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  1. Replies
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    When John was in the hospice while our building...

    When John was in the hospice while our building work was taking place the doctor called me in to say that if John went into cardiac arrest they would not intervene. No discussion had taken place with...
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    I think it's a model that could and should be...

    I think it's a model that could and should be adopted everywhere and I tell people this at every opportunity. Because they had so many MND patients 'on their books' they had vast experience of how...
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    When my husband was diagnosed in July 2012 the...

    When my husband was diagnosed in July 2012 the neuro surgeon told him that he would be passing his details on to the palliative care team at the local Macmillan unit. He went on to explain we should...
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    I cleared all of John's things from the house...

    I cleared all of John's things from the house quite quickly & I really feel that it worked for me. Like you, I found it tough when I realised that I couldn't share stuff with him anymore. But I...
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    David, I am so sorry to hear this news. I wish...

    David, I am so sorry to hear this news. I wish that I had a friend like you who is there through the good times and the bad in the way that you have been with Michael.
    You must have millions of...
  6. Thread: Michael

    by Smudge
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    7,787

    Sorry to hear about Micheal - he's really lucky...

    Sorry to hear about Micheal - he's really lucky to have a friend like you x
  7. Thread: Roy

    by Smudge
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    3,776

    So sorry to hear the news - Roy was a prolific...

    So sorry to hear the news - Roy was a prolific poster when I first joined the forum.

    I hope his family can look back at the man happy memories that they must have of this kind man
  8. Replies
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    I used to shave my husband with a razor & to be...

    I used to shave my husband with a razor & to be honest I really enjoyed doing it. To me it made me feel closer to him, knowing that he trusted me not to hurt him & him looking into my eyes the whole...
  9. Thread: Our Dear Lynne

    by Smudge
    Replies
    42
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    13,725

    Lynne will be in my thoughts, a very brave...

    Lynne will be in my thoughts, a very brave decision on her part - a soul set free xx

    Wendy
  10. Thread: So tired!

    by Smudge
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    5,372

    I'm sorry to hear that you are feeling down Jan....

    I'm sorry to hear that you are feeling down Jan.

    I lost my husband 3 years ago, so I'd like to give you a view from the perspective of a spouse. You are the person that your husband wakes up to...
  11. Thread: moving home

    by Smudge
    Replies
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    22,595

    We put Altro in the wet room - a cheap carpet...

    We put Altro in the wet room - a cheap carpet with no underlay in John's bedroom & some ceramic tiles that look exactly like laminate flooring but are much harder wearing in the hallway. By the time...
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    I've competed the survey, but it seems to focus...

    I've competed the survey, but it seems to focus on the application process etc, which was very positive for me as the palliative care team did everything for me and all I had to do was be at home to...
  13. Thread: Bad fall

    by Smudge
    Replies
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    28,435

    I'm really sorry to hear about your fall, maybe...

    I'm really sorry to hear about your fall, maybe part of it was that you still had your sea legs on?

    My John used to fall over quite a lot, usually when he was going down a step, but in his younger...
  14. Thread: PEG or no PEG

    by Smudge
    Replies
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    32,641

    John's FVC was too low for a PEG so he had a POG...

    John's FVC was too low for a PEG so he had a POG fitted instead. He had to have a tube inserted in his nose for the op ti inflate his tummy and then a local anesthetic only at the insertion site....
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    Yes please Joycie, and thank you for arranging...

    Yes please Joycie, and thank you for arranging this.

    Wendy x
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    I'm so sorry to hear of Jock's passing. He was a...

    I'm so sorry to hear of Jock's passing. He was a valued member of the forum and will be greatly missed by us, although obviously not as much as you will miss him.

    Sending lots of love from someone...
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    Hi Fozzie, welcome to the forum I'm also very...

    Hi Fozzie, welcome to the forum

    I'm also very close to Southampton and my husband & I did a couple of cruises as it was so convenient and he couldn't fly by the time we went on the second one. ...
  18. Thread: Ramps!

    by Smudge
    Replies
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    26,746

    Joycie, I had carers for john to help him dress...

    Joycie, I had carers for john to help him dress and get lunch while I was at work. I took the pressure off and also made me his wife again, rather than his carer (if that makes sense!). Obviously...
  19. Thread: What a mess

    by Smudge
    Replies
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    54,176

    I'm so sorry to hear of David's passing, he was a...

    I'm so sorry to hear of David's passing, he was a wise and caring man and his loss will be felt by his family, friends and forum members

    Wendy xx
  20. Thread: What a mess

    by Smudge
    Replies
    135
    Views
    54,176

    Do you think that violence is a possibility?...

    Do you think that violence is a possibility? Because if you do, then you need to contact someone quickly for both of you

    Wendy x
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    We had a clos o mat installed for John, but sadly...

    We had a clos o mat installed for John, but sadly the little monkey only used it once before he died. Ours has large strip buttons on the front of the cistern unit and either one can be pushed in to...
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    The Mac Unit are an amazing team aren't they? I'm...

    The Mac Unit are an amazing team aren't they? I'm so glad that you both got something from it and like I said on Tuesday, they know stuff so you don't have to.

    :)
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    :o It was good to meet you too! And we got to...

    :o
    It was good to meet you too!

    And we got to mingle with sports stars at the same time. Well, the Leeds United Football team anyway
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    Hi John I love the snow, as does the dog, but...

    Hi John

    I love the snow, as does the dog, but we have our own little micro climate here and we seldom get any.

    Obviously being soft southerners, when we do get a light dusting chaos hits and...
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    I was a glorious morning to get some fresh air...

    I was a glorious morning to get some fresh air wasn't it.

    I was out with the dog at 7 this morning and it was heaven - we saw a deer with her fawn, a kestrel and a beautiful woodpecker.

    If I...
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