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  1. Replies
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    Hello..I am hoping my husband will read this...

    Hello..I am hoping my husband will read this thread. He can still manage a soft normal diet and despite me trying to encourage him to have a PEG he flatly refuses. The man is as stubborn as a mule....
  2. Thread: Terry

    by Boiler68
    Replies
    114
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    18,438

    Richard Thank you for letting us know. Very...

    Richard

    Thank you for letting us know. Very upsetting. A great loss to us all. Don't know what else to say except please accept my condolences and to pass on my deepest sympathies to Terry's...
  3. Thread: Terry

    by Boiler68
    Replies
    114
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    18,438

    Very pleased to hear you are home Terry and able...

    Very pleased to hear you are home Terry and able to get on with life. Your posts have been missed. Need to work on putting some weight back on to build up your strength...with very best wishes to...
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    Hello All, especially Doug I don't post much...

    Hello All, especially Doug

    I don't post much these days but wanted to let you all know that I attended Dina's funeral service today. My hubby came with me and Lynn and Steve were there also. Two...
  5. Thread: Dina RIP

    by Boiler68
    Replies
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    3,221

    So very sorry to hear of Dina's passing. My...

    So very sorry to hear of Dina's passing. My condolences to her family and friends. Very sad news. She seemed a lovely lady who was very supportive on the forum and will be missed.

    Boiler xx
  6. Thread: Terry

    by Boiler68
    Replies
    114
    Views
    18,438

    Hello Terry Not logged in for some time but my...

    Hello Terry

    Not logged in for some time but my thoughts drift to you from time to time as you always give everyone sound advice and a friendly welcome. I'm so sorry you're not feeling good right...
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    Hi Debbie...you must have been in agony. Hope...

    Hi Debbie...you must have been in agony. Hope your leg heals quickly. Thanks for the warning actually-my husband is getting booked in at the dr tomorrow-couple of things we need to check out.

    Xxxx
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    Hello Dina...my husband has very little use of...

    Hello Dina...my husband has very little use of his arms and when our granddaughter was born (7 years ago now) he had the same fear. By the time she was born he wasn’t strong enough to pick her up or...
  9. Thread: Heartbroken

    by Boiler68
    Replies
    27
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    5,258

    Oh no Shrew..i’m so terribly sorry for...

    Oh no Shrew..i’m so terribly sorry for you..please please don’t blame yourself..your husband would not want you to blame yourself. It’s obvious how much you loved him dearly. I don’t know what else...
  10. Thread: Pinkelle 💕

    by Boiler68
    Replies
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    2,412

    Only just seen this and I’m very sad Pinkelle has...

    Only just seen this and I’m very sad Pinkelle has left us. I had been wondering how she was - she just never seemed to get a break. I wish her family comfort and condolences at this time and...
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    Hi Dina Check out chuc.org.uk They have info...

    Hi Dina

    Check out chuc.org.uk
    They have info on which hotels offer hoisting facilities/helpful aids.

    Boiler x
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    Hi Ann Have you checked out Wilsons in...

    Hi Ann

    Have you checked out Wilsons in Surrey..they are a motability dealer

    Boiler
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    Hello Douglas Been following your saga and...

    Hello Douglas

    Been following your saga and hoping you are comfortable. We were at Wythenshawe yesterday for blood gas check..
    Don't know about you all but Ellie's contribution to this chat is...
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    Hi Gillette, Lynne, MMW: there is a Holidays...

    Hi Gillette, Lynne, MMW: there is a Holidays thread on here that might help you with choices etc x Not saying they’ll be cheap - being disabled is an expensive business!
    Boiler x
  15. Thread: bereavment

    by Boiler68
    Replies
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    13,945

    Deepest condolences to you Liz. I hope you have...

    Deepest condolences to you Liz. I hope you have people to take care of you.
    Sending you love and hugs x
    Boiler x
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    Hi Gillette. Welcome to the forum. My husband is...

    Hi Gillette. Welcome to the forum. My husband is under Salford Royal too..he started off with John Ealing for a few years, then Mr Hamdallah and now Amina Chaouch. You’ll find lots of support and...
  17. Thread: Fed up

    by Boiler68
    Replies
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    13,678

    Hello Pink..just wanted to wish you a speedy...

    Hello Pink..just wanted to wish you a speedy recovery from your chest infection (it’s been on the rampage in our household too!) and that I sincerely hope you can make your son’s wedding next week....
  18. Thread: RIP, Rumba

    by Boiler68
    Replies
    6
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    3,690

    Sincere condolences to you Terry. I hope you're...

    Sincere condolences to you Terry. I hope you're alright. Please pass on my sympathy to Andrea's family Xx
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    Halifax are good too. I mainly do my husband's...

    Halifax are good too. I mainly do my husband's banking online for him but now and again they will challenge a transaction (to stop fraudulent activity) and we have to ring in as they know his...
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    Hi Pen Not been on for a while so only just...

    Hi Pen

    Not been on for a while so only just seen you're leaving us. Thank you for sharing your experiences with us. I know it was difficult at times.
    Best wishes to you as you journey forward....
  21. Thread: Baclofen

    by Boiler68
    Replies
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    19,851

    Hi Terry He hasn't had a bad back like this...

    Hi Terry

    He hasn't had a bad back like this before where it makes him gasp and double up. I guess poor posture and sitting all day is a major factor. He said earlier it had eased off a bit but not...
  22. Thread: Baclofen

    by Boiler68
    Replies
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    19,851

    Hello Barry, Ellie and Tiandb Thanks for your...

    Hello Barry, Ellie and Tiandb

    Thanks for your advice. I did ring the MND team at Salford today but it's not a phone that's manned all the time so we've not had a reply yet. Hopefully they'll catch...
  23. Thread: Baclofen

    by Boiler68
    Replies
    24
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    19,851

    Hi folks My husband has ALS and although...

    Hi folks

    My husband has ALS and although reluctant to take medication he's recently started with amitriptyline for saliva control. Also takes rilozule. We've got a gp appointment on Monday. Can I...
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    Lovely Kayleigh xx Happy New Year to everyone...

    Lovely Kayleigh xx
    Happy New Year to everyone on the forum xx
  25. Thread: Laser therapy

    by Boiler68
    Replies
    8
    Views
    2,744

    Hi Fru I've never heard of this. Look forward...

    Hi Fru

    I've never heard of this. Look forward to seeing if anyone has had experience of it.
    Happy New Year to you too. Xx
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