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  1. Thread: Silverstone

    by Barry52
    Replies
    23
    Views
    263

    Confession time. I fell last Wednesday and...

    Confession time.

    I fell last Wednesday and fractured 2 vertebrae. I’m now on the happy juice.

    Love,
    Barry
  2. Thread: Silverstone

    by Barry52
    Replies
    23
    Views
    263

    Thanks for my daily dose of humour Kayleigh. Yes...

    Thanks for my daily dose of humour Kayleigh. Yes a great weekend of sport and I enjoyed the cricket (different game Terry from the 4 day competitions) the best F1 race this year and the tennis.
    ...
  3. Replies
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    Andy, I look forward to meeting you on...

    Andy,

    I look forward to meeting you on Saturday. I assume you will be there?

    The MNDA are no longer live streaming the conference due to cost and lack of use. I support this decision as the...
  4. Hi Wailywoo, It is quite common for people...

    Hi Wailywoo,

    It is quite common for people with MND to be in denial and that makes it difficult for their carer. As Ellie has pointed out the statement from the OT is clearly based on poor...
  5. Thanks for this. Can you please clarify if...

    Thanks for this.

    Can you please clarify if this applies to android and iOS.

    Barry
  6. Hi Wailywoo, You are welcome to let off steam...

    Hi Wailywoo,

    You are welcome to let off steam here as we all understand what you and your husband especially are going through.

    Some people have a severe reaction to riluzole but most tolerate...
  7. Thread: Eye Control

    by Barry52
    Replies
    0
    Views
    149

    Eye Control

    Hello all,

    I want to share with you this update from eyecontrol who presented the equipment to our Nottingham MND group last month. Like all technology the system will drop in price as it gains...
  8. Thread: Sandpiper

    by Barry52
    Replies
    11
    Views
    831

    Hello and welcome Sandpiper. Sorry to hear of...

    Hello and welcome Sandpiper.

    Sorry to hear of your diagnosis but you will find friendship and advice from our “family”. Like you I enjoyed gardening but now I sit outside with the Sunday papers...
  9. Replies
    9
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    694

    Hi Debbie, I’m sorry to hear that your health...

    Hi Debbie,

    I’m sorry to hear that your health has worsened following your fall but I hope the medics can ease your pain. Who would have thought that you need an adapted wheelchair to support a leg...
  10. Replies
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    949

    Hi Dina, I am saddened that you have...

    Hi Dina,

    I am saddened that you have progressed to this but you still have a wonderful mind that you express so well in words. I hope you find a way of continuing to post on this forum.

    Despite...
  11. Thread: Heartbroken

    by Barry52
    Replies
    22
    Views
    1,725

    I am so sorry to hear that you have lost your...

    I am so sorry to hear that you have lost your beloved Mick. Please don’t blame yourself Shrew as we never know when our time is up and you certainly did everything possible to make his life...
  12. Replies
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    807

    Welcome Ben to the “family”. No one wants to be...

    Welcome Ben to the “family”. No one wants to be here but we gain strength from each other and as you point out the shared knowledge is invaluable.

    You offer a detailed story of your journey so far...
  13. Thread: Hi, Im Juan

    by Barry52
    Replies
    17
    Views
    1,426

    Hello and welcome Juan. I wish you well with...

    Hello and welcome Juan.

    I wish you well with your project and I hope you can understand the banter between Kayleigh and Terry. It made me laugh and we need more humour in our lives.

    Barry
  14. Replies
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    Hi Dina, Well done for researching this....

    Hi Dina,

    Well done for researching this. Another example of how drug suppliers exploit people desperate for a cure.

    Barry x
  15. Thread: New member

    by Barry52
    Replies
    16
    Views
    1,342

    Hi Madhur and welcome to our forum family. You...

    Hi Madhur and welcome to our forum family. You add to the list of two or three people from India who occasionally post on here. I wish you well on your journey with MND and if you need advice then...
  16. Replies
    2
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    284

    Hi Ellie, For the first time in years I have...

    Hi Ellie,

    For the first time in years I have not got anything booked in advance and I am saddened. We have our son’s wedding in August when he returns from Tokyo. We will return to Egypt in...
  17. Thread: Soccer

    by Barry52
    Replies
    2
    Views
    185

    Hi CC, Enjoyed watching your team beat France...

    Hi CC,

    Enjoyed watching your team beat France tonight and looking forward to seeing the match between England and USA on Tuesday.

    Love Barry xx
  18. Replies
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    284

    Where there’s a will, there’s a way.

    The website for this forum inverted my photo attachment.


    1044
    1045
    Determined to get into the sea I was happy to use the services offered by our hotel and resort in Italy. I booked the holiday...
  19. Replies
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    5,716

    Hi Panniertank, I posted this on another...

    Hi Panniertank,

    I posted this on another thread.
    You have had great medical advice from our forum family so far and when you have the meeting with the medical team you might want to ask about...
  20. Replies
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    Hi Doug, You have had excellent advice from...

    Hi Doug,

    You have had excellent advice from our members and as a regular air traveler I offer my experiences.

    It is the airport ground crew who are responsible for assisted travel and some...
  21. Thread: Pinkelle 💕

    by Barry52
    Replies
    14
    Views
    1,133

    I am so saddened to hear that we have lost our...

    I am so saddened to hear that we have lost our wonderful Pink. May she rest in peace now.

    Eleanor brought so much to this forum family and she will be sorely missed. My condolences go out to her...
  22. Thread: tandem jump

    by Barry52
    Replies
    23
    Views
    1,714

    Thanks for posting the link Ellie. I have just...

    Thanks for posting the link Ellie. I have just listened to the interview and Maz does a good job of promoting MNDA. Good luck with the weather and the jump Maz.

    Barry
  23. Thread: Eye control

    by Barry52
    Replies
    5
    Views
    632

    Hello Andy, I read you have been busy recently...

    Hello Andy,

    I read you have been busy recently and I guess it’s all about campaigning for your election to the board of trustees for MNDA. I have cast my votes but like Our PM I’m not giving any...
  24. Replies
    11
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    1,072

    Hello Vix123 and welcome to you and your husband....

    Hello Vix123 and welcome to you and your husband.

    You have had great medical advice from our forum family so far and when you have the meeting with the medical team you might want to ask about...
  25. Thread: Eye control

    by Barry52
    Replies
    5
    Views
    632

    Eye control

    We had a presentation of this device yesterday at our Nottingham branch meeting. The demonstration was well received by our members and for anyone who has lost the use of their arms it will be...
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