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  1. Replies
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    This post seems like ages ago, I never did get...

    This post seems like ages ago, I never did get time to sort out a life insurance or an over 50's plan for Pete.
  2. Thread: Happy new year

    by Twinkle
    Replies
    25
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    4,851

    Lovely poem Kayleigh xx Happy New Year To You...

    Lovely poem Kayleigh xx

    Happy New Year To You All
    X X X X X X X X X X X X X X X X
  3. Thread: Sad news

    by Twinkle
    Replies
    19
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    3,114

    Hi, So sorry for you loss of your husband. I...

    Hi,

    So sorry for you loss of your husband. I only know too well what you're going through.
    If you want a chat you can pm me anytime.
    Sending hugs to you.
    XxxxxxxxxxX
  4. Replies
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    5,276

    My husband's hands had lost the muscle between...

    My husband's hands had lost the muscle between the thumb and 1st finger on both hands, also on the side of both hands. This happened a couple of months before diagnosis and I knew he'd be diagnosed...
  5. Thread: Boxes

    by Twinkle
    Replies
    17
    Views
    4,027

    Lovely poem penwiggle and I can relate to some of...

    Lovely poem penwiggle and I can relate to some of it.
    How are you doing after your friends passing? I feel lost and it's not quite sunk in yet that my darling isn't coming home.
    Sweet and loving...
  6. Replies
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    6,516

    You're welcome Kayleigh, wish I could hug you! X ...

    You're welcome Kayleigh, wish I could hug you! X
    I did feel angry that Pete's time was short from the MND and I unfollowd and left a few MND support groups, but I wanted to stay on this site as...
  7. Replies
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    6,516

    Thank you for your posts. Today, I picked up the...

    Thank you for your posts. Today, I picked up the death certificate and cause of death was Respiratory Failure through Progressive Motor Neurone Disease. I'm relieved that the Dr and Consultant didn't...
  8. Replies
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    6,516

    Pen, sounds like it's something we as a family...

    Pen, sounds like it's something we as a family would do! My husband liked the light banter we all have between us so we carried that on in his final minutes.

    I have to say it's like I'm living in...
  9. Replies
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    18,305

    I feel so much love for all your messages of help...

    I feel so much love for all your messages of help and advice for my darling when he was in hospital. I didn't have time to add that my husband had a perforation in his lower bowel which was leaking...
  10. Replies
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    Thanks Terry and Kayleigh. My darling was a brave...

    Thanks Terry and Kayleigh. My darling was a brave fella, always thinking of people besides himself. He even wanted to organ donate but they politely refused because of his MND.
    I do believe in a...
  11. Replies
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    Thank you for your poem Kayleigh xxx It made me...

    Thank you for your poem Kayleigh xxx
    It made me cry, but not with sadness, but with the love I feel for my darling Peter and that you took the time to write me a poem.
    Thank you very much...
  12. Replies
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    6,516

    Thank you all for your messages. Although Pete...

    Thank you all for your messages. Although Pete was only diagnosed on 3rd October we feel he had symptoms from Sept last year. Thank God for mobile phones as we're a video/photo taking family and we...
  13. Replies
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    6,516

    My darling Peter

    Hi all, my darling husband Peter died today at 13.22pm. He was the love of my life for 30 years. I shall miss him terribly.
    He fought until the end, such a fighter that's my Pete xxxxxxx
    Thank you...
  14. Replies
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    Thanks all for your kind messages. My husband is...

    Thanks all for your kind messages. My husband is still in hospital, bipap on maximum, good results from the blood gases, blood markers are up and down, he has some liquid at the bottom of his lungs...
  15. Survey completed.

    Survey completed.
  16. Replies
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    Hi, Can I have some advice please, hubby's...

    Hi, Can I have some advice please, hubby's reading is 89% and he's on the maximum levels on the Bipap machine. Is there anything these Dr's should be aware of? They're talking of turning of the...
  17. Replies
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    Lol at Mr Twinkle :) He's slightly improved,...

    Lol at Mr Twinkle :)

    He's slightly improved, the nurse mentioned that some reading was at 93% & they'd like to see it higher before they'll wean him off the Bipap machine.

    There was phelm in...
  18. Replies
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    Thanks Boiler and Terry, I've been having plenty...

    Thanks Boiler and Terry, I've been having plenty of rests thanks.

    Dr's say hubby's pneumonia is most likely aspiration pneumonia and it's mainly in his right lung.
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    Ellie, I've attached a photo of the machine...

    Ellie, I've attached a photo of the machine readings.
  20. Replies
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    Thanks everyone for your replies, it helps me so...

    Thanks everyone for your replies, it helps me so much to not to be alone through MND as we're the only one here on a ward of 27 with MND.
  21. Replies
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    Hi all, my husband is on the Bipap machine still...

    Hi all, my husband is on the Bipap machine still at hospital, his lung infection got worse overnight so they put him on the Bipap. His recent blood gases show some improvement. It's very hard to...
  22. Replies
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    Hi all, My husband has a lung infection and...

    Hi all, My husband has a lung infection and sepsis, he's so ill, he's in a good place here on the Cardio - Respitory ward. He's been in hospital now for 15 days. He's on NIV and his breathing has...
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    Ellie, I'll mention the Bipap machine when I...

    Ellie, I'll mention the Bipap machine when I visit today, the nurse has said that he's now got a chest infection from being in hospital and is on anti-biotics, pneumonia was mentioned. That would...
  24. Replies
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    Thanks Kayleigh, Yes, my daughter lives with me...

    Thanks Kayleigh, Yes, my daughter lives with me and another daughter across the road from me, and a son 20 mins away also a few neighbours who'd help me if needed. It'll be 2 weeks on Monday he's...
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    Thanks Kayleigh and Shrew. My husband is still...

    Thanks Kayleigh and Shrew. My husband is still poorly, he's just not himself, he has a 'vacant' look about him. I think it's maybe his medication, he's had 8 days without his Sertraline so I'm...
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