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Type: Posts; User: Shaun

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  1. Replies
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    Hello Andy Regarding money, only because, just...

    Hello Andy
    Regarding money, only because, just been through this with my in-laws (alzheimers, all go in our family) make sure it goes into your partner's account , social services cant touch it. We...
  2. Thread: ALS for Dummies

    by Shaun
    Replies
    2
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    292

    Hello Doug Thanks for posting the link, some...

    Hello Doug
    Thanks for posting the link, some interesting ideas and blunt personal points from him. Perhaps more suited for those of us at the beginning of this journey, as many of the senior...
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    708

    Hello Andy I'm in similar circumstances recently...

    Hello Andy
    I'm in similar circumstances recently diagnosed, for the first few weeks it all you can think about, it does ease a bit, once you accept it and more information becomes availble, the guys...
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    691

    Hello all, thanks for all the advice, There are...

    Hello all, thanks for all the advice,
    There are 2 care centres both within an hours drive, I thought these were for people who lived there, didn't realise they were open to all.
    I have looked at...
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    Hello Lynne My neurologist is part of the...

    Hello Lynne
    My neurologist is part of the medicine for elderly department ,so an add-on for MS and MND customers (don't like the patient word) and I'm only 58
    When I asked him about OT he suggested...
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    691

    Advise please,next steps

    Hello MND connect
    Background summary: diagnosed Nov 2019, ALS flail limb (2 years undiagnosed). Slow progression
    No immediate concerns, carrying on pretty normally, still working.
    Have seen...
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    10
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    1,360

    Hello again Jacqui? Just thinking about your...

    Hello again Jacqui?
    Just thinking about your chewing, perhaps they considered swalllowing may cause issues, riluzole can be crushed but think it may not be as good. It is monitored for liver and...
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    Hi Regarding cost of riluzole (Rilutek) 1x56...

    Hi
    Regarding cost of riluzole (Rilutek) 1x56 50mg . Just under a month's dosage is 242.39 (excl VAT)
    My consultant prescribed me 3 month's worth on diagnosis day, bargain for prescription fee of...
  9. Thread: New Guy :)

    by Shaun
    Replies
    3
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    827

    Hello Beemer I have recently been diagnosed and...

    Hello Beemer
    I have recently been diagnosed and have been mulling over the same question, I'm not too bad at the moment, spilt hands, slight limp, and some restriction on my shoulder, but I sit at...
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    Thankyou all for your comments, I'm sure I'll...

    Thankyou all for your comments, I'm sure I'll have some questions to ask as time goes on.(hopefully...... no, definitely)
    Shaun
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    Recently diagnosed

    Hello I was diagnosed early November 2019 with ALS I had originally gone to the GP because of cramping in my hands and difficulty in using a knife and fork, laces and buttons, and more importantly I...
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