Search:

Type: Posts; User: Jer788

Page 1 of 4 1 2 3 4

Search: Search took 0.04 seconds.

  1. Thread: Rch4

    by Jer788
    Replies
    375
    Views
    93,182

    Doblett, you come across as a right nasty piece...

    Doblett, you come across as a right nasty piece of work. I hope the association block your toxic posts.
  2. Thread: Rch4

    by Jer788
    Replies
    375
    Views
    93,182

    I’m with you on that Kayleigh. The association is...

    I’m with you on that Kayleigh. The association is showing a very strange stance.
    Love Jerry x
  3. Replies
    12
    Views
    2,390

    Hi folks, I have to say I so admire you all. Your...

    Hi folks, I have to say I so admire you all. Your strength and acceptance of this bloody thing is amazing. Where would we be without hope and imagination. Jerry x
  4. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Hi Ellie, no I donít know the reason yet only...

    Hi Ellie, no I donít know the reason yet only that theyíve seized it and have asked if HMRC have been in touch. Customs are funny. Last month they charged me £25 import duty on my Ibudilast but this...
  5. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Hi Ellie, I’ve been on the Ibudilast now for...

    Hi Ellie, I’ve been on the Ibudilast now for about 3 months with Riluzole and I can’t see any benefits. I am still deteriorating quite rapidly but as other things we all take it’s difficult to...
  6. Thread: Rch4

    by Jer788
    Replies
    375
    Views
    93,182

    Well said Ellie, my sentiments exactly. Love...

    Well said Ellie, my sentiments exactly.
    Love Jerry x
  7. Donated & good luck. Jerry x

    Donated & good luck. Jerry x
  8. Thread: MNDA Charity

    by Jer788
    Replies
    12
    Views
    2,792

    Hi Ellie, hope you’re well. What have you been up...

    Hi Ellie, hope you’re well. What have you been up to ? Ive been down to Maidstone to see the family. Saw the neurologist yesterday at UCL and back in Monday for a chat about a PEG and respiratory...
  9. Thread: MNDA Charity

    by Jer788
    Replies
    12
    Views
    2,792

    MNDA Charity

    Hi folks, Iíd just like to say thanks to everyone who donated to my Birthday Charity Fundraiser on Facebook. We managed to get £1855 over the week.
    It was a great effort and Iím happy to do this for...
  10. Replies
    33
    Views
    9,145

    Hi Chris, sorry mate I believe itís infusion over...

    Hi Chris, sorry mate I believe itís infusion over 3 weeks.
    Best Jerry
  11. Replies
    33
    Views
    9,145

    Hi Kayleigh, good to hear from you, yeah it’s...

    Hi Kayleigh, good to hear from you, yeah it’s looking hopeful and it’s probably keeping us all going in a way. Haven’t been on for a while with one thing and another but I’ve packed in the Ibudilast....
  12. Replies
    33
    Views
    9,145

    Hi folks I hope you are well in this awful place...

    Hi folks I hope you are well in this awful place we find ourselves. I have recently received an update about the drug and if you read it you can understand the delay. I will reiterate what Dr. Jacobs...
  13. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Yes I do. Sorry for the late reply. Br Jerry x

    Yes I do. Sorry for the late reply.
    Br Jerry x
  14. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Hi Dina, I hope so too. I seem to be...

    Hi Dina, I hope so too. I seem to be deteriorating quite rapidly too. Stay positive though the words seem so empty to me from people who aren’t in the loop xxx Jerry
  15. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Hi Olivia, as Andy says you just don’t know as...

    Hi Olivia, as Andy says you just don’t know as we’re all different and I haven’t been regular with it due to the nausea. I was also told by Ellie that you may need to be taking Riluzole also which I...
  16. Thread: Ibudilast

    by Jer788
    Replies
    22
    Views
    3,836

    Hi Olivia, I started taking it before I came to...

    Hi Olivia, I started taking it before I came to the UK and have started again now but I’ll need to find something to counter the nausea first. Possibly just me, but taking morning and night I...
  17. [ Hi Kayleigh, yeah great to see the family...

    [


    Hi Kayleigh, yeah great to see the family and get settled in. I’ve contacted Evelyn at mndsouthlondon so will see what’s going on. I suppose the assistance thing is a tricky one for airlines...
  18. Replies
    7
    Views
    1,697

    Hi Kayleigh, yes I’ve contacted Yvonne with no...

    Hi Kayleigh, yes I’ve contacted Yvonne with no reply and tried to call but her phone is off. She could be on holiday and I wouldn’t blame her it’s freezing here xxx
  19. Replies
    7
    Views
    1,697

    Thanks Ellie you’re a star xxx

    Thanks Ellie you’re a star xxx
  20. Thanks Shrew, you’re telling me. When I was...

    Thanks Shrew, you’re telling me. When I was working I travelled a lot and didn’t mind it, now it’s just so bloody stressful.
    Thanks x
  21. Hi Debbie, thanks and yes I’m on it. Trying to...

    Hi Debbie, thanks and yes I’m on it. Trying to access an OT and the South London MNDA branch but we’ll get there. I intend to be a lot more active on the forum and also explore any clinical trials...
  22. Hi Kayleigh, and thanks for all the research re....

    Hi Kayleigh, and thanks for all the research re. wheelchairs and travel I’ll have to look at this though I have to say I’m not too adventurous regarding travel down here. My brother is looking after...
  23. Replies
    7
    Views
    1,697

    South London Branch

    Hi all, recently relocated to South London. Anyone have any contact details for the branch.
    Thanks Jerry
  24. Replies
    5
    Views
    2,970

    Hi there, anyone in London know where and when...

    Hi there, anyone in London know where and when they meet ?
    Thanks Jerry
  25. Hi

    Hi Kayleigh, I received the same knock back from 2 other people receiving this. They want to tell you how well theyíre doing but donít want to share any contact details as the charity cannot produce...
Results 1 to 25 of 89
Page 1 of 4 1 2 3 4