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  1. Replies
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    That was probably me confusing the situation by...

    That was probably me confusing the situation by getting side-tracked by the issue of glutamate and mentioning Riluzole in my post - sorry!

    Kayleigh x
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    Hello Hettie, The patient information leaflet...

    Hello Hettie,

    The patient information leaflet about Riluzole lists possible side effects and recommends we speak to our Doctor if we experience any symptoms that could be side effects.
    ...
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    Good morning Doug, It's good to hear that your...

    Good morning Doug,

    It's good to hear that your shoulder is much less painful than it was.

    Please take extra care of yourself and I hope you are completely free of pain very soon.

    Love ...
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    I'm so sorry about your mum. You are obviously...

    I'm so sorry about your mum. You are obviously very close and it must have been such a terrible shock to hear such heartbreaking news.

    The hospice will be making sure that your mum is looked after...
  5. Thread: Terry

    by Kayleigh
    Replies
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    7,848

    Ooops I think that Terry might be giving me a...

    Ooops I think that Terry might be giving me a pinch for mentioning your music on this thread Graham.

    I find both your tastes ln music are interesting and it's good to be entertained by other...
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    Hello Kathryn, Thank you for kindly letting us...

    Hello Kathryn,

    Thank you for kindly letting us know how Dina's funeral went today.

    It's lovely to hear about the very fitting way that loved ones and friends paid their respects and ...
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    Dear Chrissie, Sorry to hear that your Gran's...

    Dear Chrissie,

    Sorry to hear that your Gran's health has become much worse. It must be very upsetting for you but I hope it is of some comfort that the hospice is making sure that your Gran is...
  8. Thread: Terry

    by Kayleigh
    Replies
    79
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    7,848

    Welcome home Terry! It's great to hear you are...

    Welcome home Terry! It's great to hear you are back home with your lovely wife and your home comforts.

    I expect you were purring with delight when you settled into your comfortable riser/recliner...
  9. Thread: New Guy :)

    by Kayleigh
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    202

    Hello Beemer, Sorry about your diagnosis but a...

    Hello Beemer,

    Sorry about your diagnosis but a very warm welcome to you and your wife.

    Your questions about working are good ones but not straight forward to answer as MND affects people in...
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    Good afternoon Lee, Thank you for kindly...

    Good afternoon Lee,
    Thank you for kindly responding to my post and for providing such a detailed explanation.

    Very best wishes to you and your family,
    Kayleigh
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    I find it interesting that part of the reason why...

    I find it interesting that part of the reason why the drug currently approved to treat Alzheimers has been chosen for this trial is that "it works by reducing the action of a brain chemical called...
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    Dear Debbie, Thank you for kindly sharing...

    Dear Debbie,

    Thank you for kindly sharing your good news. I've had a bit of post-Christmas blues but your message on this thread today has cheered me up and reminded me that, although Dina is...
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    There is also some advice about holiday insurance...

    There is also some advice about holiday insurance in the following information sheet about 'planning a holiday':-
    ...
  14. Thread: Terry

    by Kayleigh
    Replies
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    7,848

    Dear Terry, Great news that you should be...

    Dear Terry,

    Great news that you should be discharged from hospital on Monday. Hopefully, only 2 more sleeps (apart from any afternoon cat-naps) to go until home-time!

    I expect you are ready to...
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    Hello Boden and a warm welcome to you, I'm...

    Hello Boden and a warm welcome to you,

    I'm sorry your Grandad passed away and that your Dad has been diagnosed with MND.

    I expect your Dad will be proud of you for introducing yourself here and...
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    Hello Lee, The names of the drugs are listed...

    Hello Lee,

    The names of the drugs are listed on the EU clinical trials register:-

    http://https://www.clinicaltrialsregister.eu/ctr-search/trial/2019-000099-41/GB

    Best wishes,
    Kayleigh
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    A beautiful expression of your heartfelt thoughts...

    A beautiful expression of your heartfelt thoughts and feelings. Thank you for sharing your very special poem with us Sarah.
    Kayleigh x
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    Hi Jerry, I would have thought neurologists at...

    Hi Jerry,

    I would have thought neurologists at UCL would have been given advance notification about the launch of such a significant trial but perhaps your neurologist only found out about it when...
  19. Thread: Terry

    by Kayleigh
    Replies
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    7,848

    I'm always captivated by you TC - and even...

    I'm always captivated by you TC - and even behind your Santa disguise, I find your hypnotic cat's eyes, cheeky chuckles, and sunny (& sometimes saucy) sense of humour are purrrfectly irrisistable! ...
  20. Thread: Terry

    by Kayleigh
    Replies
    79
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    7,848

    Thank you for your message Grandad Richard. Terry...

    Thank you for your message Grandad Richard. Terry has mentioned you (and his wonderful days out with you) many times - and it's lovely to say hello to you.

    I havn't been annoying/entertaining...
  21. Thread: Terry

    by Kayleigh
    Replies
    79
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    7,848

    So sorry to hear you are still in hospital Terry...

    So sorry to hear you are still in hospital Terry and sorry you also have a nasty bug to deal with as well.

    I hope the doctors are able to provide some effective painkillers. Also, as you are not...
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    Hi Sarah, I don't have experience of using a...

    Hi Sarah,

    I don't have experience of using a beach wheelchair but the disability horizons website has information about where they can be hired in the UK and it also includes information about...
  23. Thread: Dina RIP

    by Kayleigh
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    Thank you for kindly letting us know the very sad...

    Thank you for kindly letting us know the very sad news Doug. Your tribute to Dina is beautifully written and is exactly how I will always remember her.

    Dina was genuinely concerned about people...
  24. Thread: Terry

    by Kayleigh
    Replies
    79
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    7,848

    Hi Terry, Very glad to hear from you again...

    Hi Terry,

    Very glad to hear from you again Terry. I miss your cheeky smile, if it doesn't pop up on the forum every day - but with no Internet at the hospital, I will let you off!

    Cooked...
  25. Thread: Terry

    by Kayleigh
    Replies
    79
    Views
    7,848

    Hi Terry, Sorry to hear that you are still in...

    Hi Terry,

    Sorry to hear that you are still in pain. Hopefully you will be provided with some effective pain relief and I hope you will be well enough to return home very soon.

    Thinking of you...
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