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  1. Thread: Rch4

    by Ellie
    Replies
    391
    Views
    99,047

    Hi Lynne, Please don't take the rebuttal you...

    Hi Lynne,

    Please don't take the rebuttal you read as being unbiased.

    Love Ellie.
  2. Replies
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    :D:D Miranda, every little helps !

    :D:D Miranda, every little helps !
  3. Replies
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    13,709

    Hi Dina, Wishing your friend the best of luck...

    Hi Dina,

    Wishing your friend the best of luck in her IVF.

    My cousin gave birth to twin boys in Setember after her third round of IVF - an emotional rollercoaster to say the least ....

    My...
  4. Replies
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    687

    Hi Chas, I was thinking about you in the wee...

    Hi Chas,

    I was thinking about you in the wee hours this morning as I was doing some shoulder movement exercises to while away time !!

    I have minimal movement but can just about do sets of...
  5. Thread: Frieda

    by Ellie
    Replies
    38
    Views
    2,187

    I'm really worried about your weight Frieda - ...

    I'm really worried about your weight Frieda - (not wanting to pry or lecture you) 40kg is very light and I doubt you're taking enough calories to give you enough energy to function, with or without...
  6. Replies
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    889

    In that case Barbara, look for a manual...

    In that case Barbara, look for a manual wheelchair with a high back for upper body and neck/head support and, preferably, can recline. Footrests should be adjustable too.

    The cheaper 'transit'...
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    14
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    687

    How fortuitous to have your good lady with such...

    How fortuitous to have your good lady with such valuable experience Chas.

    If the pressure relieving mattress is not doing its job, your community nurse should organise an appropriately comfortable...
  8. Thread: Jordan farrell

    by Ellie
    Replies
    28
    Views
    1,463

    Jordan, yes anxiety can cause real physical...

    Jordan, yes anxiety can cause real physical symptoms.

    I think you are right to see a Neurologist for peace of mind.

    Whilst waiting for that appointment, for your own sake, do try and manage...
  9. Thread: Jordan farrell

    by Ellie
    Replies
    28
    Views
    1,463

    Jordan, please be honest and open with your GP...

    Jordan, please be honest and open with your GP re your anxieties and your symptoms, and how your life is being affected, both physically & mentally.

    If that GP doesn't take you seriously, change...
  10. Thread: Frieda

    by Ellie
    Replies
    38
    Views
    2,187

    Thanks for the update Frieda - onwards &...

    Thanks for the update Frieda - onwards & upwards (hopefully!)
  11. Thread: Jordan farrell

    by Ellie
    Replies
    28
    Views
    1,463

    Hi Jordan, Sorry you're having those symptoms....

    Hi Jordan,

    Sorry you're having those symptoms.

    They don't sound like MND symptoms at all - what did your GP say?

    Love Ellie.
  12. Replies
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    6,421

    Yeah Andy, and I use eye gaze to type, hence the...

    Yeah Andy, and I use eye gaze to type, hence the acronyms....
  13. Replies
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    379

    Jerry, I'm not surprised you're finding life in...

    Jerry, I'm not surprised you're finding life in London so difficult, given who and what you left behind in Thailand....

    Hope you find suitable accommodation ASAP.

    Sending you a big hug.
    ...
  14. Replies
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    64,446

    Was it the Charleston or the Jive that reminded...

    Was it the Charleston or the Jive that reminded you of your youth, Barry ?? I'm teasing ;)

    Great Jailhouse Rock last night - were you as nimble as Kelvin back in the day?

    Love Ellie.
  15. Replies
    43
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    6,421

    Hi Andy, If you want to know how your...

    Hi Andy,

    If you want to know how your breathing is doing, the “alphabet soup” (nice one :)) of data is how you track it.

    As our diaphragm and intercostal muscles weaken, it affects how much...
  16. Sarah, absolutely nothing wrong with having an...

    Sarah, absolutely nothing wrong with having an occasional duvet day 😀

    I am a great believer in using any aid which conserves my energy - although I fully understand why many people struggle...
  17. Thread: Frieda

    by Ellie
    Replies
    38
    Views
    2,187

    Hope it goes well for you this time Frieda - ...

    Hope it goes well for you this time Frieda - good luck!
  18. Replies
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    379

    Jerry, Have you tried the specialist home swap...

    Jerry,

    Have you tried the specialist home swap websites too? For example HomeSwapper & Glassbob, to name just two.

    Hope you're doing as well as possible?

    Love Ellie.
  19. Hi Sarah, (MND Connect are off until Monday,...

    Hi Sarah,

    (MND Connect are off until Monday, so I'll give you my thoughts)

    I'm sorry you're feeling despondent, I don't blame you, you're at a very difficult stage of the disease :(

    I also...
  20. Replies
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    13,709

    Oh Miranda, that must have been very stressful...

    Oh Miranda, that must have been very stressful for you all. Glad to hear hubby is safely home in his own bed, hope his recovery goes well.

    Kudos to your boys.

    The first of many grocery...
  21. Replies
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    889

    Barbara, that's horrific treatment of your dad!...

    Barbara, that's horrific treatment of your dad!

    There are various different drive control options on a powerchair and the MNDA have special wheelchair specs with 3 manufacturers, all giving head...
  22. Oh Barbara, I am so sorry you're going through...

    Oh Barbara, I am so sorry you're going through all this - it must be very stressful for you all :(

    I guess your dad has lost control of so many area of his daily life and he is exerting control...
  23. Replies
    8
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    618

    Twiching is VERY, VERY COMMON among the the...

    Twiching is VERY, VERY COMMON among the the general popoulation - it means nothing and is certainly not MND in the absence of clinical weakness and very abnormal EMG test results.

    Please realise...
  24. Replies
    240
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    13,709

    Yes, kudos to you Barry for braving the roads. ...

    Yes, kudos to you Barry for braving the roads.

    Also, well done to the Chairman of Nottingham Council for choosing to support the MNDA as the charity for the year - 7k is a lot of money!

    Hope...
  25. Replies
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    618

    Hi TAPG, I am sorry you're so anxious. ...

    Hi TAPG,

    I am sorry you're so anxious. Anxiety is very debilitating and can take over your life - it is an illness in itself which needs treating.

    Your Neurologist was not able to reassure...
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