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  1. Replies
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    64

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  2. Replies
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    Dear MEJ, Hello and welcome to the Forum, I...

    Dear MEJ,

    Hello and welcome to the Forum, I expect you are both adjusting to the news but seem to be taking steps to deal with it which is good.

    I would say that leasing a Motability vehicle is...
  3. Thread: Dave K

    by John14
    Replies
    13
    Views
    5,721

    Hi Dave, Welcome back, nice to hear from you...

    Hi Dave,

    Welcome back, nice to hear from you again especially as you are a man on a mission!

    John
  4. Thread: Hello

    by John14
    Replies
    10
    Views
    3,813

    Hello Jen, Welcome and well done for posting...

    Hello Jen,

    Welcome and well done for posting such a thorough first post and yes of course it will take sometime to come to terms with things but in time you will.

    Some tips based on my...
  5. Thread: Working

    by John14
    Replies
    19
    Views
    5,886

    Hi Karl, I took early retirement around the...

    Hi Karl,

    I took early retirement around the time of diagnosis, I did not appreciate quite how much help is available to help people stay on at work in particular the Access to Work scheme. Have a...
  6. Thread: Hi All

    by John14
    Replies
    3
    Views
    1,448

    Hi David, Very nice to hear from you, I wish...

    Hi David,

    Very nice to hear from you, I wish you a happy and peaceful New Year.

    John
  7. Hello Roadahead, Welcome, I looked up the...

    Hello Roadahead,

    Welcome, I looked up the reference that you made to Rudi Francisco and he's spot on when your life falls to pieces you should go ahead and make something of the pieces.

    Thanks...
  8. Thread: Mags55

    by John14
    Replies
    18
    Views
    5,388

    This is very sad news indeed and I have to say...

    This is very sad news indeed and I have to say that I was shocked to hear of Mags passing. It did seem to me that she was able to bear her afflictions in a way that was both positive and encouraging...
  9. Thread: Help!!

    by John14
    Replies
    8
    Views
    3,417

    Dear Louise, Welcome to the Forum and let me...

    Dear Louise,

    Welcome to the Forum and let me say I am sorry to hear of your father's diagnosis it must be very difficult for him living alone on the 9th floor.

    As a Council tenant he has...
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    10,689

    Hi Pink, If you have a work pension there may...

    Hi Pink,

    If you have a work pension there may be a provision to have it paid early and in full if you have to leave your employment on health grounds this happened to me a couple of years ago.
    ...
  11. Thread: Stem Cell

    by John14
    Replies
    42
    Views
    25,350

    Thanks everyone for helping to clarify things in...

    Thanks everyone for helping to clarify things in relation to stem cell treatment, on first sight it appears to offer the possibility of improvement but now I have seen the evidence I can see that the...
  12. Replies
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    36,558

    That is disappointing, my application was...

    That is disappointing, my application was dismissed in one phone call, you work all your life and build up some savings and a pension and then when you really need help diddly squat!

    Hey Ho,
    ...
  13. Thread: Dave K

    by John14
    Replies
    13
    Views
    5,721

    Dave, How very nice to hear from you, I knew...

    Dave,

    How very nice to hear from you, I knew that you would land on your feet and it is heartening to hear that you have met someone that you have so much in common with.

    You are one of my two...
  14. Thread: Tom

    by John14
    Replies
    15
    Views
    4,579

    Hi Lorret, I have followed your posts here so...

    Hi Lorret,

    I have followed your posts here so was very sorry to hear this morning of your loss. I know that Tom had a positive approach to life with this illness and showed great character and...
  15. Replies
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    4,387

    I'm sorry to hear of the sad passing of your Mum,...

    I'm sorry to hear of the sad passing of your Mum, it is nice to hear that the people on this forum were able to provide you with support. John
  16. Replies
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    7,448

    David, I was very sorry to hear this morning that...

    David, I was very sorry to hear this morning that Michael has passed on, you were such a good friend to him,

    very best wishes,

    John
  17. Thread: Michael

    by John14
    Replies
    22
    Views
    7,787

    Hello David, sorry to hear about Michael best...

    Hello David, sorry to hear about Michael best wishes to you both.
  18. Thread: Newly diagnosed

    by John14
    Replies
    17
    Views
    6,669

    Hello Bern and welcome to the Forum, I think I...

    Hello Bern and welcome to the Forum,

    I think I know how you must be feeling, don't worry too much about having hand rails fitted they are well worth having and your O/T will advise on where they...
  19. I think I can see where you are at, it is...

    I think I can see where you are at, it is possible that the course of steroids that you are on may lead to an improvement and that despite the results of the nerve tests you may have a condition...
  20. Hi, welcome to this Forum I am sure you will find...

    Hi, welcome to this Forum I am sure you will find help and support.

    I hear what you say about things deteriorating rapidly, but you may find that sometimes things can seem to get a lot worse over...
  21. Replies
    366
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    159,978

    I've been reading about James Comey, he is...

    I've been reading about James Comey, he is certainly an impressive figure and by all accounts far better qualified for his job than President Trump. He is incidentally also the tallest director of...
  22. I agree this seems to offer modest effects at...

    I agree this seems to offer modest effects at slowing down the progression of the disease and comes 20 years after Riluzole which has a similar effect, we are still some way off a cure but it does...
  23. Thread: Riluzole

    by John14
    Replies
    53
    Views
    29,813

    Chrisp, I don't think that you need to avoid...

    Chrisp,

    I don't think that you need to avoid alcohol, just ensure that your usage is not excessive with Riluzole you do need to keep an eye on your liver function by taking regular blood tests. I...
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    Hello Harry and welcome, I take Baclofen but...

    Hello Harry and welcome,

    I take Baclofen but like Terry I am not sure how much it really helps me, my consultant advised me that I could take 9x10mg per day if I want to although I limit myself...
  25. Hello Helen, There is quite a network of local...

    Hello Helen,

    There is quite a network of local groups but the South Bucks Branch is the nearest to you I've pasted a link below.
    ...
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