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  1. Replies
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    Hi all, I was very kindly given a...

    Hi all, I was very kindly given a prescription/report by a neurologist to allow my Edaravone in the country, however customs still refused due to the 3 month quantity so have returned them to the...
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    Thanks I'm going to order the months supply. My...

    Thanks I'm going to order the months supply. My own fault I ordered 3 months.Jerry
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    Hi Raj, does the dosage continue indefinitely ie....

    Hi Raj, does the dosage continue indefinitely ie. 10 out of 14 days then 14 rest till EOL. I had my Edaravone confiscated at customs by the Thailand Food & Drug Administration and have been mulling...
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    Hello Namay, so sorry to hear about your husbands...

    Hello Namay, so sorry to hear about your husbands diagnosis. It seems to be moving quickly as mine appears to have lately. How old is he? I'm are it will plateau. You are at the right place for...
  5. Thread: Radicava

    by Jer780
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    2
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    3,142

    Hi

    Hi terrigary, sorry to hear about your diagnosis welcome to the club. Radicava is an antioxidant and has very few side effects. If you don't mind me asking which country are you living as the uk has...
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    Well Terry I'm not sure. Its all about money and...

    Well Terry I'm not sure. Its all about money and influence here so family friends who worked in immigration are trying to help. I'm not aware of an appeals process also the consignment is due to be...
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    Hi Raj, unfortunately the Thai customs have...

    Hi Raj, unfortunately the Thai customs have refused to release my shipment. Possibly my fault as I ordered 3 months supply but as they explained to my wife its not approved in Thailand. Currently on...
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    Well I'm down in the dumps today. The Thai...

    Well I'm down in the dumps today. The Thai customs have refused to allow my Edaravone through. Maybe my fault as I ordered 3 months supply. Looks like I'm off to India!!
    Best Jerry
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    Hi Billy, I don't blame you at all. That is...

    Hi Billy, I don't blame you at all. That is practically inhumane. My experience so far with health professionals is they just don't seem to give a toss. Use them as guinea pigs don't take them...
  10. Thread: CBD oil

    by Jer780
    Replies
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    13,951

    Hi John, I have been using it since diagnosis...

    Hi John, I have been using it since diagnosis October 2017. This is the Rick Simpson version and not bought in the shops. I was back in the uk and saw a neurologist at Maidstone hospital last month....
  11. Thread: FMT program

    by Jer780
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    FMT program

    I have recently started an FMT program in Bangkok. I had previously tried Stemcell treatment twice to no avail. There are two ways to undergo the treatment one is via enema direct to the gut and the...
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    Willem, so sorry to hear this. This pox of a...

    Willem, so sorry to hear this. This pox of a disease is horrid and nobody seems any nearer to finding a cure than they were 20 years ago.
    Best wishes Jerry
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    Hi Kushy, I have tried Stemcell treatment twice...

    Hi Kushy, I have tried Stemcell treatment twice through my employer insurance and neither has had any positive effect. I find these companies are more for cosmetic/superficial purposes and did list a...
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    Thanks Raj, can't wait to get started. Regards...

    Thanks Raj, can't wait to get started.
    Regards Jerry
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    Yes I will Marge thanks x

    Yes I will Marge thanks x
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    Me too thanks, I will post on any effects be they...

    Me too thanks, I will post on any effects be they positive or negative.
    Luv Jerry
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    Raj, do you administer with a saline solution...

    Raj, do you administer with a saline solution also??
    Regards jerry
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    Hi Raj, great to hear there is some improvement....

    Hi Raj, great to hear there is some improvement. I have also ordered from India and hope to start the protocol shortly. Have you had a PIC or port fitted and are you experiencing any problems....
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    I have ordered from India for $500 including...

    I have ordered from India for $500 including shipping but will put it through a lab before use.
    Here's hoping !
    Jerry
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    Hi George, I have just ordered Edaravone from...

    Hi George, I have just ordered Edaravone from India so have yet to start the program. There are man suppliers and much cheaper than the 100k per annum for the REAL drug. You are supposed to take 60mg...
  21. Thread: Mirocals

    by Jer780
    Replies
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    8,095

    Thanks Barry

    Thanks Barry
  22. Thread: Mirocals

    by Jer780
    Replies
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    8,095

    Thanks Mandy

    Thanks Mandy
  23. Replies
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    Radacava

    Radacava is now available in India and for the prescribed dosage of 60mg per day @ $280 for 15 days per month. Not cheap.
    Regards Jerry
  24. Thread: Kent Support

    by Jer780
    Replies
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    4,901

    Hi Ellie, I went along to the Mid Kent support...

    Hi Ellie, I went along to the Mid Kent support and met some lovely people. I have been assigned an AV Annette who will help me with any problems I have or anything I wan to discuss. There was a...
  25. Thread: Mirocals

    by Jer780
    Replies
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    8,095

    Mirocals

    Has anyone heard of this drug as I am being put forward for a clinical trial.
    Best wishes Jerry
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