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  1. Spring Firstly so sorry for your loss. You...

    Spring

    Firstly so sorry for your loss.

    You may find the following link useful if you are under State Pension age and Jim was too. Look closely at Bereavement Payment and Bereavement Allowance....
  2. Thread: Trevor

    by Artmart
    Replies
    56
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    21,353

    Nettie Just back from a few days break so have...

    Nettie

    Just back from a few days break so have only just seen this. I'm so sorry to hear of your loss. I can't believe how quickly Trevor deteriorated, but as has been said, this has limited his...
  3. Thread: Trevor update

    by Artmart
    Replies
    34
    Views
    10,313

    Trevor & Nettie Thoughts are with you. It's...

    Trevor & Nettie

    Thoughts are with you. It's pleasing to hear that good supportive care is in place even though it's a holiday weekend.

    Arthur
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    Hi Ciara The link below takes you to the MNDA...

    Hi Ciara

    The link below takes you to the MNDA Information Sheet that gives details of Tube Feeding. It might be worth you reading through this before you speak to your GP. Poor breathing does...
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    Very well put Mik. Good luck with the event on...

    Very well put Mik. Good luck with the event on the 14th.
    Arthur
  6. Replies
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    12,512

    Spring They didn't tell me then, I received a...

    Spring

    They didn't tell me then, I received a letter a week later. I didn't follow up for documents as I decided to use Eurostar for the trip in the end. I would have gone back to the...
  7. Replies
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    12,512

    Hi Spring & Pete I had a "flight assessment" a...

    Hi Spring & Pete

    I had a "flight assessment" a couple of months back and it was straightforward. I sat for 15 minutes breathing normal air with my blood oxygen being monitored (clip on the...
  8. Replies
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    12,771

    Hi Nick Good news, thanks. Arthur

    Hi Nick

    Good news, thanks.

    Arthur
  9. Replies
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    12,771

    Hi Nick Taking your comment above I feel we do...

    Hi Nick

    Taking your comment above I feel we do have to believe that Genervon are doing this for all the right reasons but one thing that comes to mind is can their manufacturing process meet the...
  10. Replies
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    7,055

    Hi Jo Tell your husband not to worry about...

    Hi Jo

    Tell your husband not to worry about which way the tube is fitted, it's getting it done to avoid the choking and chest infections that's the important bit.

    I delayed against medical...
  11. Replies
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    15,074

    Hi all I started on BiPap back in June last...

    Hi all

    I started on BiPap back in June last year. It took a while to get used to it, mainly due to drool and a face mask. Changing to a nose mask was the way I found worked for me as the various...
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    Hi Nick Great work, thank you. Let's hope...

    Hi Nick

    Great work, thank you. Let's hope your efforts are rewarded for all our sakes.

    Arthur
  13. Replies
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    Hi Joycie Good to see you're back from...

    Hi Joycie

    Good to see you're back from hospital. Get that rest you've just promised yourself!

    Take care
    Arthur
  14. Replies
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    Hi Trevor Pass on my best wishes, let's hope...

    Hi Trevor

    Pass on my best wishes, let's hope they sort the problem out quickly.

    Thanks
    Arthur
  15. Thread: Mucus Probs

    by Artmart
    Replies
    16
    Views
    5,161

    David Have you tried a Nebuliser with a Saline...

    David

    Have you tried a Nebuliser with a Saline solution? I understand this can help loosen secretions. Might be worth asking about if you've not tried it before.

    Arthur
  16. Thread: Head drop

    by Artmart
    Replies
    31
    Views
    11,354

    Hi Trevor I ran into neck problems early on...

    Hi Trevor

    I ran into neck problems early on and have been using a rigid collar since June last year. I found it a real "pain in the neck" to start with but now I can't do without it through most...
  17. Thread: Mucus Probs

    by Artmart
    Replies
    16
    Views
    5,161

    David After a quick Google it looks as if...

    David

    After a quick Google it looks as if carbocisteine is available as a liquid so ask your GP. Good luck.

    Arthur
  18. Replies
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    12,581

    Hi Joycie How are you today, any improvement?...

    Hi Joycie

    How are you today, any improvement?

    As discussed off-thread with Joycie can I just let anyone following this thread, and who may now but put off having a feeding tube fitted, that it...
  19. Replies
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    12,581

    Hi Joycie Looks as if Trevor and Terry are...

    Hi Joycie

    Looks as if Trevor and Terry are sorting you out:)

    I was given loads of contact info when I left hospital on Tuesday and 24/7 support is provided, I think mine will be the same as...
  20. Thread: Genervon

    by Artmart
    Replies
    264
    Views
    121,573

    I've added my name to both and passed on the...

    I've added my name to both and passed on the links to family & friends. Both petitions look to be gaining support at a steady rate so let's hope this leads to success for Genervon.

    Arthur
  21. Thread: RIG Installed

    by Artmart
    Replies
    8
    Views
    2,889

    Thanks all for your supportive comments. It's...

    Thanks all for your supportive comments. It's all gone extremely smoothly so I feel very lucky. I'm settling into my feed regime and now have the choice of eating the "safe" foods that I can still...
  22. Thread: Joycie is home

    by Artmart
    Replies
    4
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    1,776

    Hi Joycie Good to see all went well for you...

    Hi Joycie

    Good to see all went well for you and the great support you have had from your hospital team. I felt in very safe hands too in the Norfolk & Norwich. I arrived home last night and I'm...
  23. Thread: RIG Installed

    by Artmart
    Replies
    8
    Views
    2,889

    RIG Installed

    Hi All

    Just sat in the Norfolk & Norwich hospital recovering from having a RIG fitted yesterday. All has gone well and brilliant care from the staff here.

    I see that Joycie had her PIG fitted...
  24. Replies
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    Hi Trevor I suggest you ask for a referral to...

    Hi Trevor

    I suggest you ask for a referral to Orthotics as they may be able to provide something that supports your head without impacting your jaw and swallowing. As you know I'm in a firm...
  25. Thread: Amitriptyline

    by Artmart
    Replies
    9
    Views
    4,714

    Hi Trevor Amitriptyline made me feel tired...

    Hi Trevor

    Amitriptyline made me feel tired through most of the day so I was put on Nortriptyline, which is similar. Might be worth asking your GP about this alternative if the dreams persist and...
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