Search:

Type: Posts; User: hayley J

Page 1 of 2 1 2

Search: Search took 0.06 seconds.

  1. East Regional Conference in Bedford this Saturday

    Hi all,

    Its our East regional conference this Saturday in Bedford and you are all welcome to watch online on our Facebook page here. This year we are trying to encourage more people watching from...
  2. Replies
    21
    Views
    5,451

    Hi all, The research team have heard back...

    Hi all,

    The research team have heard back from Amber at UCL regarding the problems with the link being sent out:

    "We were keen to try a new method to engage with plwMND without the need for...
  3. Replies
    21
    Views
    5,451

    I can't seem to find a number to contact them...

    I can't seem to find a number to contact them either.

    Thanks for doing that Ellie. The research team have been made aware.
  4. Replies
    21
    Views
    5,451

    Hi Fru, Still no link? I'll let our research...

    Hi Fru,

    Still no link? I'll let our research team know, and will get back to you asap.

    Hayley
  5. Great news Charles! So glad you applied. Good...

    Great news Charles! So glad you applied.

    Good luck to you.
  6. Call for Nominations: International Alliance Advisory Council

    Good morning all,

    I have been asked to share a call for nominations for the International Alliance Advisory Council. The advisory council will help the Alliance consider the opinions and ideas of...
  7. Replies
    41
    Views
    13,996

    Hi Jude, I saw your thread and asked our...

    Hi Jude,

    I saw your thread and asked our Wheelchair Support Coordinator Mary if she has any advice, and she has suggested that you contact you local Driving Mobility centre which you can find by...
  8. Replies
    4
    Views
    4,982

    Hi all, I have been given some more details...

    Hi all,

    I have been given some more details about the drop in on the 1st March, please see the flyer below (click to enlarge):

    868

    Hayley
  9. Care and Support Alliance ‘Big Social Care Survey’

    Good morning all,

    The MND Association is a member of the CSA (The Care and Support Alliance), which was set up to campaign for a properly funded care system alongside the millions of older...
  10. Replies
    0
    Views
    1,783

    Fundraising takes over!

    Hello all,


    As part of our #FundraisingTakesOver campaign supporter Mike Crisp, who is living with MND, will be taking over our Twitter account on Tuesday 16th January between 9am-9pm. He will...
  11. Replies
    2
    Views
    4,060

    Scrap Reassessments!

    Over 6,600 supporters have signed a letter calling on the Minister to scrap benefits reassessment for people living with motor neurone disease.

    If you haven't signed - There’s one week left to add...
  12. Thread: BIo Bidet

    by hayley J
    Replies
    37
    Views
    15,374

    Hi Kevin, We’re glad that you’ve spoken to...

    Hi Kevin,

    We’re glad that you’ve spoken to Michael and he is helping resolve the issues.

    PDS Hygiene are very keen to ensure that all customers using the Bio Bidet are satisfied with their...
  13. Thank you for your feedback Bern! They are very...

    Thank you for your feedback Bern! They are very valid points, I will feed this back to the team to see if they can provide any more detail.
  14. Replies
    1
    Views
    1,852

    Forum Christmas Hours

    We would like to wish our supporters a peaceful time as we approach the end of 2017.

    From Christmas Eve to Boxing Day we will not be monitoring our forum as normal between this time. You may find...
  15. Good morning, I have spoken to our research...

    Good morning,

    I have spoken to our research team who have now fixed the problem so the link should now work!

    Thanks all,

    Hayley
  16. Adapting Acceptance and Commitment Therapy for people with MND

    Do you have a diagnosis of motor neuron disease (MND)? Or are you caring for or have cared for someone with MND? If the answer is yes to either of these questions and you are aged 18 years and over...
  17. Thread: BIo Bidet

    by hayley J
    Replies
    37
    Views
    15,374

    Hi Kevin, We would advise that the person you...

    Hi Kevin,

    We would advise that the person you are speaking on behalf of gets in touch with the nationwide distributor (they could ask their OT to contact if it is more convenient). I will...
  18. Replies
    0
    Views
    1,812

    MND 28th International Symposium

    Good afternoon everyone,

    You may be aware that we just had our 28th International Symposium in Boston. We've created a number of exclusive videos giving you an insight into some of the key topics...
  19. Sign a letter to the Minister for Disabled People, Health & Work #ScrapReassessments!

    Hi all!

    We’ve launched a letter to Sarah Newton MP, the new Minister for Disabled People, Health and Work, calling for an end to benefits reassessments for people living with MND.

    Sign today to...
  20. Thread: Thumb Print

    by hayley J
    Replies
    1
    Views
    1,714

    Thumb Print

    Good afternoon all,

    We recently did a survey in Thumb Print to find out what people would like to see in the magazine. Something that was suggested many times was for there to be hints and tips...
  21. Replies
    4
    Views
    3,178

    Thanks Streetwise, i'll most certainly pass on...

    Thanks Streetwise, i'll most certainly pass on your comments.

    We're in to our final session now with our Campaigns Manger Julie Compton talking about Campaigning to Make a Difference. As part of...
  22. Replies
    4
    Views
    3,178

    Our Regional Delivery Manager Tracey Thompson ...

    Our Regional Delivery Manager Tracey Thompson will soon be sharing a families experience of caring for some living with MND, followed by a interactive session that we'd love you to contribute to. ...
  23. Replies
    4
    Views
    3,178

    North and East Regional Conference today!

    Good Morning everyone!

    I'm live today from our North and East Regional conference! Our programme includes discussing Aspects of Care, a talk from Dr Haris Starvroulakis, and our Campaigns...
  24. Thanks for attending Barry! It was an informative...

    Thanks for attending Barry! It was an informative and inspiring day. If you missed it live yesterday you can watch all the speeches back on Facebook here

    We have been informed that a total of 50...
  25. Thanks Streetwise! :)

    Thanks Streetwise! :)
Results 1 to 25 of 40
Page 1 of 2 1 2