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Type: Posts; User: marieline

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  1. Thread: Fatigue

    by marieline
    Replies
    42
    Views
    9,325

    hello John, debilitating fatigue, (cramps, mood...

    hello John,
    debilitating fatigue, (cramps, mood swings, fasciculations), depending of course of how your much you do during the day seemed to dominate during the first 5 to 6 years with MND. with...
  2. concerning clinical trial, The Perron Institute...

    concerning clinical trial, The Perron Institute of Neurological science is currently recruiting MND patients for a clinical trial, here in Western Australia. My curiosity would have led me to the...
  3. hello all, i'm in month 3 of the Cannabimed trial...

    hello all, i'm in month 3 of the Cannabimed trial and so far have not noticed any new symptoms. My speech is definitely a lot more clear. I even had to call to confirm an appointment, although i...
  4. Replies
    6
    Views
    2,442

    Hello Nightowl, i imagine that your mother is new...

    Hello Nightowl, i imagine that your mother is new to MND so is therefore dealing with a lot of scary symptoms that given time she will learn to manage. The biggest problem is fear. so she learn to...
  5. Replies
    14
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    9,453

    RIP Prof Hawking. i am saddened by the news. Such...

    RIP Prof Hawking. i am saddened by the news. Such a great sense of humour and a great brain and mind.
    Marieline
  6. Hello Chrissie, your energy will be better used...

    Hello Chrissie, your energy will be better used to look after your mum. There is no need changing the establishment. Your answer is Social worker. Once they have assessed your mum's needs, she will...
  7. hello all, on April 28th, i shared that...

    hello all, on April 28th, i shared that CannabiMed had no effects on the cramps and fasciculations, in fact it may increase the laters. now there are a lot less activities. I believe Jerry that we...
  8. Hi Newbie17, I would personally love to trial...

    Hi Newbie17,
    I would personally love to trial just CBD. so please share with us your findings.
    thanks
    Marieline
  9. good luck with the treatment. Hope it help you...

    good luck with the treatment. Hope it help you achieve what you are aiming for Newbie 17. Please do share.
    Best wishes
    Marieline
  10. furthermore on the cbd oil topics, i want to add...

    furthermore on the cbd oil topics, i want to add for those like me who have a sensitive bladder and insomnia. Before cbd oil, i would go to the bathroom nearly every hour because if sleep come along,...
  11. Hi Terry, you are so lucky to be able to walk in...

    Hi Terry, you are so lucky to be able to walk in a pharmacy and buy it. Here it is so difficult, i only received a 3 month trial approval. Now i pay more money and put in a new application, they may...
  12. Hello Jerry, yes certainly a manager. what...

    Hello Jerry, yes certainly a manager. what potency are you using? I want o try just Cannabinoid oil next without the THC in order to separate how each helps and symptoms.
    good luck Marieline
  13. hello Ginger, I would have love to have access...

    hello Ginger,
    I would have love to have access to cad oil in the early stage. I find that it could have assisted with the excessive mucous, spasticity, pain, fatigue etc Like i said to Jer780, it...
  14. hello Jer780, my understanding of cramps and...

    hello Jer780,
    my understanding of cramps and fasciculation suggests that our nerves are trying to reconnect. So in my book it is not really such bad symptoms just annoying.
    i have found that the...
  15. Good Day, Happy New Year to you all. It's been a...

    Good Day, Happy New Year to you all. It's been a while since i visited. I have great news. I started Cannabis oil trial about a month ago and i see great potential, although it is a tad early for me...
  16. Hi all who battle spasticity on a daily basis :)...

    Hi all who battle spasticity on a daily basis :) What can i say smile. I was so frustrated with my rt leg recently as it was not healing fast enough (post surgery after neck of femur fracture). I...
  17. Hi Barry, The electric wheelchair and the...

    Hi Barry,
    The electric wheelchair and the travel scoot is sold by the same company. If you google zinger chair, you will be able to also find the travel scoot. Did you notice that the power chair...
  18. Thread: Gabapentin

    by marieline
    Replies
    13
    Views
    7,771

    Hi Ann, I call myself the queen of spasms and...

    Hi Ann,
    I call myself the queen of spasms and cramp. If i was rich i would definitely employ a masseur. massage, hydrotherapy, stretch, moderate exercises are quite beneficial. But at some stage if...
  19. :) I saw my next gadget to purchase today. After...

    :) I saw my next gadget to purchase today. After such a long search, i saw the Travel Scoot ( made in the US). Something that i can get in and out of the lift and park in my tiny space.

    Terry and...
  20. Replies
    21
    Views
    15,479

    Hi Ali, i could help noticing that you mention...

    Hi Ali, i could help noticing that you mention CBD in your list of supplements. Would you care to share how long you've been taking Canabinoid. It is not yet available in WA, although it is now i...
  21. Replies
    17
    Views
    8,487

    Hi Barry, wow! you raised heaps of money for your...

    Hi Barry, wow! you raised heaps of money for your branch. Fantastic!

    X Marieline
  22. Hello Andy, the purpose of this thread was to...

    Hello Andy, the purpose of this thread was to gather facts about a predominant symptom of MND. I have to say though that fasciculation has always been bilateral for me, but as you say, 1 side is...
  23. Hey Dude, i love saying this. Propofol...

    Hey Dude, i love saying this. Propofol unfortunately is i believe only used by anaesthetist. I has come up before in conjunction with MND but i don't think any doctor will prescribe it. Is it...
  24. PROPOFOL benefits are wearing off :( . I had a...

    PROPOFOL benefits are wearing off :( . I had a good run and cannot complain, imagine no spasms, choking, even the teeth marks on my tongue were starting to fade. My tongue had even loss the flaccid,...
  25. Replies
    55
    Views
    14,981

    Hi Barry, i am no expert, but i believe that the...

    Hi Barry, i am no expert, but i believe that the large sensory component of MND is overlooked. But i am sure sufferers with parkinson or even MS have the same difficulties.
    I was discussing the...
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