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Type: Posts; User: Jilly bean

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  1. Thread: Greiving

    by Jilly bean
    Replies
    7
    Views
    3,522

    Hi Jemima, my name's Jill, I lost my dad to MND...

    Hi Jemima, my name's Jill, I lost my dad to MND just 3 months ago I'm sorry for your loss, I was my dad's main carer until he went to our local hospice for pain control he sadly passed away in there...
  2. Thread: Grieving

    by Jilly bean
    Replies
    334
    Views
    118,407

    Hi dave my names jill I use jilly bean on here, I...

    Hi dave my names jill I use jilly bean on here, I lost my dad to MND 4 weeks ago and I do the same thing as you I pretend that my dad has gone to the shop and he will b coming back soon, I was my...
  3. Replies
    9
    Views
    5,408

    Hi there my name is jill jilly on here my dad...

    Hi there my name is jill jilly on here my dad passed away 4 weeks ago in the hospice he got a diagnosis very late as the neurologists thought it was something else that was causing my dad not being...
  4. Replies
    13
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    6,772

    Thanks again everyone for your support and its so...

    Thanks again everyone for your support and its so true this disease is horrible and the more we can help to help the professionals find a cure the better I have never had to watch anyone suffer so...
  5. Replies
    13
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    6,772

    Just out of curiosity does anyone know if there...

    Just out of curiosity does anyone know if there are any mnda meeting near wakefield or leeds area please thanks jx
  6. Replies
    13
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    6,772

    Thanks dude and also thanks for your advice...

    Thanks dude and also thanks for your advice before regarding the ensure drinks we tried these and my dad used to like them frozen so thanks for that hope u keeping ok and all the best for the future...
  7. Replies
    13
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    6,772

    Thanks Terry means alot, its yrue what I said...

    Thanks Terry means alot, its yrue what I said though some days were really hard and just coming on here changed all that it ment I could share my pain and worry and someone would always reply with...
  8. Replies
    7
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    4,251

    I am sorry to hear of peters passing my thoughts...

    I am sorry to hear of peters passing my thoughts and love to you and all your family, my dad passed away on the 29th march this year 3weeks ago its sad without them but the struggle they went...
  9. Replies
    13
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    6,772

    My dad Allan

    Hi everyone I have posted on here before and I got lots of support and ideas from lits of people which has been so valuable I cant tell u how much, I am writing this post to say my dad who was so...
  10. Thread: My dad

    by Jilly bean
    Replies
    12
    Views
    5,791

    Thanks guys, we met with the MND nurse yesterday...

    Thanks guys, we met with the MND nurse yesterday and she said she thinks my dad is in the end stages of his disseise we had along chat about were my dad feels the most comfortable and at the moment...
  11. Thread: My dad

    by Jilly bean
    Replies
    12
    Views
    5,791

    Hi dude he has had his brain tumor for 23years...

    Hi dude he has had his brain tumor for 23years and its benign and his cancer in his prostate is contaned the hospice are really good they make sure hes got plenty of fluid and so on and I talked to...
  12. Thread: My dad

    by Jilly bean
    Replies
    12
    Views
    5,791

    Thanks everyone hi katrina my dad has got ALS he...

    Thanks everyone hi katrina my dad has got ALS he was properly diagnosed 6 weeks ago but has had it for 20 months no hes also got a pre exsisting brain tumor and also prostate cancer and other illness...
  13. Replies
    48
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    23,507

    Hi katrina my dad was exactly the same, he was...

    Hi katrina my dad was exactly the same, he was given antidepressants and for a while he was fine laughing and joking and then he went to being all withdrawn and wouldn't interact with people, because...
  14. Thread: My dad

    by Jilly bean
    Replies
    12
    Views
    5,791

    My dad

    I have posted before under new to forum, my dad is currently in the hospice at the moment and today they increased his syringe driver of diamorphine which has made him a little disorientated bless...
  15. Replies
    53
    Views
    38,545

    Hi tabby just seen your message I'm so sorry to...

    Hi tabby just seen your message I'm so sorry to hear about your dad passing away, thinking about you and your family lots of love jilly bean x
  16. Replies
    18
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    10,799

    Hi tabby hope things are ok, just been reading...

    Hi tabby hope things are ok, just been reading about your floods and powecuts that you've had not what you need right now.
    Was just reading about your dad being in pain and my dad was in lots of...
  17. Replies
    20
    Views
    8,202

    Im glad to hear you slept well my dad (Allan)...

    Im glad to hear you slept well my dad (Allan) always says he feels better when he's slep well, hope u sleep well tonight also, just watching about all the flooding in Leeds and York its really bad in...
  18. Replies
    20
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    8,202

    Thanks terry hope u had a good Christmas and hope...

    Thanks terry hope u had a good Christmas and hope u ok jill xxx
  19. Replies
    20
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    8,202

    Just been to hospice to see dad he's not too bad...

    Just been to hospice to see dad he's not too bad today although he had an accident in the night and while we were there helped nurse clean him up he says hes not bothered but I know it gets to him a...
  20. Replies
    20
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    8,202

    Thanks candle my dad worked this out he said to...

    Thanks candle my dad worked this out he said to me other day before movement pain relief first, its really interesting though because in most bits of literature you read about MND it says its not...
  21. Replies
    18
    Views
    10,799

    Hi tabby my names jill, I care for my dad full...

    Hi tabby my names jill, I care for my dad full time he was diagnosed with MND just over two weeks ago but has had it for 18 months he in the hospice at the moment and today he wasnt interested in...
  22. Replies
    12
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    4,631

    Happy Christmas everyone hope you have all had a...

    Happy Christmas everyone hope you have all had a good time today and hope you all got some really nice presents xxxxx
  23. Replies
    20
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    8,202

    Thanks terry dad does look better since being in...

    Thanks terry dad does look better since being in hospice still in pain but under control better and gets the pain relief quicker there, unfortunately they dont have the same hoist there like they had...
  24. Replies
    20
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    8,202

    Hi ellie thanks for replying it means alot I will...

    Hi ellie thanks for replying it means alot I will mention to doctors about what u mentioned its worth a shot, dad seems alot better last two days still in a bit of pain but seems under better...
  25. Replies
    20
    Views
    8,202

    Hi dude, my dad gets cramps in both legs he says...

    Hi dude, my dad gets cramps in both legs he says it feels like really really bad cramp and he also gets muscle twitches, usually after first twitch the pain starts then he says sometimes he gets a...
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