Search:

Type: Posts; User: Music man's wife

Page 1 of 3 1 2 3

Search: Search took 0.05 seconds.

  1. Replies
    28
    Views
    3,362

    I'm so sorry to hear of the loss of your lovely...

    I'm so sorry to hear of the loss of your lovely husband. I'm sending a hug. Please take care.
  2. Replies
    28
    Views
    3,362

    Hello Wailywoo. I'm very impressed with how you...

    Hello Wailywoo. I'm very impressed with how you are managing with a difficult situation.
    I wonder if it would be worthwhile contacting the consultant 're your concerns, failing that leaving a...
  3. Replies
    55
    Views
    11,507

    I'm so sorry to hear of the loss of your...

    I'm so sorry to hear of the loss of your wonderful husband, please take care x
  4. Replies
    48
    Views
    5,859

    Thinking of you and your Grandmother Chrissie x

    Thinking of you and your Grandmother Chrissie x
  5. Replies
    97
    Views
    17,293

    Hello Panniertank. I'm really sorry things aren't...

    Hello Panniertank. I'm really sorry things aren't good for you. You may remember me my husband has the same arthritic condition as you.

    We looked into extra care housing, the cost was horrific....
  6. Replies
    173
    Views
    17,735

    That's the one! It's great for during the day as...

    That's the one! It's great for during the day as hubby doesn't have to have the mask on. Like I said its fairly unobtrusive and as the ventilator is portable and runs on batteries you can go out and...
  7. Replies
    173
    Views
    17,735

    Hello Dina. Hubby has been on ventilation for...

    Hello Dina.
    Hubby has been on ventilation for over a year now. We do put on dressings on his nose and gel strips on his neck. All to stop the straps digging in.
    During the day he has an identical...
  8. Replies
    9
    Views
    1,901

    Hello there Sue, sorry to hear about your wrist....

    Hello there Sue, sorry to hear about your wrist. I hope you're on the mend.
    My hubby got CHC in January. The district nurses applied on our behalf with advice from our MND nurse.
    It was for us a...
  9. Hello there, sorry things are tougher for you...

    Hello there, sorry things are tougher for you than they should be during a tough time.

    're the OT might it be useful to speak to their manager and ask for someone with experience of MND? Honestly...
  10. Replies
    35
    Views
    5,734

    I voted for you, hopefully you were the Andrew...

    I voted for you, hopefully you were the Andrew option!
    Will ask hubby to do the same.
  11. Replies
    4
    Views
    975

    The last time we went to Florida hubby got really...

    The last time we went to Florida hubby got really good insurance with Saga.
  12. Replies
    56
    Views
    11,716

    Thanks for the update, I was wondering how you...

    Thanks for the update, I was wondering how you got on.
    Best wishes for the future.
  13. Replies
    27
    Views
    4,252

    I'm so sorry to hear about your dear Mick. X

    I'm so sorry to hear about your dear Mick. X
  14. Replies
    6
    Views
    1,541

    Regarding the U.S. U.K. difference could that be...

    Regarding the U.S. U.K. difference could that be down to the cost of healthcare? A lot of people will have no insurance and limited access to health services.
  15. Thread: Taste

    by Music man's wife
    Replies
    10
    Views
    1,984

    Not taste but hubby says he smells smoke and he...

    Not taste but hubby says he smells smoke and he feels his lungs are full of smoke. He can't take Riluzole as he has fibrosis of the lungs.
  16. Replies
    20
    Views
    3,292

    Oops meant manual. Had a Basil moment there! ...

    Oops meant manual. Had a Basil moment there!

    Well done with the car Ann. It will make things so much easier.
  17. Replies
    20
    Views
    3,292

    Lynne if you go for the automatic make sure it's...

    Lynne if you go for the automatic make sure it's a full automatic engine not an adapted one. That isn't a very good description but you get the hang of it.
    Our Peugeot WAV from Allied is the adapted...
  18. Replies
    12
    Views
    3,626

    Yes, thanks again. I didn't realise those rubber...

    Yes, thanks again. I didn't realise those rubber ones were so heavy!
  19. Replies
    12
    Views
    3,626

    Thanks for that Terry, I like the look of those...

    Thanks for that Terry, I like the look of those rubber ones.
  20. Replies
    12
    Views
    3,626

    Thanks all. Some really good advice here. I'll...

    Thanks all. Some really good advice here. I'll contact the council tomorrow and will also ask the OT for the kerb ramp, that could solve a lot of problems.
  21. Replies
    12
    Views
    3,626

    Just a little rant!

    Very frustrating today as we were going to have a trip out.
    A car is parked right on the pavement so we can't get the electric wheelchair out. Access to our bungalow is from the back along the...
  22. Replies
    214
    Views
    22,321

    I'm sorry to hear them things aren't sorted yet....

    I'm sorry to hear them things aren't sorted yet. Round our way the machines are managed by respiratory physiotherapists.
    I know they have tweaked hubbies machine so it doesn't alarm so often.
    Hope...
  23. Thread: house

    by Music man's wife
    Replies
    5
    Views
    1,033

    We've had a ceiling hoist installed. It looked...

    We've had a ceiling hoist installed. It looked like they drilled a couple of holes in the ceiling and supported it on the joists.
    So as long as you're on the top floor it's doable without too much...
  24. Replies
    16
    Views
    3,851

    I can tell you how things worked for us. Even...

    I can tell you how things worked for us.
    Even before diagnosis it was apparent our three story house wasn't suitable for hubby. After an OT assessment it was confirmed our house couldn't be adapted...
  25. Replies
    14
    Views
    2,223

    Hello Lynne, we are staying near Great Yarmouth...

    Hello Lynne, we are staying near Great Yarmouth on a massive holiday park. It is adapted with ramp and wet room.
    We have been using Haven and their adapted caravans are nice but there is never a...
Results 1 to 25 of 51
Page 1 of 3 1 2 3