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    Wheelchair Adapted Vehicle Safety Concern

    Please respond if you have had or not had any issues with safety of WAV conversions.

    I have a problem that my NHS wheelchair department are unhappy with the docking arrangements and have raised a...
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    Surely someone out there can use this seat. Don't...

    Surely someone out there can use this seat. Don't be put off by my request for a donation.

    Will be pleased to speak to you on the telephone if you send me a private message. I live in Hampshire.
    ...
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    Thanks Robyn, Yes I feel it is well worth...

    Thanks Robyn,

    Yes I feel it is well worth while trying to make the process easier for donors as well and guardians. It seems too clumsy at the moment.

    Happy to talk to the technical guys if it...
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    Hello Lucy, Thank you for your kind words. ...

    Hello Lucy,

    Thank you for your kind words.

    Sorry you did not find the tribute fund details. Did you click on the link I put in my post. I have just tested it and it takes me to the MNDA page...
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    MNDA Tribute Fund

    My dear wife Joy lost her battle to MND on 12 December 2011.

    In order to raise as much money as possible for the MND Association, we have set up a tribute web site for her.

    We advertised the...
  6. Eyegaze

    Hello Jeannie,

    I have just seen your post about eyegaze.

    I am not sure which system you are thinking of, but this is something we are investigating. Yes it is immensely frustrating for both of...
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    Elap Rotating Car Seat

    We have an Elap Rotating car seat for disposal, which may benefit a member with MND who has a VW Polo Mk3. http://www.elap.co.uk/motoring/vehicle-adaptations/rotating-seats/elap-rotating-car-seat/
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    See my reply to Jules, Continuing Healthcare...

    See my reply to Jules, Continuing Healthcare.
  9. Thread: Continuing Care

    by Paul38
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    NHS Continuing Health Care is well worth having....

    NHS Continuing Health Care is well worth having. It is not means tested, and pays all your care cost (according to need). That's the catch. We currently have 24 hour live in care. Like Jacqui, we had...
  10. Thread: pain with mnd

    by Paul38
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    Hello Elle, My wife is suffering with pain,...

    Hello Elle,

    My wife is suffering with pain, mainly in her wrists. Unfortunately she can no longer speak, or communicate except by closing her eyes to direct questions. She shows her discomfort by...
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    We now have 24 hour live in care, funded by NHS...

    We now have 24 hour live in care, funded by NHS Continuing Health Care. It was a struggle to persuade the NHS that this met my wife's needs best, and it actually costs less that the care we had...
  12. Thread: Pain management

    by Paul38
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    Thanks Graham, Exercise seem to be the key. Am...

    Thanks Graham,

    Exercise seem to be the key. Am trying get some advice from local physios on what is best to do.

    Also next Monday 1 July we are going to the National Hospital for Neurology and...
  13. Thread: Pain management

    by Paul38
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    Pain management

    My wife was diagnosed with PLS in 2008. Until recently she has had little pain, apart from spasms in her legs. Her pain now is mainly in the joints of her legs and arms and started in early May 2011....
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    Hello John, Go back to your OT and ask her...

    Hello John,

    Go back to your OT and ask her about care support from Social Services and from NHS Continuing Health Care. See my other reply to Computatec. You have nothing to loseby trying, and...
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    NHS Continuing Health Care is a closely guarded...

    NHS Continuing Health Care is a closely guarded secret, but well worth investing. It sounds if you qualified for Social Services care, which we did not. There is a savings limit which excludes us,...
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    24 hr care funding

    Does anyone get NHS CHC funding for 24hr care (live in carer). I know that this given in my area, (Hampshire PCT), but I do not have evidence.

    If you do, or know of anyone who does, please either...
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    It is well worth while applying for NHS...

    It is well worth while applying for NHS Continuing Health Care. I got it for my wife after a year, although the process is tortuous, and you have to fight hard. Type "NHS Continuing Healthcare" into...
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