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    I think that you ought not move to a 2 bedroom...

    I think that you ought not move to a 2 bedroom terrace house. Stairs are always steep and soon your legs will likely be effected so stairs and normal bathrooms won’t suit. You need either a ground...
  2. Thread: This forum

    by Lynne K
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    Mathew, I don’t go on the FB forum much because...

    Mathew, I don’t go on the FB forum much because there is too many posts that I can cope with reading. There is a lot of people on it, current suffers, current carers and carers who!s loved ones have...
  3. Thread: MND and Covoid

    by Lynne K
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    I’m in Radcliffe so if you’re close enough, once...

    I’m in Radcliffe so if you’re close enough, once this lockdown for us is over we could meet in a cafe or something. Others would be welcome. It’s Middleton for the local MNDA get together. I’ve never...
  4. Thread: One good thing

    by Lynne K
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    That’s fab Mathew. Your round next :) , Lynne x

    That’s fab Mathew. Your round next :) , Lynne x
  5. Thread: This forum

    by Lynne K
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    Graham, I’m sorry that you feel that way. Can I...

    Graham, I’m sorry that you feel that way. Can I help at all? I’ve noticed a change in our forums recently but we’ve lost three of the most frequent and upbeat posters. I am still feeling a bit sad...
  6. Thread: MND and Covoid

    by Lynne K
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    I get a copy of my neurologists’ report to my GP...

    I get a copy of my neurologists’ report to my GP too. My last appointment was over WhatsApp and my next appointment is in about 2 weeks. They’re 3 monthly. I’m hoping that the up and coming...
  7. Thread: Hello Everyone

    by Lynne K
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    Hi Tess, well done for your courage to join this...

    Hi Tess, well done for your courage to join this forum. A great decision certainly. I’m sorry about the two year journey that you have both been on. It’s not surprising that you feel the need to...
  8. Thread: Lost

    by Lynne K
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    Jackie, I’m really sorry about the nightmare...

    Jackie, I’m really sorry about the nightmare journey that Andy and you have had up to now. I hope that now there’s a definite diagnosis then things can get moving on the support side. Does Andy...
  9. Thread: Understanding

    by Lynne K
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    If you have an iPad and an iPhone I think that...

    If you have an iPad and an iPhone I think that Predictable can make calls if they’re connected. Lynne
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    Sounds good Mathew, I’m still mostly eating...

    Sounds good Mathew, I’m still mostly eating normally. My only changes over the last few months is that I eventually realised that I’m intolerant to dairy. Long story but better since avoiding that....
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    Sounds great. Take care, Lynne x

    Sounds great. Take care, Lynne x
  12. Thread: Motability

    by Lynne K
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    Hi Beemer, there is an option for you to buy...

    Hi Beemer, there is an option for you to buy second hand if you can afford it. Well looked after WAVs tend to be sold on. They come up regularly of different years, mileage and manufacture. If...
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    Thanks for your reply Hayls and good luck with...

    Thanks for your reply Hayls and good luck with your op’ happening quickly and safely, love Lynne x
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    Hayls, Kate, Deb and Ellie, I too have been...

    Hayls, Kate, Deb and Ellie, I too have been thinking what to do in a similar situation that is looming. I’ve always tried to be one step ahead of my needs, but this one is more difficult for me to...
  15. Thread: Progression

    by Lynne K
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    Hi again Mathew, every mnd sufferer has a...

    Hi again Mathew, every mnd sufferer has a different journey but I can tell you my experience of leg stiffness (mine mainly lower legs). I’ve had stiffness in my lower legs for two years approximately...
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    Jo Jo, maybe needing a hoist is soon needed. If...

    Jo Jo, maybe needing a hoist is soon needed. If you’re struggling now it would be of use. A sit to stand one would probably do the job. Other people on the forum know more about this subject than me...
  17. Thread: Feeling Brave

    by Lynne K
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    You’re welcome Tess. Good luck, Lynne x

    You’re welcome Tess. Good luck, Lynne x
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    Hi Mathew, welcome to our forums. I’m sorry about...

    Hi Mathew, welcome to our forums. I’m sorry about your recent diagnosis and that you’ve lost your voice. Do you have anybody’s in your family with a similar voice to you? If so, would they be...
  19. Thread: Breathing

    by Lynne K
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    Hi Arta, I don’t know how to translate your...

    Hi Arta, I don’t know how to translate your results but I wanted to send you my thoughts and best wishes. Are you still doing breath stacking? I ought to get back to it. I hope that you can hold on...
  20. Thread: Feeling Brave

    by Lynne K
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    Hi Bilvers, welcome and good luck for your up and...

    Hi Bilvers, welcome and good luck for your up and coming hospital appointment. I was surprised to hear that there’s appointments being had during this pandemic but maybe first appointments have been...
  21. Thread: Feeling Brave

    by Lynne K
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    1,291

    Hi Tess, welcome. I’m sorry too for your...

    Hi Tess, welcome. I’m sorry too for your boyfriends diagnosis. It must be hard for you both. In a few weeks it’ll probably be a little easier for you since you’ll both have time to come to terms with...
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    Hi Stonehengeman, welcome aboard. You are lucky...

    Hi Stonehengeman, welcome aboard. You are lucky getting to 80ish before mnd took hold of you. But it’s horrid still. You mentioned losing your voice. Did you manage to bank your voice? If not, is...
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    Wow David that’s great. Please let me know how...

    Wow David that’s great. Please let me know how your voice works with Acapela and Prologue4Go, also how much Acapela charges you when you find out. Thanks, Lynne
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    Hi Jor, I saw your message yesterday but thought...

    Hi Jor, I saw your message yesterday but thought that I wasn’t qualified to respond. It’s good that Rachel from MND Connect has replied to you. I hope that you get some answers about your symptoms...
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    Hi David R, I have only had a few short tries...

    Hi David R, I have only had a few short tries with Predictable. The last time was several weeks ago. I remember some frustration not being able to correct individual letters, having to delete from...
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