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Type: Posts; User: chrissie57

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  1. Replies
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    Thank you, Ellie and Dina Ellie - I took her...

    Thank you, Ellie and Dina

    Ellie - I took her to mean that Douglas would not be able to operate the chair. He can still move his arms but has no real strength in them now and his hands are curled...
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    Hi, Dina I did think about ringing the MNDA -...

    Hi, Dina
    I did think about ringing the MNDA - especially when I found there is a version of the Salsa Mini which they helped design for sufferers of the disease.
    Is your chair powered? What will...
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    Not able to have powered wheelchair?

    Good morning, everyone.

    After MANY months of waiting, Doug's wheelchair arrived this morning. Unfortunately it is a manual and we were expecting a powered chair.

    I rang the OT immediately and...
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    Thank you, everyone. It had occurred to me that...

    Thank you, everyone. It had occurred to me that we are new bods and shouldn't really expect to be accommodated over more long standing clients. Also the irony that I used to think the previous team...
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    Carers arrival time

    Good morning, everyone
    Don't know if this is the right place for this but I am trying to find out what is a reasonable time in the morning for the first visit by a team of carers.

    Our original...
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    Thank you, Barry

    Thank you, Barry
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    Thank you, Ellie, that is the sort of thing I was...

    Thank you, Ellie, that is the sort of thing I was hoping to find.
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    Thank you, Terry and Dina😃 I had considered a...

    Thank you, Terry and Dina😃

    I had considered a door bell (we use one in work to summon people from the far end of the library and it works very well) but I don't know if Douglas would be able to...
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    Easy push bell/buzzer?

    Good evening, everyone. Douglas lost his ability to speak in the early stages of this horrible illness. During the day he communicates using his iPad or an alphabet sheet. When he has needed me at...
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    Apollo is lovely, a real character. 😃

    Apollo is lovely, a real character. 😃
  11. Replies
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    Fantastic news, Dina

    Fantastic news, Dina
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    I hope their intervention does help, Dina. It is...

    I hope their intervention does help, Dina. It is truly awful how you have been treated.
    Chrissie xx
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    So sorry for your loss

    So sorry for your loss
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    chrissie here

    Hi, everyone
    I am Douglas' wife/carer (although it appears not a particularly great example of the latter😮). Douglas came back into Wythenshawe hospital on Friday evening - his CO2 readings were...
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    Thank you for your replies, everyone. I fear part...

    Thank you for your replies, everyone. I fear part of the problem is that even although Douglas was diagnosed in October I was/am still somewhat in denial, mad as that must seem, and Fridays meeting...
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    Hi, Doug's wife here. He wanted me to give my...

    Hi, Doug's wife here. He wanted me to give my impression of the meeting, although I am not sure there is much value in my doing so. It appeared to me that he was being given the choice between...
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    Thank you, Dina, I will ring them on Monday ...

    Thank you, Dina, I will ring them on Monday

    Chris
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    PiP and hospital

    Hi.
    I don't post very often -I am Dis1960's wife. As he posted yesterday, Douglas is in hospital trying to sort out his ventilation - hopefully this will be a short stay. However he is in receipt of...
  19. How to proceed with husband's HR department

    Hello everyone just after a bit of advice for my husband Douglas.

    He has been contacted by his firm's H.R. Manager asking for permission to send an Occupational Health Advisor to see him next...
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    Posting rather hesitantly as I am sure you will...

    Posting rather hesitantly as I am sure you will be receiving good advice and I am certainly not an expert but if you were to take the retirement option and considered 'paying off the credit card,...
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    Read the reviews carefully. Most say that the...

    Read the reviews carefully. Most say that the card gives them added confidence when out but the card does not 'entitle' you to use staff facilities and several reviews speak of being refused; others...
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    And I am Christine and I'm the wife :) This...

    And I am Christine and I'm the wife :)

    This has been a shock because Douglas has always been the healthiest person I know, bar none. I wouldn't feel sorry for me though - Doug has already...
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