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  1. Replies
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    Hi John - A good overview ...

    Hi John - A good overview https://www.nhs.uk/Planners/end-of-life-care/Pages/advance-decision-to-refuse-treatment.aspx - Calum
  2. Thread: Eye Gaze tech

    by Calum
    Replies
    7
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    2,486

    Hi - I use the iTracker app to control my iMac...

    Hi - I use the iTracker app to control my iMac and MacBook - it's an easy to download app and costs $34.99 - http://www.eyetwig.com/itracker.html - it's a head control application which works through...
  3. Thread: Saliva

    by Calum
    Replies
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    3,799

    Instead of patches can also get Hyoscene via...

    Instead of patches can also get Hyoscene via Kwells

    https://www.superdrug.com/Kwells/Kwells-Travel-Sickness-Tablets-12-Pack/p/159087
  4. Thread: Newly diagnosed

    by Calum
    Replies
    31
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    7,752

    Hi Chris - welcome to the forum - I've prepared a...

    Hi Chris - welcome to the forum - I've prepared a Living with MND Toolkit which summarises my experience into 4 pages -...
  5. Thread: BBC Interview

    by Calum
    Replies
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    4,293

    I've just uploaded the full version of my BBC...

    I've just uploaded the full version of my BBC Interview about the need to improve care provision for Neurological patients:

    https://www.youtube.com/watch?v=94ISFAXBimA

    I've also recently...
  6. Thread: BBC Interview

    by Calum
    Replies
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    4,293

    My BBC interview has generated a fair bit of...

    My BBC interview has generated a fair bit of press interest - here's the link to today's Scotland on Sunday piece:
    ...
  7. Thread: BBC Interview

    by Calum
    Replies
    11
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    4,293

    The media are picking up on this new intuitive...

    The media are picking up on this new intuitive which received cross party support in the Scottish Parliament
    ...
  8. Thread: BBC Interview

    by Calum
    Replies
    11
    Views
    4,293

    BBC Interview

    Here's a link to my BBC Interview about the need to improve care provision for MND sufferers and those with related neurological conditions
    ...
  9. Thread: g'day everyone

    by Calum
    Replies
    28
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    8,463

    My Eyegaze didn't cope well with varifocals or...

    My Eyegaze didn't cope well with varifocals or rimmed glasses - but worked much better with rimless non-varifocal glasses. Sunlight was a persistent problem - to combat it I used to sit under an...
  10. Thread: g'day everyone

    by Calum
    Replies
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    8,463

    Hi Andrew - I use it on my Apple laptop & desktop...

    Hi Andrew - I use it on my Apple laptop & desktop - there's a window's version but not sure how good it is. Calum
  11. Thread: g'day everyone

    by Calum
    Replies
    28
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    8,463

    Hi Andrew I used to use Eyegaze but I moved...

    Hi Andrew

    I used to use Eyegaze but I moved over to a head control product called iTracker last year. To use iTracker you need a bit of head control, mines wasn't great when I started using it...
  12. Hi Pete - instead of setting up my own blog -...

    Hi Pete - instead of setting up my own blog - I've tended to write guest blogs for charity sites, newspapers and established blogs. My most recent guest blog was published by MND Scotland on their...
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    Life with MND documentary

    For those who missed it Lucy Linott's inspirational documentary about living life with MND is still available on BBC iPlayer for another 13 days:
    ...
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    Living with MND Toolkit

    I've put together a "Living with MND Toolkit" based on my experience of the past 7 years or so. The document has hyperlinks to the underlying websites.

    To share it online I use My Google Drive,...
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    Hi Lorret - The combination of a hoist with a...

    Hi Lorret - The combination of a hoist with a Closomat type of toilet works pretty well - I've used both portable & tracking hoists. Calum
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    Hi Jecky - I'm in a similar position - I use the...

    Hi Jecky - I'm in a similar position - I use the tube for basic calories - leaving me to eat small amounts of what I really enjoy. Calum
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    Hi Mags - Sounds like our consultants have come...

    Hi Mags - Sounds like our consultants have come at the issue from slightly different angles but seem to be singing from a similar hymsheet. An alternative to patches etc is Kwells which seem to be a...
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    Hi Mags - I get mine through the tube in liquid...

    Hi Mags - I get mine through the tube in liquid form - Once I started on the 5ml Clarithromycin daily combined with Hyoscine patches (half a patch every 48 hours) this brought my secretions under...
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    I've been taking 5ml of Clarithromycin for a...

    I've been taking 5ml of Clarithromycin for a couple of years to dampen down my anti-inflammatory response and help keep secretions at bay - I think based on my experience it may well give me a base...
  20. Thread: diet advice

    by Calum
    Replies
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    3,863

    Hi Margaret - My weight has at times been as low...

    Hi Margaret - My weight has at times been as low as 8.5 stone - we were able to bring my weight back up to around 12st using the approach set out in the guide below. Blending down favourite meals to...
  21. Thread: Odd behaviour

    by Calum
    Replies
    19
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    6,975

    MND does impact a significant % of sufferers...

    MND does impact a significant % of sufferers cognitive behaviour - that said it may well be that your relative is still coming to terms with the many challenges they and you are facing. Hopefully...
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    NIV and Music Therapy

    Interesting research for those starting out on NIV

    http://journals.sagepub.com/doi/full/10.1177/1359457516669153
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    Hi Pip - this site also has lots of info about...

    Hi Pip - this site also has lots of info about the various feeding methods - Calum

    http://mytube.mymnd.org.uk/living/
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    Hi Pip - Most of us get to the point where we...

    Hi Pip - Most of us get to the point where we need help with PEG feeding - a pump is an option - but assistance with feeding with syringes probably best initially. I take Fortisip Compact for easy...
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    Another hoist option when ceilings are too high...

    Another hoist option when ceilings are too high is a portable tracking hoist - I've used one before and they can be easy moved around from room to room - link below to the system i used:
    ...
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