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  1. Thread: Struggling

    by MamaRics
    Replies
    8
    Views
    1,677

    Struggling

    I apologise firstly for having a moan but I am really struggling at the moment coping with my husbands MND. He was diagnosed in Sept 16 and until May last year was working. In the last 6 months he...
  2. Thread: bereavment

    by MamaRics
    Replies
    30
    Views
    9,833

    So sorry to hear your sad news. Thinking of you.

    So sorry to hear your sad news. Thinking of you.
  3. Thread: Sad news

    by MamaRics
    Replies
    19
    Views
    3,423

    So sorry for your loss.

    So sorry for your loss.
  4. Thread: Sad news

    by MamaRics
    Replies
    19
    Views
    3,423

    Dear Kernowmum. So sorry for the loss of your...

    Dear Kernowmum.
    So sorry for the loss of your beloved husband. Please accept my condolences.
    Thinking of you and your family.
    Xx
  5. Thread: Mucus

    by MamaRics
    Replies
    12
    Views
    2,935

    Hi Redders. My husband has had the same issue...

    Hi Redders. My husband has had the same issue with thick secretions and has just been changed to a hyacinth patch, 1/2 a patch changed every three days and it has really helped. I hope you manage to...
  6. Replies
    12
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    3,828

    Dear Fru. It is sad to think so many people are...

    Dear Fru. It is sad to think so many people are in this position. I agree we feel as if we are being punished, we didn’t ask for this to happen but we are trying to make the best of things.
    Keep...
  7. Replies
    12
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    3,828

    Oh dear - we have also been refused a grant to...

    Oh dear - we have also been refused a grant to help with installing a wet room and are having to look at trying to fund this ourselves. Unfortunately we do not have a garage to convert and have been...
  8. Replies
    4
    Views
    1,647

    Thanks Terry, it’s difficult to know what is...

    Thanks Terry, it’s difficult to know what is causing it. Like you the cough comes and goes, we have tried some cough remedies but honey and lemon seems to be the best so far. Thank you for your...
  9. Replies
    4
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    1,647

    Thanks Ellie, will have a word with our GP as...

    Thanks Ellie, will have a word with our GP as suggested. Not coping very well at the moment so your support and advice is very much appreciated x
  10. Replies
    4
    Views
    1,647

    Troublesome cough.

    Hi All just wondering if anyone can offer me some advice. My husband is doing well since his diagnosis in 2016, he is still able to work and manage most daily activities with minimal help. He has...
  11. Thread: Passed away.

    by MamaRics
    Replies
    15
    Views
    5,666

    So sorry for your loss Mark x

    So sorry for your loss Mark x
  12. Replies
    9
    Views
    3,248

    Hi Alfie's mum. We have just returned from our...

    Hi Alfie's mum. We have just returned from our first cruise with h P&O to the Norwegian Fjords. I cannot recommend them higher enough, nothing was too much trouble. Even had to have a trip to the...
  13. Thread: Confused

    by MamaRics
    Replies
    8
    Views
    3,775

    Hi Streetwise, yes hubby has bulbar palsy too. He...

    Hi Streetwise, yes hubby has bulbar palsy too. He has now lost 11lbs in a month although he eats well. Have been told it is most probably due to muscle wasting but disease starting to progress more...
  14. Replies
    21
    Views
    6,682

    So sorry to hear your sad news. Julie.

    So sorry to hear your sad news.
    Julie.
  15. Thread: Confused

    by MamaRics
    Replies
    8
    Views
    3,775

    Thanks Ellie. He has had a swallow assessment...

    Thanks Ellie. He has had a swallow assessment review in the last week and everything was much the same. He eats really well so I am not sure what to think but he is loosing weight. Our neighbour saw...
  16. Thread: Confused

    by MamaRics
    Replies
    8
    Views
    3,775

    Confused

    Hi Everyone. My husband was diagnosed in September 2016 and has been doing really well. He is still able to work although reduced hours, still driving and no major issues with eating apart from the...
  17. Replies
    11
    Views
    4,003

    So sorry yo hear your sad news. Stay strong x

    So sorry yo hear your sad news.
    Stay strong x
  18. Thread: Gulping

    by MamaRics
    Replies
    6
    Views
    2,117

    Thank you DVD, it is so sad to watch somebody...

    Thank you DVD, it is so sad to watch somebody deteriorate and there is nothing you can do about it.
  19. Thread: Gulping

    by MamaRics
    Replies
    6
    Views
    2,117

    Thank you both for your advice. I was hoping it...

    Thank you both for your advice. I was hoping it wasn't progression but deep down I thought it was. Will make an appointment for him to see SALT again and reassess.
  20. Thread: Gulping

    by MamaRics
    Replies
    6
    Views
    2,117

    Gulping

    My husband was diagnosed with MND in September 2016 following a year of tests. Everything has been recently stable until recently. He has lost a little weight although he eats well but he has started...
  21. Replies
    6
    Views
    2,334

    Glad to hear you are getting support at last.

    Glad to hear you are getting support at last.
  22. Replies
    5
    Views
    2,152

    I am so sorry you find yourself on this forum. My...

    I am so sorry you find yourself on this forum. My husband was also diagnosed recently but has not progressed as quickly as we were original told. Have you been in touch with the palatine care team,...
  23. Replies
    7
    Views
    163,511

    So sorry to hear this, my thoughts are with you.

    So sorry to hear this, my thoughts are with you.
  24. Thread: Can I scream?

    by MamaRics
    Replies
    10
    Views
    5,379

    Thank you LilyLou, it has helped so much. I have...

    Thank you LilyLou, it has helped so much. I have had a better day today and less anxious. I know we have a rough road ahead but I must make the most of the good days and stay positive. Thank you for...
  25. Thread: Can I scream?

    by MamaRics
    Replies
    10
    Views
    5,379

    Thank you Wendy, I don't have access to a...

    Thank you Wendy, I don't have access to a counsellor yet but maybe this is something I need. Thank you for your support.
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