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  1. Thread: Heartbroken

    by Ellie
    Replies
    27
    Views
    2,006

    Mick's funeral is today and his biker pals will...

    Mick's funeral is today and his biker pals will be there for him and his family - a touching send off to an avid biker....

    I'm sure Shrew will take some comfort that we're all thinking of her on...
  2. Thread: Broken wrist

    by Ellie
    Replies
    8
    Views
    154

    Sue, I'm so sorry you broke your wrist whilst...

    Sue, I'm so sorry you broke your wrist whilst caring for Steve - it not only shows how precarious a carer's role is but also shows the impact on the person with MND when their primary carer is out...
  3. Replies
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    3,031

    Hi Glos, I apologise, I did say I wouldn't...

    Hi Glos,

    I apologise, I did say I wouldn't bombard you but...

    I just reread your first post and wondered - did anyone say anything about having high muscle tone (spasticity) in your leg...
  4. Replies
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    Hi Hayls & welcome to the Forum but sorry you've...

    Hi Hayls & welcome to the Forum but sorry you've had to join.

    Glad the Sertraline is working for your EL.

    If you feel up to it, feel free to post in the Introduce Yourself sub-forum so people...
  5. Thread: Flail arm

    by Ellie
    Replies
    5
    Views
    287

    Welcome to the Forum, Happy Chappy. As Terry...

    Welcome to the Forum, Happy Chappy.

    As Terry said, try keep your joints moving, even passively if you can't manage it actively, but don't exercise to the point where it aches or takes long for the...
  6. Thread: Good news

    by Ellie
    Replies
    21
    Views
    563

    Oh that's uplifting news for you Lynne :cool: ...

    Oh that's uplifting news for you Lynne :cool:

    Wishing you many happy adventures.

    Love Ellie.
  7. Replies
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    Congrats Andy and well deserved!! Love Ellie.

    Congrats Andy and well deserved!!

    Love Ellie.
  8. Replies
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    2,879

    Yes me too, it means I can't use my eye gaze to...

    Yes me too, it means I can't use my eye gaze to explain what's so funny or chat for quite some time :D:D
  9. Replies
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    2,879

    Would you give the Citalopram another try Terry,...

    Would you give the Citalopram another try Terry, half a tablet even, as you said, given the side effects are usually transient?

    I hate the thoughts of you missing out socially :(

    Love Ellie.
  10. Replies
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    2,879

    Hi Dina, I'll give you my experience of my...

    Hi Dina,

    I'll give you my experience of my mild Emotional Lability (aka PBA PseudoBulbar Affect)

    I've the 'laughing type' too, which, if I could choose to have either the laughing or crying...
  11. Replies
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    3,031

    Oh Glos, I am so sorry and can understand why...

    Oh Glos, I am so sorry and can understand why it's all a blur for you and probably for your wife too.

    It'll take a while for it to sink in and the fog to clear, so I won't overwhelm you by saying...
  12. Thread: Struggling

    by Ellie
    Replies
    7
    Views
    426

    Hi Mama Rics, I am so sorry you're feeling...

    Hi Mama Rics,

    I am so sorry you're feeling like this.

    I can only echo the advice already given but would stress that it's not OK for your husband to demand that you, and you alone, should care...
  13. Replies
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    2,879

    Dina, I'm sorry but I copied and pasted your...

    Dina,

    I'm sorry but I copied and pasted your post out of Mama Ric's thread as I am sure you wouldn't want this sensitive topic to go off point and upset Mama Rics - I hope you are not...
  14. This MND Research blog is an update from a...

    This MND Research blog is an update from a clinical trial of Truimeq, a repurposed HIV drug.

    https://mndresearch.blog/2019/07/17/could-mnd-be-treated-by-hiv-drugs/

    Love Ellie.
  15. Replies
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    3,031

    All the best Glos. Hope you get even an...

    All the best Glos.

    Hope you get even an inkling as to what's going on with you.

    One thing to remember is that you're going to a very good & experienced Neurologist, which is great.

    Don't...
  16. Thread: Silverstone

    by Ellie
    Replies
    36
    Views
    1,562

    Oh no Barry, that sounds painful :(:( You know...

    Oh no Barry, that sounds painful :(:(

    You know yourself it could have been a lot worse so I won't lecture you on the importance of staying upright....

    Hope you heal quickly and glad your 'happy...
  17. Thread: Silverstone

    by Ellie
    Replies
    36
    Views
    1,562

    What an active day you had Terry! I managed to...

    What an active day you had Terry!

    I managed to propel my chair about 45m between the patio and the TV a few times, food pump attached :D:D

    Spent most of today outside making friends with a...
  18. Thread: Silverstone

    by Ellie
    Replies
    36
    Views
    1,562

    You mean you didn't watch that very exciting...

    You mean you didn't watch that very exciting tennis match???

    Wrong man won unfortunately :(:( but it was one epic match.
  19. Thread: Silverstone

    by Ellie
    Replies
    36
    Views
    1,562

    That was KJen Terry who bought tickets for her...

    That was KJen Terry who bought tickets for her husband.

    She last logged on 2 weeks ago but I hope they'd a great day if they went.

    Love Ellie.
  20. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,511

    Debbie, no harm in getting your GP to prescribe...

    Debbie, no harm in getting your GP to prescribe Cavilon or Proshield barrier cream for any vulnerable areas of your skin, i.e. any body part in constant contact, or almost constant contact, with a...
  21. Thread: Wow

    by Ellie
    Replies
    4
    Views
    431

    Wow indeed Doug. What an epic undertaking...

    Wow indeed Doug.

    What an epic undertaking these two ladies (& Alice the bike :)) have embarked on!!!

    They've a weekly blog on the website and are also on FB, Insta & Twitter - I don't think...
  22. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,511

    Before an area gets red Kayleigh, the skin often...

    Before an area gets red Kayleigh, the skin often first looks 'dry' or greyish and is a painless warning sign that the tissue below isn't happy - the redness and soreness appear later.

    And you...
  23. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,511

    It's bad but good that you know how serious...

    It's bad but good that you know how serious pressure sores can be, Dina.

    Do you think your air mattress and air cushion are good enough?

    Hope you don't have to wait long for your wheelchair...
  24. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,511

    Hi Dina, I'm sorry you've a sore bottom and I...

    Hi Dina,

    I'm sorry you've a sore bottom and I don't want to sound alarmist, but you need to act fast to stop the pressure area developing further.

    First off, your wheelchair cushion isn't good...
  25. Replies
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    14,512

    Hope you slept reasonably well after that...

    Hope you slept reasonably well after that ill-planned, traumatic day Douglas - you must have been exhausted :(

    So glad you're out of hospital... There's no place like home, as the saying...
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