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  1. Thread: RIP Ezri

    by lost soul !
    Replies
    14
    Views
    4,421

    Pen, remember one thing she is now no longer in...

    Pen, remember one thing she is now no longer in pain and as much as you will miss her, Walk Tall knowing you did all you could, Lost my wonderful wife two years ago and being her full time carer I do...
  2. Thread: Hard

    by lost soul !
    Replies
    23
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    7,409

    Hello Skipton, I really understand your comments...

    Hello Skipton, I really understand your comments as I was my Wife’s full time carer, whilst I had support from the hospice, doctors and more importantly my family, the complex nature of mnd and our...
  3. Replies
    26
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    4,918

    Hello Catsparkle, Shrew, and others sharing...

    Hello Catsparkle, Shrew, and others sharing devastating feelings after the diagnosis of MND. Sometimes the fear of the unknown is worse than the unknown, MND is so varied and confusing, the affect is...
  4. Replies
    25
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    21,011

    Caz and all you other lovely people who are...

    Caz and all you other lovely people who are sharing their own grief but still taking time out to try and help others on this forum. I lost my brave beautiful Wife 2 years ago through MND and after 49...
  5. There are special “bottles” for both men & women...

    There are special “bottles” for both men & women if they get caught short !!!, these can be found on the internet and may be useful for an emergency pee. Peter x
  6. Replies
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    15,125

    Pinkelle, Sorry you had such a bad experience...

    Pinkelle, Sorry you had such a bad experience with your mobility scooter, it amazes me how much difference one can be treated even with the same airline, when I took my Wife for a holiday in nice and...
  7. Replies
    12
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    3,836

    Murrjo1, being my wife’s full time carer and...

    Murrjo1, being my wife’s full time carer and having read your message I fully understand your feeling and turmoil, as always I am amazed at all the lovely people on the forum who give you their ...
  8. Replies
    40
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    15,001

    My wife while under Kings for MND also went to...

    My wife while under Kings for MND also went to the Lane Fox unit at St Thomas’s where their expertise quickly diagnosed her lack of oxygen, she actually stayed there for two nights for a complete...
  9. Replies
    21
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    14,385

    Mark, I feel for you and I do know what emotional...

    Mark, I feel for you and I do know what emotional turmoil can be, But, having lost my wife to MND 16 months ago I was and still am determined to move on “with her”, out of the love, respect for her...
  10. Replies
    10
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    4,749

    I understand your feeling, having lost my Mother...

    I understand your feeling, having lost my Mother 3 years ago and my wife 18 months ago I still think they will come back. I know I am in denial and try hard to move on, we, you and I have to out of...
  11. Annb, Being the full time carer for my wife, we...

    Annb, Being the full time carer for my wife, we went through many of the fears and tears of what you are being faced with, we are all individuals and each interprerates and acts on what we think is...
  12. Thread: Guilt trip

    by lost soul !
    Replies
    16
    Views
    5,524

    Hello Kechro, I read your " guilty" message, it...

    Hello Kechro, I read your " guilty" message, it was like I wrote it as virtually word for word I felt the same way, in particular trying to help my wife keep her dignity which like her courage and...
  13. Replies
    15
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    6,534

    You really should not be having to sort out your...

    You really should not be having to sort out your genuine needs, that should be taken by proffesional people who have the experience to take on your care and needs and are employed to do just that....
  14. hello Julip, firstly I am sorry you, your man &...

    hello Julip, firstly I am sorry you, your man & family have been told of his diagnosis of MND, I do know what you are going through as my wife was also diagnosed with the same, I like others have...
  15. Thread: Aftermath

    by lost soul !
    Replies
    21
    Views
    11,323

    You did all you could, in probably the most...

    You did all you could, in probably the most complex and traumatic time. I pray you find peace with yourself and can walk tall knowing in your heart your man how hard it was for you both, He knew and...
  16. Thread: Aftermath

    by lost soul !
    Replies
    21
    Views
    11,323

    I have gone on the thread aftermath, like Susan x

    I have gone on the thread aftermath, like Susan x
  17. Thread: Aftermath

    by lost soul !
    Replies
    21
    Views
    11,323

    Bern, Just read your reply and add you to the...

    Bern, Just read your reply and add you to the lovely people I have mentioned who have so thoughtfully given me words of comfort and support.
    Peter x p.s. Don't forget to share yours.
  18. Thread: Aftermath

    by lost soul !
    Replies
    21
    Views
    11,323

    Your response, is like a kick up the bum but put...

    Your response, is like a kick up the bum but put in such a lovely caring way,

    Terry, you remind me to try and remember the good times to over power the negative ones which can and have been so...
  19. Thread: Aftermath

    by lost soul !
    Replies
    21
    Views
    11,323

    It is now nearly one year since I lost my...

    It is now nearly one year since I lost my beautiful lady who showed so much strength and dignity during her suffering with MND, being her full time carer I found a new strength and was determined to...
  20. Replies
    56
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    20,745

    Yes Dave, keeping busy is my only way of coping...

    Yes Dave, keeping busy is my only way of coping and trying to move on, am considering getting a part time job as this will keep me busy and help with the loneliness, (money would come in handy as...
  21. Replies
    7
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    2,540

    Mags, enjoy you little luxuries, I even shared a...

    Mags, enjoy you little luxuries, I even shared a gin & tonic with my wife who although couldn't swallow carefully swilled it around her mouth for the taste ( and other effect! ) before spitting it...
  22. Replies
    7
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    2,540

    Bkerchick & Barry 52, really understand your...

    Bkerchick & Barry 52, really understand your thoughts and do know what you are going through, my wife Vicky mentioned Switzerland!! as she was very reluctant to have the tube fitted and other medical...
  23. Replies
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    11,290

    Peg We called it Peggy !

    Firstly let me emphasise, you are a brave lady facing up to a challenge, you had the peg fitted to help you continue to live and be still around for yourself and your family, My wife who had the peg...
  24. Help for you

    Rebbeca
    We have in Kent local MNDA and local hospice, who we contacted and they were so helpful in all of our questions, I am sure the same should be available to you. You will be amazed at what...
  25. Replies
    56
    Views
    20,745

    Reading your, replies and chats give me some hope...

    Reading your, replies and chats give me some hope of moving on, I will never move on without my wife still walking beside me in my thoughts, keeping occupied and being in contact with friends is now...
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