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  1. Replies
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    Thank you Gillette and Terry. I tried to get back...

    Thank you Gillette and Terry. I tried to get back to bed several times after sending my message but just kept having panic attacks and having to get back out of bed. I am having panic attacks and...
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    Uggh I have suffered with insomnia for several...

    Uggh I have suffered with insomnia for several years. It's horrible and it seems to be worsening since my MND started. I am wide awake since 2.45am and I have tried three times to get back into bed....
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    Hello Julie. I am sorry you have MND and feel...

    Hello Julie. I am sorry you have MND and feel isolated. I maybe understand how you feel because I live alone without a partner and I feel very worried about how I am going to cope. Do you have a...
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    I have been stuck in my house for well over a...

    I have been stuck in my house for well over a week now. My balance is so bad I have to use Zimmer frames walking around my house and I haven't got the confidence to walk down my sloping driveway to...
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    Hi Streetwise, thank you for your response. My OT...

    Hi Streetwise, thank you for your response. My OT is arranging a riser recliner chair. I have never been aware of a charity for my former profession and I have been retired for the last 3 years. My...
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    Thank you Ruth and Lynne. I do have an OT as part...

    Thank you Ruth and Lynne. I do have an OT as part of my MND clinic. She has been very helpful and visited me last week. She mentioned things like powered wheelchairs or scooters but my home still...
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    I have just had a horrid experience. Yesterday my...

    I have just had a horrid experience. Yesterday my walking improved indoors and i wasn't using the Zimmer frame. It gave me the confidence to try and get in my car and go for a scenic drive. I hoped...
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    My OT has provided me with a trolley so I can at...

    My OT has provided me with a trolley so I can at least cook my food and move it around the house. But my walking seems to be consistently worsening and I am having to use a Zimmer frame indoors or...
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    Thank you Gillette and Barry. Barry, I appreciate...

    Thank you Gillette and Barry. Barry, I appreciate your advice but, when I first attempted to put the walking frame in my car a few weeks ago, I initially tried to get it in the back door ( I have a 5...
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    On Monday this week my walking was terrible and I...

    On Monday this week my walking was terrible and I had to use the Zimmer frames indoors. I didn't have my evening dinner as I wouldn't have been able to carry it to my living room/ dining room....
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    Thank you all for your advice. I have e-mailed my...

    Thank you all for your advice. I have e-mailed my physio as you suggested ( in my clinic, it is the physio not the OT that arranges equipment like this). I can't believe how suddenly my ability to...
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    Difficulty walking in the house

    As stated in my other posts my balance and strength of my right leg are worsening. I have little confidence to walk outdoors with a 4 wheel walking frame on anything other than simple level surfaces....
  13. I am not sure whether it has been discussed with...

    I am not sure whether it has been discussed with you before, but you may know that you need to tell the Driver and Vehicle Licensing Authority or whoever they are now called if you are limited in any...
  14. Hello, thank you all for your interesting...

    Hello, thank you all for your interesting proposals. I will think about them and read the website links you propose etc.
    Kind regards,
    PT
    P.s I just phoned my local...
  15. Fora tickle advice required for several issues

    As stated before I live alone and am very isolated. I am struggling to walk safely with crutches and/or a 4 wheeled walking frame. Even with the frame I struggle to feel safe on anything other than...
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    Thank you Lynne and Debbie.

    Thank you Lynne and Debbie.
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    Thank you for your feedback and suggestions...

    Thank you for your feedback and suggestions Lynne. My house has a sloping driveway and that is one of the complications about whether to build an extension or convert the garage etc. A ramp for...
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    Uggh. Every day seems 150% dealing with MND. I...

    Uggh. Every day seems 150% dealing with MND. I have been trying to sort out getting my house converted to be wheelchair accessible. It has been taking months and months and getting nowhere. And...
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    Cheers Lynne. I am so sorry you've got MND after...

    Cheers Lynne. I am so sorry you've got MND after all you had gone through previously and especially as you are a mum. With my love of walking I am so sorry that you enjoyed it so much as well and now...
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    Thank you all for your responses. My physio is...

    Thank you all for your responses. My physio is coming tomorrow to teach me how to use 2 crutches. I'll explain things to her. My leg and balance felt better this morning and it wasn't gusty outdoors,...
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    Lining alone#2

    When I fell in the beginning of August it had a big impact on my confidence to get out of the house and I have now been largely housebound for the best part of 2 months. My main symptom at the moment...
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    Thank you all for your feedback. I just found an...

    Thank you all for your feedback. I just found an interesting website as well ;- ridc.org.uk , research institute for disabled consumers and they provide assessments and advice about various disabled...
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    Hi Lynne, I don't have a wife...

    Hi Lynne,
    I don't have a wife or partner so I am probably the wrong person to give you an accurate response. But the responses you have had from the other forum members appear spot...
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    Wheeled walkers / rollators

    My MND clinic physio/ OT has lent me a 4 wheeled walker to trial. They assessed me using it outside my house;- not for a long distance but doing some quite tricky things with it such as climbing and...
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    Sorry just offloading again. It is nearly a year...

    Sorry just offloading again. It is nearly a year now since my symptoms started suddenly. And 7 months since my diagnosis. But I am still largely in denial and just can't come to terms with the...
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