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  1. Thread: Silverstone

    by Ellie
    Replies
    23
    Views
    263

    What an active day you had Terry! I managed to...

    What an active day you had Terry!

    I managed to propel my chair about 45m between the patio and the TV a few times, food pump attached :D:D

    Spent most of today outside making friends with a...
  2. Thread: Silverstone

    by Ellie
    Replies
    23
    Views
    263

    You mean you didn't watch that very exciting...

    You mean you didn't watch that very exciting tennis match???

    Wrong man won unfortunately :(:( but it was one epic match.
  3. Thread: Silverstone

    by Ellie
    Replies
    23
    Views
    263

    That was KJen Terry who bought tickets for her...

    That was KJen Terry who bought tickets for her husband.

    She last logged on 2 weeks ago but I hope they'd a great day if they went.

    Love Ellie.
  4. Thread: Pressure Sores

    by Ellie
    Replies
    25
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    12,252

    Debbie, no harm in getting your GP to prescribe...

    Debbie, no harm in getting your GP to prescribe Cavilon or Proshield barrier cream for any vulnerable areas of your skin, i.e. any body part in constant contact, or almost constant contact, with a...
  5. Thread: Wow

    by Ellie
    Replies
    4
    Views
    299

    Wow indeed Doug. What an epic undertaking...

    Wow indeed Doug.

    What an epic undertaking these two ladies (& Alice the bike :)) have embarked on!!!

    They've a weekly blog on the website and are also on FB, Insta & Twitter - I don't think...
  6. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,252

    Before an area gets red Kayleigh, the skin often...

    Before an area gets red Kayleigh, the skin often first looks 'dry' or greyish and is a painless warning sign that the tissue below isn't happy - the redness and soreness appear later.

    And you...
  7. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,252

    It's bad but good that you know how serious...

    It's bad but good that you know how serious pressure sores can be, Dina.

    Do you think your air mattress and air cushion are good enough?

    Hope you don't have to wait long for your wheelchair...
  8. Thread: Pressure Sores

    by Ellie
    Replies
    25
    Views
    12,252

    Hi Dina, I'm sorry you've a sore bottom and I...

    Hi Dina,

    I'm sorry you've a sore bottom and I don't want to sound alarmist, but you need to act fast to stop the pressure area developing further.

    First off, your wheelchair cushion isn't good...
  9. Replies
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    Hope you slept reasonably well after that...

    Hope you slept reasonably well after that ill-planned, traumatic day Douglas - you must have been exhausted :(

    So glad you're out of hospital... There's no place like home, as the saying...
  10. I'm so glad things are a wee bit brighter...

    I'm so glad things are a wee bit brighter Wailywoo - hopefully once he gets the walkers he can feel more confident about getting around the place safely, and find his mojo...

    We can be a...
  11. Thread: Sam

    by Ellie
    Replies
    2
    Views
    288

    Hi Sam & welcome. These links show current...

    Hi Sam & welcome.

    These links show current trials in the UK:

    https://clinicaltrials.gov/ct2/results?recrs=ab&cond=Amyotrophic+Lateral+Sclerosis&term=&cntry=GB&state=&city=&dist=
    ...
  12. Replies
    205
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    14,213

    Great news Douglas. Are your CO2 levels under...

    Great news Douglas.

    Are your CO2 levels under control then?

    Love Ellie.
  13. Sorry Doug, IDK how I somehow missed this thread ...

    Sorry Doug, IDK how I somehow missed this thread :rolleyes:

    That's great news on being 5 years cancer free.

    That's one nail you can take out of your coffin ;)

    Love Ellie.
  14. Replies
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    Barry, Any idea if it'll be videoed and...

    Barry,

    Any idea if it'll be videoed and available to view afterwards?

    I get the live streaming attendance v cost issue - I am an avid attendee on MND-related live stream events, but...
  15. Replies
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    Welcome to the Forum Watty and sorry for your...

    Welcome to the Forum Watty and sorry for your mum's diagnosis - it's a lot to take in.

    No one knows what life expectancy PBP, or any other MND, carries with it and people vary widely in how long...
  16. Wailywoo, I am so sorry he rebukes every offer...

    Wailywoo, I am so sorry he rebukes every offer of help, this must be so difficult for you - A) he's making his own life more difficult, precarious and painful and B) he's making your life more...
  17. Replies
    3
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    281

    Did you buy the article and read it Andy?

    Did you buy the article and read it Andy?
  18. That is absolute tripe, to be blunt!! Your...

    That is absolute tripe, to be blunt!! Your husband clearly has a genuine need for a wheelchair for indoors & outdoors. (by the sounds of it, he'll need a ramp at the front door but that's not a big...
  19. And, my heart breaks for you Wailywoo - you...

    And, my heart breaks for you Wailywoo - you must be desperately overwhelmed by having to cope both physically and emotionally with caring for your beloved with his relentlessly progressing MND :(...
  20. Michael, that is the only relevant information...

    Michael, that is the only relevant information you posted.

    People with MND do NOT have normal physical exams nor EMGs.

    Love Ellie.
  21. Thread: Sandpiper

    by Ellie
    Replies
    11
    Views
    831

    Hi Sandpiper and welcome. Sorry you've had to...

    Hi Sandpiper and welcome.

    Sorry you've had to join the Forum.

    Love Ellie.
  22. Thread: update...

    by Ellie
    Replies
    20
    Views
    1,788

    Take Part in... Location, Location, Location ...

    Take Part in...

    Location, Location, Location https://www.channel4.com/4viewers/take-part/location-location-location

    DIY SOS http://www.bbc.co.uk/showsandtours/takepart/diy_sos

    You never...
  23. Thread: update...

    by Ellie
    Replies
    20
    Views
    1,788

    May I ask Andy if you got/are getting a Tobii 4C?...

    May I ask Andy if you got/are getting a Tobii 4C? Or a different one?

    And "the experts" - are they AAT, techie mates or paid IT pros?

    Love Ellie.
  24. Replies
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    694

    Oh my days Debbie, you must have been in a lot of...

    Oh my days Debbie, you must have been in a lot of pain :(

    Yes indeed, a good message for us all - don't put all our ailments down to our MND...

    I wish you a speedy recovery and hope your...
  25. Replies
    12
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    949

    Good morning Dina. Sorry your progression is...

    Good morning Dina.

    Sorry your progression is relentless - there's not a lot I can say to sugar coat your situation.

    My ALS/MND started in my hand and my arms went pretty quickly (legs too,...
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