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Type: Posts; User: gloslad

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    Thank you everyone who shared condolences - i...

    Thank you everyone who shared condolences - i feel so lost without my husband am really struggling at the moment - still feel so shocked that 6 weeks after diagnosis he died so suddenly - autopsy...
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    Hi all, sorry for slow response. Thank you all...

    Hi all, sorry for slow response. Thank you all for your kind words of support.

    Ellie, yes I do have spasticity in my legs.

    I feel resistance in left leg more than right leg.

    Prof Turner did...
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    Saw Prof Turner, a lovely guy, he has diagnosed...

    Saw Prof Turner, a lovely guy, he has diagnosed PLS which ,although not unexpected, to hear the words was a hammer blow. Saw a nurse afterwards who was also lovely, but to be honest was all a bit of...
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    thank you

    thank you
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    thanks, my wife has a million questions for him :)

    thanks, my wife has a million questions for him :)
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    Hi Ellie, off to Prof Tabot today so hopefully I...

    Hi Ellie, off to Prof Tabot today so hopefully I might have news later
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    me too Terry

    me too Terry
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    no not yet, just waiting for the letter to arrive.

    no not yet, just waiting for the letter to arrive.
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    just an quick update. My sensory and visual...

    just an quick update. My sensory and visual evoked results are all normal. So the only symptoms i have are:

    I can hardly walk ( i use crutches)
    positive babinski and hoffmans

    my wife is...
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    hi, yes he did. Thank you all for your...

    hi, yes he did.

    Thank you all for your comments, they have been really helpful
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    oh I forgot to mention clonus in the ankles too

    oh I forgot to mention clonus in the ankles too
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    Hi Ellie, yes they are but I am still waiting for...

    Hi Ellie, yes they are but I am still waiting for sensory and visual evoked results, my eyes are fine and no other issues. Still waiting for appointment date at Oxford.

    I just want a doc to say...
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    it's just case of waiting for my appointment now...

    it's just case of waiting for my appointment now and go from there. I am lucky in that my employer lets me work from home 4 days a week and I can still drive and do not have any issues with the...
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    Thanks Lynne, I appreciate the reply. The worst...

    Thanks Lynne, I appreciate the reply. The worst part is the not knowing and the waiting, which looking through different threads is a common occurrence. It's been 2 years of gradual decline, from...
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    Hi, thanks for the response. I saw neuro doc last...

    Hi, thanks for the response. I saw neuro doc last week and he said I am not following familiar patterns of other ailments so would like to refer me onwards. Maybe my mind has gone into overdrive and...
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    Hi and I am confused/scared

    Hi, thanks for letting me join your group. I have been reading your inspirational and heartbreaking stories; Here is mine:

    I am a 49 year old male, who used to love playing rugby/cricket/cycling...
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