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  1. Thread: hi

    by Terry
    Replies
    15
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    320

    Hi Maz, It is uncommon when it's colder. I...

    Hi Maz,

    It is uncommon when it's colder. I think it's down to poor circulation, in the winter I have a blanket tucked in over them and sometimes a hot bag that's warm.

    Hope that you get them...
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    Hi Vix; I thought that there was so much...

    Hi Vix;

    I thought that there was so much information in the above posts that it scared you away.

    Love Terry
  3. Replies
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    Hi Vic and welcome to the forum ; Sorry to...

    Hi Vic and welcome to the forum ;

    Sorry to hear about your husband's diagnosis and problems.

    There are around eleven types of Mnd so it would probably be good to get it narrowed down a bit.
    ...
  4. Thread: Falling !

    by Terry
    Replies
    6
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    318

    Hi Debbie, Sorry to hear about your fall and...

    Hi Debbie,

    Sorry to hear about your fall and subsequent situation. Beware of strong pain killers as they normally make people Constipated and that can be dangerous.

    Do they know what what is...
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    Hi Andy ; Your wife is right, if you have limb...

    Hi Andy ;

    Your wife is right, if you have limb onset ALS you would not be walking much at all.

    I have a slow type of Mnd and I couldn't walk unaided after two years.

    Mnd has many symptoms...
  6. Replies
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    Hi Tony; You could contact Mnda Connect,...

    Hi Tony;

    You could contact Mnda Connect, explain the situation and ask them to give your email and phone number to Sammy 's wife. They must have their details as they gave a contribution towards...
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    These are some of the one's that some of us know;...

    These are some of the one's that some of us know;

    https://www.youtube.com/watch?v=BnRsaHXHznQ

    https://www.youtube.com/watch?v=5BmEGm-mraE
  8. Replies
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    505

    Hi Tony; Sammy's wife has not logged on since...

    Hi Tony;

    Sammy's wife has not logged on since the 10th, I guess she will soon.

    I know quite a bit about Genie chairs if you have any general questions, you are welcome to PM me.

    Love Terry
  9. Thread: Clothing?

    by Terry
    Replies
    4
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    312

    Hi Ellie, Thanks for the links and I am sure...

    Hi Ellie,

    Thanks for the links and I am sure that they will be useful for some people. The second link does make elastic waist ones as well.

    Love Terry
  10. Replies
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    Hi vicky, It's sort of a buy product, it's air...

    Hi vicky,

    It's sort of a buy product, it's air moving around the stomach and intestine.

    Probably caused by, eating not having a good posture, gulping air into it, not moving around or standing...
  11. Replies
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    10,361

    Hi Dis, I would have thought that they would...

    Hi Dis,

    I would have thought that they would have to do a RIG feeding tube opp because of your breathing. I think that still involves a very small tube going up your nose but I would have thought...
  12. Thread: Cbd

    by Terry
    Replies
    7
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    488

    Hi jonboy, How many drops do you have, when...

    Hi jonboy,

    How many drops do you have, when and how?

    I have tried cbd but a different brand and it didn't make much difference to me.

    Love Terry
  13. Replies
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    Don't think I'll be visiting you if that's the...

    Don't think I'll be visiting you if that's the type of thing you watch, Douglas;

    I guess they puree together and it's served near cold. You seem to be having enough fluid.

    I hope CO level...
  14. Replies
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    505

    Sorry to hear of your husband, Sammuel's passing;...

    Sorry to hear of your husband, Sammuel's passing;

    I hope you've had plenty of support from family and friends.

    Nice video, I have had Genie wheelchairs for over seven years but didn't get on...
  15. Replies
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    Hi MMW: You could cut them in half, they would...

    Hi MMW:

    You could cut them in half, they would be about 4 kg each and about 9 inches wide. You would probable need someone with a good band saw. You probably would not want them 19 inches wide...
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    Yes MMW: They would certainly do the job but...

    Yes MMW:

    They would certainly do the job but quite heavy at 16 kg, I guess that's 8 kg each but worth checking before you order.
    Also they have a slight curve in them and they would have been...
  17. Thread: Speech apps

    by Terry
    Replies
    2
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    291

    Hi Polly; Don't know much about I Pads, I know...

    Hi Polly;

    Don't know much about I Pads, I know that many tablet computers have a very low volume when speaking. I understand that the new I Pads are much louder but very expensive at around 」700....
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    Hi MMW; This is the type of ramp I'm thinking...

    Hi MMW;

    This is the type of ramp I'm thinking of:-...
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    That's very frustrating MMW, That sounds like...

    That's very frustrating MMW,

    That sounds like it could always be a risk and if you go out and come back to find a similar thing, disaster.

    The council might put some yellow lines down and even...
  20. Replies
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    10,361

    That's a bit better, Douglas, I would like to...

    That's a bit better, Douglas,

    I would like to see below 5 in a few days.

    What do you watch on TV?

    Love Terry
  21. Replies
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    10,361

    Hi Douglas ; Something seems very wrong from...

    Hi Douglas ;

    Something seems very wrong from the beginning. I am no expert to say the least but I fail to see how your CO2 levels have not decreased, especially as you have managed to stay on it...
  22. Replies
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    10,361

    I think that I would struggle to get a jaffa cake...

    I think that I would struggle to get a jaffa cake down because of the different textures. Like Ellie, I also don't like them.

    Just because you have had a bit of liquid go down the wrong way when...
  23. Replies
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    10,361

    Hi Dis; Did you give Ellie the settings etc. ...

    Hi Dis;

    Did you give Ellie the settings etc.

    I do hope you haven't got restricted internet like Dina says, it is wrong, especially for us.

    Love Terry
  24. Thread: Mum with MND

    by Terry
    Replies
    12
    Views
    1,393

    Hi Roo and welcome to the forum; I take longer...

    Hi Roo and welcome to the forum;

    I take longer to process things, guess it takes a couple of seconds to move my head and then I have to make sure I am not going to chock by swallowing sometimes...
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    Yes, Trump attacked The Mayor straight away, I...

    Yes, Trump attacked The Mayor straight away, I think before getting off of the plane. I guess Khan is a much better man, mind you that would not be hard.
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