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  1. Thread: PEG operation.

    by martin
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    4,158

    I was only in hospital for just over half a day...

    I was only in hospital for just over half a day for my RIG.
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    3,280

    I haven't experienced pain but I have loss of...

    I haven't experienced pain but I have loss of control in my arms and legs.
  3. Look for fasiculations, skin fluttering usually...

    Look for fasiculations, skin fluttering usually on your arms or legs. That is a fairly good indicator of MND
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    1,940

    That's sorted out peeling. What about pooping?

    That's sorted out peeling. What about pooping?
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    6,694

    I suffer a very runny nose when I first get up in...

    I suffer a very runny nose when I first get up in the morning.

    If I go and lie down on the bed for an hour it dries up and doesn't seem to bother me until bedtime. When I go to bed for the night,...
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    37
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    14,953

    After talking with Kim Archer (MNDA ModelTalker...

    After talking with Kim Archer (MNDA ModelTalker guru) I downloaded Predictable. Now I'm learning my way around it.

    Cost was 129.99on Google Play Store, but you can apply for reimbursement from...
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    1,698

    I just found out that the same company provides...

    I just found out that the same company provides equipment for hotel stays and holiday rentals.
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    1,698

    If you want to go on a cruise...

    If you want to go on a cruise http://www.mobilityatsea.co.uk/ will deliver a wide range of specialist equipment directly to your cabin and take it away afterwards.
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    37
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    14,953

    I'm using ModelTalker2 at the moment but my...

    I'm using ModelTalker2 at the moment but my speech therapist suggested that I looked at Predictable.

    I did a quick look on the website but I couldn't find a price for Predictable.
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    14,953

    I finally got my synthetic voice. It takes a bit...

    I finally got my synthetic voice. It takes a bit of getting used to but it is definitely ME.
  11. Replies
    59
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    12,906

    Poll: My first noticeable symptom was slurred speech...

    My first noticeable symptom was slurred speech and it was about 5 months from onset to diagnosis.
  12. Replies
    37
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    14,953

    How long does ModelTalker take to produce your...

    How long does ModelTalker take to produce your synthetic voice once you've completed the 1600 sentences?
  13. Replies
    37
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    14,953

    Not sure yet but investigating this: ...

    Not sure yet but investigating this:

    https://www.tobiidynavox.com/en-GB/devices/Eye-Gaze-Devices/pceye-plus-access-windows-control/
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    37
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    14,953

    Yay! I just completed my 1600 ModelTalker...

    Yay! I just completed my 1600 ModelTalker sentence recordings. I found it best to move on after two or three attempts at difficult sentences the go back to all the 'yellows' at the end. The last 30...
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    37
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    14,953

    I think the charge ($100 = 80) only applies when...

    I think the charge ($100 = 80) only applies when you want to download your finished voice. You click on the 'Voices' tab then on 'Make Payment'.

    I was wondering if any special hardware was...
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    37
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    14,953

    I am now making reasonable progress with MTVR...

    I am now making reasonable progress with MTVR (ModelTalker Voice Recorder) and I have recorded 400 of the 1600 sentences required. For forward planning purposes, can anyone tell me what happens when...
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    37
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    14,953

    I had all sorts of problems with the web-based...

    I had all sorts of problems with the web-based version of the recorder, but when I switched to the stand-alone version MTVR I managed a lot better. There is a link to download MTVR on the ModelTalker...
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    I have been keeping a journal since I had a...

    I have been keeping a journal since I had a stroke 20 years ago. I find it very therapeutic in helping to organize my thoughts.

    I have also written two novels.
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    I have been receiving the lower rate of AA for a...

    I have been receiving the lower rate of AA for a couple of years because of a stroke. Being a pensioner, it certainly helps and it doesn't count against Pension Credit, unlike Carers Allowance. Now...
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    12,164

    I think my voice has deteriorated to the point...

    I think my voice has deteriorated to the point where I will need to use an actor's voice. These are available at http://www.modeltalker.org/demo
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    12,164

    I completed my ten test sentences on ModelTalker...

    I completed my ten test sentences on ModelTalker today. I had a few greens and a lot of yellows but no reds.

    Does anybody know how long it takes for ModelTalker to respond?
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    12,164

    I just started working with ModelTalker today,...

    I just started working with ModelTalker today, mainly getting things set up. In the next few days I will try recording and submitting my 10 model sentences.
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    The Southampton MND team is world class. After a...

    The Southampton MND team is world class. After a preliminary diagnosis in Portsmouth, I was sent to Southampton because they could do all the tests much quicker as an in-store.

    Hayling Island is a...
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    Thank you all for your warm welcome and kind...

    Thank you all for your warm welcome and kind words.
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    I'm actually fairly relaxed about the diagnosis....

    I'm actually fairly relaxed about the diagnosis. After all there is not much I could have done to prevent it and nothing I can do about it so I think staying positive is the best approach.

    I live...
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