreciated
    Mny many thanks
  8. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hello Dad goes in for the peg on sunday, how...

    Hello
    Dad goes in for the peg on sunday, how long will he be in hospital do you think? What is the best way to support?
  9. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Hi all Thanks so much. Hes waited so long...

    Hi all
    Thanks so much.
    Hes waited so long because he is terrifiedof hospitals. I was over today helping out, he seemed a litle brighter- i think ising the breathing thing (but only 2 hours a day!)...
  10. Thread: Rapid progression

    by Coco
    Replies
    42
    Views
    10,371

    Rapid progression

    Hello all,
    In the last month dad has lost the ability to walk, his right leg is dead, his shoulders are weak and cannot sustain him standing. His lips are blue, he drools a Bit. Hes got the air...
  11. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Thank you all so much! The support you provide is...

    Thank you all so much! The support you provide is amazing
    Thankyou
  12. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Hello We had Dad over for Christmas. Within 3...

    Hello
    We had Dad over for Christmas.
    Within 3 days he has found it nearly impossible to climb the stirs. Last week he was fine. Yesterday he was unable to come down the stirs, so he came down on...
  13. Replies
    40
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    26,472

    Thankyou, hes also had a very bad stomach this...

    Thankyou, hes also had a very bad stomach this week, eaten nowt..!
  14. Replies
    40
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    26,472

    Thank you, You are a great source of info and...

    Thank you,
    You are a great source of info and support. He has changed meds from morphine patches to something else that also helps mood. I hope its that, but dearly just want him warm and...
  15. Replies
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    26,472

    Hello My dad has a xough, voice quieter and his...

    Hello
    My dad has a xough, voice quieter and his cough is weak. Hes a bag of bones and is not sleeping well, with 'odd dreams' and some nightmares....is this the progression happening?
    Thank you
  16. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Hes 72 ....

    Hes 72 ....
  17. Thread: Benefits

    by Coco
    Replies
    35
    Views
    26,600

    Hello Mum gets attendance llowance for dad. He...

    Hello
    Mum gets attendance llowance for dad. He and she are over 65 and on an income above 120 a week, are they eligible for motability?
  18. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Hello Mum has got attendance allowance only (...

    Hello
    Mum has got attendance allowance only ( for looking after dad) will they be eligible for motability?
  19. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Hello, Dad has been prescribed Amitriptyline, is...

    Hello,
    Dad has been prescribed Amitriptyline, is it for depression? Or is it used because he walks bent double? Wiki says its a monster anti depressent, which I hope is a good thing, but is this...
  20. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Dad had his 3 month meeting Thursdy. Lost over a...

    Dad had his 3 month meeting Thursdy. Lost over a stone, left hand weaker and left leg too. Told to get high fat foods in..obviously getting into another stage of progression, how do we help him?...
  21. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Hello, suffen weight loss, back bent double and...

    Hello, suffen weight loss, back bent double and hand power loss, is this rapid progression, ? Dad seems to have lost more weight too
  22. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Thank you Thats very very re-assuring, and...

    Thank you
    Thats very very re-assuring, and thanks to all
  23. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Thanks to all. Are protein shakes any good, they...

    Thanks to all. Are protein shakes any good, they help muscle mass..again- a stupid question!
  24. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    Thanks to all for the welcome. The internet is a...

    Thanks to all for the welcome. The internet is a scary place and weve seen so much good in viewing your posts. Thankyou. Dads scared of the tummy button, what is life without one? Balance between...
  25. Thread: New to the forum

    by Coco
    Replies
    35
    Views
    10,799

    New to the forum

    Hello we are the sons and daughter of a man just diagnosed. It has progressed very quickly and he struggles to walk now and has lost so much power. We are new ro all of this so apologies if we ask...
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